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Fibro Pain and doctors.

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I know that a lot of times if I have to go to the ER for something I

do not even tell the doctors that I have Fibro. I think they believe

like most that the pain is in your head and they ignore what is

happening. I made that mistake once. I went in with extreme cramps in

my legs. Both legs with the cramps going from inner thighs to my

calves. It was bringing me to tears and screams and a lot of @#!#!.

The doc did lab work and virtually just threw a script for pain meds

at me. That is not what I wanted, I wanted to know WHY was this

happening and he was putting it off to fibro. Well after I saw my PC

and he showed me a copy of the labs I went wait a minute. My blood

sugar was only 110 on these labs, which is normal, but just two hours

prior I had taken insulin because my blood sugar had been 420. He

said that what happen was that with the rapid drop it caused the

cramps. If the ER doc had just discussed the labs with me we could

have figured it out. He blew me off instead and put it off to me

being a crazy lady. Now I always ask for one specific doc that works

there and knows me. He listens. He even argued with a nurse one time

when I was having really bad seizure because she wanted a CT and he

all ready knew that I had a brain tumor and that we are not doing

anything with it. He looked at the nurse and told her it would not

change his treatment plan to stop the seizures. He knows that I am a

do not resuscitate. He honors my wishes and treats me with respect.

I wish all doctors could be like this but so many just do not

understand people who live with pain on a daily basis. I am lucky

that I have a great PC. We knew each other as colleagues when I was a

paramedic. I was glad when he opened a family practice down here. He

never just comes in the room and starts poking around he sits down

and listens first. Don't you wish they would all do this?

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Sounds like you found at least ONE good doctor.  I wish they would all try to

listen to their patients.  Sometimes I believe that they already have their

minds made up about us before they even walk into the room.

hugs,

Debra V.

Subject: Fibro Pain and doctors.

To: Fibromyalgia_Support_Group

Date: Monday, May 5, 2008, 11:23 AM

I know that a lot of times if I have to go to the ER for something I

do not even tell the doctors that I have Fibro. I think they believe

like most that the pain is in your head and they ignore what is

happening. I made that mistake once. I went in with extreme cramps in

my legs. Both legs with the cramps going from inner thighs to my

calves. It was bringing me to tears and screams and a lot of @#!#!.

The doc did lab work and virtually just threw a script for pain meds

at me. That is not what I wanted, I wanted to know WHY was this

happening and he was putting it off to fibro. Well after I saw my PC

and he showed me a copy of the labs I went wait a minute. My blood

sugar was only 110 on these labs, which is normal, but just two hours

prior I had taken insulin because my blood sugar had been 420. He

said that what happen was that with the rapid drop it caused the

cramps. If the ER doc had just discussed the labs with me we could

have figured it out. He blew me off instead and put it off to me

being a crazy lady. Now I always ask for one specific doc that works

there and knows me. He listens. He even argued with a nurse one time

when I was having really bad seizure because she wanted a CT and he

all ready knew that I had a brain tumor and that we are not doing

anything with it. He looked at the nurse and told her it would not

change his treatment plan to stop the seizures. He knows that I am a

do not resuscitate. He honors my wishes and treats me with respect.

I wish all doctors could be like this but so many just do not

understand people who live with pain on a daily basis. I am lucky

that I have a great PC. We knew each other as colleagues when I was a

paramedic. I was glad when he opened a family practice down here. He

never just comes in the room and starts poking around he sits down

and listens first. Don't you wish they would all do this?

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I was lucky to find such a sweet PC. I was pregnant for the 5th time

and 4 miscarriages one night and could not locate my other half

(before we all had cell phones) I thought I was going to lose this

baby too. He crawled up on the stretcher and held me while I cried

and told me he would do anything he possibly could to make sure we

had this baby. Most ER docs are not going to put themselves out for a

patient like that. I knew without a doubt when he opened his family

practice I was going to him. His attitude has never changed. When I

started getting sick he was always there for me and if he didn't know

the answer he would say so and find someone who could help. I think

that is why I was dx so fast compared to most people. He listens and

I wish I could clone him and send him to each of you. I know my mom

got so close to him that even after she moved 4 hours away that when

she comes into town they always meet up with each other and go out to

dinner.

>

> Sounds like you found at least ONE good doctor.  I wish they would

all try to listen to their patients.  Sometimes I believe that they

already have their minds made up about us before they even walk into

the room.

> hugs,

> Debra V.

>

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