CNN- To vh- Strength in numbers

[Guest guest]

Sweetie, we were deciding yesterday that each one of us should write to CNN

about Fibromyalgia and ask them to give some good coverage on it. WE are STRONG

together. The more people that will email, the better chance we have with

getting the TRUTH out. The 30 second commercials are a start but are only

serving in some cases to make people roll their eyes. Please write to them at

CNN and tell them something about your story and tell them how REAL this disease

is. I wrote them twice to two different email addresses yesterday. I listed

alot of sypmtoms and told them that I did not even know the word " fibromyalgia "

until I got sick with it. WRITE THEM, WRITE THEM, AND WRITE THEM UNTIL THEY

LISTEN.

Ok then if we choose another news organization in a couple of weeks and we all

write them also. 1000 or more letters will get more attention than just one.

love and hugs,

Debra V.

> I am still looking for the email address to CNN. I attempted to go to

> CNN.com/health and all it gives me is information about their stories. It

> gives me no address that I can actually write a personal email to the site.

> It keeps taking me to addresses that contain news. I want the address I

> CAN WRITE TO. Frustrated but still looking. I know that magicaldream( one

> of our members) did write to them, but for some reason it won't let me find

> the site to email from.

> hugs,

> Debra V.

>

>

>

> ____________ _________ _________ _________ _________ _________ _

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

> http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

>

> ------------ --------- --------- ------

>

> 1. While it is wonderful to share our experiences with everyone on the list

> as to what treatments do and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along with other meds as well

> as to certain health conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is) pls

> don't be afraid to ask for help. It is the first step to trying to make

> that situation better.

>

> 3. To unsubscribe the e-mail is:

> Fibromyalgia_ Support_Group- unsubscribe@ yahoogroups. com

>

> 4. Also, it is not uncommon for more than one member to be feeling bad at

> the same time when it comes to flares and b/c of that potentially take

> something another member says the wrong way. And that includes the things

> that one member may find funny (even if it's laughing at fibro itself) even

> though we who deal with illness whether one such as fibro or multiple

> illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a bad day pls

> let us know so that we can do our best to offer our support.

>

> Have a nice day everyone.

>

[Guest guest]

Because I wasn't able to locate an address for CNN, I tried yesterday

to send an email to the doctor who is on Fox News. Have to check my

outgoing emails to see if it did actually go. But on at least one of

the daytime shows, he does answer and respond to viewers questions,

comments and I think he probably does some additional research before

answering the questions. But I framed the question around the fact

that the 10th is Fibro Awareness day, and asked him if he planned to

say something on the air. If anyone else wants to try to send

something to him, he is listed on the Fox News site as " Ask Dr.

Manny " . I realize one email may not be enough but thought since I am

a faithful viewer of some of the programs he is on, I would write

about my personal experiences and also urged him to discuss the topic.

>

> > I am still looking for the email address to CNN. I attempted to

go to

> > CNN.com/health and all it gives me is information about their

stories. It

> > gives me no address that I can actually write a personal email to

the site.

> > It keeps taking me to addresses that contain news. I want the

address I

> > CAN WRITE TO. Frustrated but still looking. I know that

magicaldream( one

> > of our members) did write to them, but for some reason it won't

let me find

> > the site to email from.

> > hugs,

> > Debra V.

> >

> >

> >

> > ____________ _________ _________ _________ _________ _________ _

> > Be a better friend, newshound, and

> > know-it-all with Yahoo! Mobile. Try it now.

> > http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

> >

> > ------------ --------- --------- ------

> >

> > 1. While it is wonderful to share our experiences with everyone

on the list

> > as to what treatments do and don't work for us, pls always check

with your

> > dr. Some treatments are dangerous when given along with other

meds as well

> > as to certain health conditions or just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't matter what it

is) pls

> > don't be afraid to ask for help. It is the first step to trying

to make

> > that situation better.

> >

> > 3. To unsubscribe the e-mail is:

> > Fibromyalgia_ Support_Group- unsubscribe@ yahoogroups. com

> >

> > 4. Also, it is not uncommon for more than one member to be

feeling bad at

> > the same time when it comes to flares and b/c of that potentially

take

> > something another member says the wrong way. And that includes

the things

> > that one member may find funny (even if it's laughing at fibro

itself) even

> > though we who deal with illness whether one such as fibro or

multiple

> > illnesses try to keep a sense of humor.

> >

> > 5. Pls let's be gentle with each other, and if you are having a

bad day pls

> > let us know so that we can do our best to offer our support.

> >

> > Have a nice day everyone.

> >