Re: Newbie, New Diagnosis and questions

May 4, 2008

Speaking of forearms, like today when I have a feverish feeling in my

forearms exclusive.

Try this one, lay both arms across the top of your grab one wrist and

see how many seconds it takes for your forearms to go numb.

My forearms usually take less than 10 seconds, and if I don't stop

will go fully numb in about 20 seconds.

May 4, 2008

Thanks for the tip. Any suggestions for that ice pick stabbing and burning

type pain in the back of the neck?

Joe in OH

Re: Newbie, New Diagnosis and questions

Speaking of forearms, like today when I have a feverish feeling in my

forearms exclusive.

Try this one, lay both arms across the top of your grab one wrist and

see how many seconds it takes for your forearms to go numb.

My forearms usually take less than 10 seconds, and if I don't stop

will go fully numb in about 20 seconds.

------------------------------------

1. While it is wonderful to share our experiences with everyone on the list

as to what treatments do and don't work for us, pls always check with your

dr. Some treatments are dangerous when given along with other meds as well

as to certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't

be afraid to ask for help. It is the first step to trying to make that

situation better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at

the same time when it comes to flares and b/c of that potentially take

something another member says the wrong way. And that includes the things

that one member may find funny (even if it's laughing at fibro itself) even

though we who deal with illness whether one such as fibro or multiple

illnesses try to keep a sense of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls

let us know so that we can do our best to offer our support.

Have a nice day everyone.

May 5, 2008

The only thing that's worked for me is to hold the back of the neck with and

grab onto

something with the other, (You'll need to because it's going to hurt) and slowly

turn your

head from one side to the other and massage the back of the neck. Then lay on

the bed,

couch, or some other surface that will support your head and take the load off

your neck.

May 5, 2008

Joe,

I'm glad that you found your way to the group. We can all relate to you in

one way or another. Fibro is one of the worst chronic pain diseases that I

know of, especially because of the stigmas that others put on us. Like you,

mine started many years ago with what I called " phantom pains " that would

hit me out of the blue, double me over and make my knees weak from the pain.

The best advice I can give you is stay warm, don't let anyone convince you

that you are " faking it for attention " and stand up for your rights. I went

too long thinking I was nuts and being stoic. I have paid dearly for that.

Pace yourself. Set a goal that is attainable each day and don't sweat the

small stuff.

Find something that will help take your mind off of pain. It can be a good

book, playing a video game, whatever works for you.

Hang in there

~~~~~

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Newbie, New Diagnosis and questions

Greets!

I am a 42 year old guy who started having mystery pains in the right forearm

about 4 months ago before they went everywhere about a month ago. My

rheumatologist says that after boatloads of tests, I have fibro starting up.

I have to go through a couple more months for the insurance companies for

the official diagnosis so right now we are going with myofagial (sp?) pain

and some other non-specific thing, but I am in my first flare with a lot of

emotion, pain and confusion.

I am sure everyone here is familiar with the horror stories about being

doubled over and paralyzed in pain for 5 minutes because it feels like your

arm is splitting because a cold wind caught it in front of your children, or

waking up with you ribs and arms hurting like nuts for no reason, the first

time experiencing your body being unable to do the things you like to do

best intermittently, like play guitar because the fingers are locking and

painful or the forearm is killing, or the body strength is tapped, docs

scrambling trying to figure out how to control the pain and try to make

things somewhat " normal. " I'm left with questions like " What is happening

to me? What is going to happen to me? When will this flare end? And why

won't this pinch in my neck go away when the rest of the pain subsides

during the day?

I am trying to go through all of this pretty gracefully and with as much

hope as I can, but sometimes I get so angry about it. I don't blame anyone

or anything, but the " why this have to happen " question is obviously on my

mind. Knowing friends who have had it for a long time and are pretty

debilitated is quite scary.

I'm trying to educate myself, but right now I am just trying to hang on and

ride this thing out. I am moving form OH to FL this year to get myself out

of the cold (the cold wrecks me), and I know I have to change my lifestyle,

but what do I do, physically and psychologically to make this easier on

myself to accept and to cope with?

Thanks for listening. I figure this would be THE place where people would

understand, because most of my family does not, other than my sons.

Deep breath,

~Joe

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