Re: My poem Fibro-- The Invisible Hell (repost)

May 5, 2008

AWESOME!!!! Maybe you should send this in??? This is one of the best

descriptions I have read. Also, in the web fibro sites, they have places you

can send in poetry like this.

Hugs,

Annie in TN

debra van ness ladybug75901@...> wrote:

The following is a repost of a poem I wrote over a year ago. I want to share it

with new people who have come to the group.

Also please Write CNN this week (email) and tell them something about your story

of fibro and how we need more information out there from REAL people with the

REAL story.

love and hugs,

Debra V.

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Date: Sat, 17 Mar 2007 08:05:31 -0700

From: ladybug75901@...

Subject: Fwd: My poem-- Fibro-- The Invisible Hell

To: revgwyork@...

debra van ness ladybug75901@...> wrote:

Date: Sat, 17 Mar 2007 07:55:27 -0700 (PDT)

Subject: My poem-- Fibro-- The Invisible Hell

To: Fibromyalgia_Support_Group

Dear friends,

Last night I was up at 2 am. This piece of poetry came to me and I wrote it.

Maybe you can all relate. I have not written any poetry in years, but as I

said, it just came to me.

Fibro-- The Invisible Hell

I'll creep into your life when you are young and carefree,

so subtly you won't know or even recognize me.

I'll start with a little tingle, perhaps some numbness or a

little pain---

I'll kick you when you are down, when it's cold or starts to rain.

Ignore me and explain the little things away----

but as the days go by I'll settle in to stay.

Fibromyalgia such a medical term----

for something so sinister, cruel and so stern

Tell your doctor I am here--- he won't be able to see.

No tests, no broken bones, no lab to prove it's me.

When you awaken in the morning after years I have progressed,

you'll be hurt and feel so stiff you'll hardly get dressed.

I thrive on every crisis or pitall of emotion----

I'll drown your soul like silent waves crashing on the ocean.

You know they'll call you crazy, insufficient, even lazy.

Your mind will be a fog at times- your memory even hazy.

The pain will get intense as slowly pass the days,

then you'll have to pay attention, I won't go away.

The little hints of tingling will turn to burning hell----

You'll think you've lost your mind in my silent evil spell.

You'll feel so bone deep tired, I'll be worse than the flu----

But you look so healthy, I'll be sure they don't believe you.

I'll atack you in your sleep like you never went to bed----

Your family may believe I'm just inside your head.

They say you don't have pain; It can't be that bad.

Some aspirin and some sleep fixed the flu that they had.

Am I a virus, a chemical, or something that you lack?

Be assured that if I leave, I'll always be back.

At times you may return to what you use to be.

Enjoy it when you can because I will not set you free.

I'll take away time with your children, rob you of your joy and smile.

Send away your friends and family--- I'm back for a while.

Fibromyalgia is my name for those that believe I am for real----

Such medical terminology for the way I cheat and steal.

By Debra Van

Ness,

(a

fibromite)

It's here! Your new message!

Get new email alerts with the free Yahoo! Toolbar.

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

__________________________________________________________

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know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

---------------------------------

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May 5, 2008

Wow Debra-

That is awesome. You are quite talented!

Jill in TN

>

> The following is a repost of a poem I wrote over a year ago. I want to

> share it with new people who have come to the group.

> Also please Write CNN this week (email) and tell them something about your

> story of fibro and how we need more information out there from REAL people

> with the REAL story.

> love and hugs,

> Debra V.

>

> #yiv1857474710 P

> {

> margin:0px;padding:0px;}

> #yiv1857474710

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> FONT-SIZE:10pt;FONT-FAMILY:Tahoma;}

>

> Date: Sat, 17 Mar 2007 08:05:31 -0700

> From: ladybug75901@...

> Subject: Fwd: My poem-- Fibro-- The Invisible Hell

> To: revgwyork@...

>

> debra van ness ladybug75901@... > wrote:

> Date: Sat, 17 Mar 2007 07:55:27 -0700 (PDT)

> From: debra van ness ladybug75901@... >

> Subject: My poem-- Fibro-- The Invisible Hell

> To:

Fibromyalgia_Support_Group

>

> Dear friends,

>

> Last night I was up at 2 am. This piece of poetry came to me and I wrote

> it. Maybe you can all relate. I have not written any poetry in years, but

> as I said, it just came to me.

>

> Fibro-- The Invisible Hell

>

> I'll creep into your life when you are young and carefree,

> so subtly you won't know or even recognize me.

> I'll start with a little tingle, perhaps some numbness or a

> little pain---

> I'll kick you when you are down, when it's cold or starts to rain.

> Ignore me and explain the little things away----

> but as the days go by I'll settle in to stay.

> Fibromyalgia such a medical term----

> for something so sinister, cruel and so stern

> Tell your doctor I am here--- he won't be able to see.

> No tests, no broken bones, no lab to prove it's me.

> When you awaken in the morning after years I have progressed,

> you'll be hurt and feel so stiff you'll hardly get dressed.

> I thrive on every crisis or pitall of emotion----

> I'll drown your soul like silent waves crashing on the ocean.

> You know they'll call you crazy, insufficient, even lazy.

> Your mind will be a fog at times- your memory even hazy.

> The pain will get intense as slowly pass the days,

> then you'll have to pay attention, I won't go away.

> The little hints of tingling will turn to burning hell----

> You'll think you've lost your mind in my silent evil spell.

> You'll feel so bone deep tired, I'll be worse than the flu----

> But you look so healthy, I'll be sure they don't believe you.

> I'll atack you in your sleep like you never went to bed----

> Your family may believe I'm just inside your head.

> They say you don't have pain; It can't be that bad.

> Some aspirin and some sleep fixed the flu that they had.

> Am I a virus, a chemical, or something that you lack?

> Be assured that if I leave, I'll always be back.

> At times you may return to what you use to be.

> Enjoy it when you can because I will not set you free.

> I'll take away time with your children, rob you of your joy and smile.

> Send away your friends and family--- I'm back for a while.

> Fibromyalgia is my name for those that believe I am for real----

> Such medical terminology for the way I cheat and steal.

>

> By

> Debra Van Ness,

>

> (a

> fibromite)

>

> It's here! Your new message!

> Get new email alerts with the free Yahoo! Toolbar.

>

> Looking for earth-friendly autos?

> Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

>

> __________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

> http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

May 5, 2008

Debra, I loved the poem. It fits so perfect.

I don't know if any one else has every seen this but it could also fit

for how we have to live our lives with fibromyalgia. I sent it to my

sister once to try and explain the difference between her day and

mine.

http://www.butyoudontlooksick.com/the_spoon_theory/

May 5, 2008

The spoon theory is wonderful!!! People just don't care enough to read it

through. I actually sent out the Letter to Normals and a " friend " complained it

was too long and deleted it. I just turned around a walked away.

Hugs,

Annie in TN

gmwoodburn0931 dmgmwoodburn@...> wrote:

Debra, I loved the poem. It fits so perfect.

I don't know if any one else has every seen this but it could also fit

for how we have to live our lives with fibromyalgia. I sent it to my

sister once to try and explain the difference between her day and

mine.

http://www.butyoudontlooksick.com/the_spoon_theory/

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

May 5, 2008

Debra, I have a suggestion for you! Since you have this really

wonderful talent with words, have you thougth of either submitting

them to one of the fibro magazines or even see if you could self

publish a collection and offer them for sale on a site such as

amazon? One of the sisters of my friend who died after a long battle

with cancer, decided to publish the journal she wrote during several

years of her battle with cervical cancer and it was available on

amazon and she also had it in several locations in our home state of

Illinois. I have a copy somewhere and I think it was perhaps under

200 pages, the cover was the equivalent of a paperback and I also

think the book design was probably one of her own designs (she was an

artist).

I don't know how you would do this other than perhaps try Kinko's or

a place such as that, but it's another way to get the message out on

a personal level. I'm going to check and see if Nina Rae's book is

still on amazon; I know her husband removed all of her artwork from

one of the state artisan market places following her death, but left

some of the books which he had the center selling with a poster of

her artwork.

Just a suggestion.

-- In Fibromyalgia_Support_Group , debra van ness

wrote:

>

> The following is a repost of a poem I wrote over a year ago. I

want to share it with new people who have come to the group.

> Also please Write CNN this week (email) and tell them something

about your story of fibro and how we need more information out there

from REAL people with the REAL story.

> love and hugs,

> Debra V.

>

> #yiv1857474710 P

> {

> margin:0px;padding:0px;}

> #yiv1857474710

> {

> FONT-SIZE:10pt;FONT-FAMILY:Tahoma;}

>

> Date: Sat, 17 Mar 2007 08:05:31 -0700

> From: ladybug75901@...

> Subject: Fwd: My poem-- Fibro-- The Invisible Hell

> To: revgwyork@...

>

> debra van ness wrote:

> Date: Sat, 17 Mar 2007 07:55:27 -0700 (PDT)

> From: debra van ness

> Subject: My poem-- Fibro-- The Invisible Hell

> To: Fibromyalgia_Support_Group

>

> Dear friends,

>

> Last night I was up at 2 am. This piece of poetry came to me and I

wrote it. Maybe you can all relate. I have not written any poetry

in years, but as I said, it just came to me.

>

> Fibro-- The Invisible Hell

>

> I'll creep into your life when you are young and carefree,

> so subtly you won't know or even recognize me.

> I'll start with a little tingle, perhaps some numbness or a

> little pain---

> I'll kick you when you are down, when it's cold or starts to

rain.

> Ignore me and explain the little things away----

> but as the days go by I'll settle in to stay.

> Fibromyalgia such a medical term----

> for something so sinister, cruel and so stern

> Tell your doctor I am here--- he won't be able to see.

> No tests, no broken bones, no lab to prove it's me.

> When you awaken in the morning after years I have progressed,

> you'll be hurt and feel so stiff you'll hardly get dressed.

> I thrive on every crisis or pitall of emotion----

> I'll drown your soul like silent waves crashing on the ocean.

> You know they'll call you crazy, insufficient, even lazy.

> Your mind will be a fog at times- your memory even hazy.

> The pain will get intense as slowly pass the days,

> then you'll have to pay attention, I won't go away.

> The little hints of tingling will turn to burning hell----

> You'll think you've lost your mind in my silent evil spell.

> You'll feel so bone deep tired, I'll be worse than the flu----

> But you look so healthy, I'll be sure they don't believe you.

> I'll atack you in your sleep like you never went to bed----

> Your family may believe I'm just inside your head.

> They say you don't have pain; It can't be that bad.

> Some aspirin and some sleep fixed the flu that they had.

> Am I a virus, a chemical, or something that you lack?

> Be assured that if I leave, I'll always be back.

> At times you may return to what you use to be.

> Enjoy it when you can because I will not set you free.

> I'll take away time with your children, rob you of your joy and

smile.

> Send away your friends and family--- I'm back for a while.

> Fibromyalgia is my name for those that believe I am for real----

> Such medical terminology for the way I cheat and steal.

>

By Debra Van Ness,

>

(a fibromite)

>

> It's here! Your new message!

> Get new email alerts with the free Yahoo! Toolbar.

>

> Looking for earth-friendly autos?

> Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

May 5, 2008

Debra,

I loved your poem. So very true. I hope you don't mind, but I

copied it, so I could pull it out and read it every now and then. I

showed it to my parents and I'm looking forward to sharing it with my

husband when he gets home. Thank you for writing such a wonderful

piece!

Gentle Hugs,

Kristi

> Date: Sat, 17 Mar 2007 07:55:27 -0700 (PDT)

> From: debra van ness

> Subject: My poem-- Fibro-- The Invisible Hell

> To: Fibromyalgia_Support_Group

>

> Dear friends,

>

> Last night I was up at 2 am. This piece of poetry came to me and I

wrote it. Maybe you can all relate. I have not written any poetry

in years, but as I said, it just came to me.

>

> Fibro-- The Invisible Hell

>

> I'll creep into your life when you are young and carefree,

> so subtly you won't know or even recognize me.

> I'll start with a little tingle, perhaps some numbness or a

> little pain---

> I'll kick you when you are down, when it's cold or starts to

rain.

> Ignore me and explain the little things away----

> but as the days go by I'll settle in to stay.

> Fibromyalgia such a medical term----

> for something so sinister, cruel and so stern

> Tell your doctor I am here--- he won't be able to see.

> No tests, no broken bones, no lab to prove it's me.

> When you awaken in the morning after years I have progressed,

> you'll be hurt and feel so stiff you'll hardly get dressed.

> I thrive on every crisis or pitall of emotion----

> I'll drown your soul like silent waves crashing on the ocean.

> You know they'll call you crazy, insufficient, even lazy.

> Your mind will be a fog at times- your memory even hazy.

> The pain will get intense as slowly pass the days,

> then you'll have to pay attention, I won't go away.

> The little hints of tingling will turn to burning hell----

> You'll think you've lost your mind in my silent evil spell.

> You'll feel so bone deep tired, I'll be worse than the flu----

> But you look so healthy, I'll be sure they don't believe you.

> I'll atack you in your sleep like you never went to bed----

> Your family may believe I'm just inside your head.

> They say you don't have pain; It can't be that bad.

> Some aspirin and some sleep fixed the flu that they had.

> Am I a virus, a chemical, or something that you lack?

> Be assured that if I leave, I'll always be back.

> At times you may return to what you use to be.

> Enjoy it when you can because I will not set you free.

> I'll take away time with your children, rob you of your joy and

smile.

> Send away your friends and family--- I'm back for a while.

> Fibromyalgia is my name for those that believe I am for real----

> Such medical terminology for the way I cheat and steal.

>

By Debra Van Ness,

>

(a fibromite)

>

> It's here! Your new message!

> Get new email alerts with the free Yahoo! Toolbar.

>

> Looking for earth-friendly autos?

> Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

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