Re: Hello, I'm new.....

[Guest guest]

Welcome Dena!

Nice to meet you. It sounds like you have had your share of health

problems over the past few years. I am a 38 year old married mom of

1. My daughter is eleven. We live in Pennsylvania. Within in the

past two years, I was diagnosed with diverticulosis and

fibromyalgia. I didn't know it at the time, but I had both symptoms

for some time. I went to my regular doctor for my fibro symptoms.

After running many tests (as I'm sure you know! lol...), they still

didn't know what was wrong with me, so she referred me to a

rheumatologist, who also ran ALOT of tests and tried me on many

medicines, finally diagnosed with fibromyalgia in December of '07.

My rheumatologist placed me on Lyrica and I also had trouble getting

my insurance to cover it. My doctor had to send in papers declaring

that it was medically necessary, etc...

This group has been a godsend to me, giving me alot of info. I

think you will love it here. I too, purchased several books on this

disease and they've helped me as well.

Once again, welcome and I hope you have a blessed Mother's Day!

Gentle Hugs,

Kristi

>

> Hi to everyone! I am new to ALL of this so I apologize in advance

> for this lengthy introduction, but I have NOBODY to discuss this

> with that would understand. My name is Dena and I am a 36 year old

> married mom of 3 (12, 10, 8). We live in Ohio. I was always a

> thin, energetic, on-the-go person. During my pregnancies, I had

> Graves disease (overactive thyroid) and it seems everything went

> downhill from there. For the last 10 years, I've had a myriad of

> sympotoms including kidney stones/flank pain, irregular/rapid

> heartbeat with chest pain, mono and 5th disease in the same year,

> IBS (I've had since age 16), ear stuffiness/pain/ringing, popping

> jaw, frequent sore throats, very frequent headaches, facial pain,

> muscle twitches/spasms/vibrations, interior knee pain on both

sides,

> irritability/mood swings/loss of patience, stiff upper

> back/neck/shoulders (I'm constantly cracking everything to loosen

it

> up), extreme fatigue, waking mutliple times at night (although I

> have NO trouble actually falling asleep), and right now I'm having

> severe left hip/leg pain, and I'm hyper-sensitive to touch (if

> someone pokes me, it feels like they hit me with a hammer). I've

> gained 40 pounds over the last 8 years (20 in the last 2). I've

had

> every test you can imagine (x-rays, ultrasounds, echocardiagrams,

> blood work, etc.....) and everything is always " normal " . FINALLY,

> my doctor just announced that I most definitely have fibro after my

> latest round of complete blood workup. Everything was normal

except

> my ANA was ever-so-slightly elevated. For now he started me on

> 30mg/day of Cymbalta however I can't take it yet because my

> insurance company is giving me fits about authorizing it (Medical

> Mutual). My doctor did not refer me to a rheumatologist but I'm

> wondering if I should consider that. I have no idea what to do or

> where to go from here. I'm going to order a book from Amazon and I

> joined this group to hopefully get more help here than from the

> doctor. So that's me in a nutshell. Thank you for letting me join

> your group and again, sorry for such a long introduction!

>

[Guest guest]

Dena,

I would like to say WELCOME to the group. No need to apologize for a

lengthy introduction, we have all done it...:-) I am also new to

Fibromyalgia and also got a book off the net about it and I have

learned a lot from it and from this group. If you ever have a

problem this is the place to come to, everyone here is absolutely

wonderful. I have been having a bad time for the past week and this

is where I come to talk about it. We all look forward to getting to

know you a little better.

Also there is a post about myspace and if you have Yahoo! Messenger

we are all adding each other to our sites so join on in with us all.

Take care and nice to meet you,

>

> Hi to everyone! I am new to ALL of this so I apologize in advance

> for this lengthy introduction, but I have NOBODY to discuss this

> with that would understand. My name is Dena and I am a 36 year old

> married mom of 3 (12, 10, 8). We live in Ohio. I was always a

> thin, energetic, on-the-go person. During my pregnancies, I had

> Graves disease (overactive thyroid) and it seems everything went

> downhill from there. For the last 10 years, I've had a myriad of

> sympotoms including kidney stones/flank pain, irregular/rapid

> heartbeat with chest pain, mono and 5th disease in the same year,

> IBS (I've had since age 16), ear stuffiness/pain/ringing, popping

> jaw, frequent sore throats, very frequent headaches, facial pain,

> muscle twitches/spasms/vibrations, interior knee pain on both

sides,

> irritability/mood swings/loss of patience, stiff upper

> back/neck/shoulders (I'm constantly cracking everything to loosen

it

> up), extreme fatigue, waking mutliple times at night (although I

> have NO trouble actually falling asleep), and right now I'm having

> severe left hip/leg pain, and I'm hyper-sensitive to touch (if

> someone pokes me, it feels like they hit me with a hammer). I've

> gained 40 pounds over the last 8 years (20 in the last 2). I've

had

> every test you can imagine (x-rays, ultrasounds, echocardiagrams,

> blood work, etc.....) and everything is always " normal " . FINALLY,

> my doctor just announced that I most definitely have fibro after my

> latest round of complete blood workup. Everything was normal

except

> my ANA was ever-so-slightly elevated. For now he started me on

> 30mg/day of Cymbalta however I can't take it yet because my

> insurance company is giving me fits about authorizing it (Medical

> Mutual). My doctor did not refer me to a rheumatologist but I'm

> wondering if I should consider that. I have no idea what to do or

> where to go from here. I'm going to order a book from Amazon and I

> joined this group to hopefully get more help here than from the

> doctor. So that's me in a nutshell. Thank you for letting me join

> your group and again, sorry for such a long introduction!

>

[Guest guest]

hey guys sorry to have been not so posty lately but have been in a flare with

both fibro and crohns.

 what is the myspace addy so i can add mine?

Diane in GA

 Diane http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/47.gif " >

Re: Hello, I'm new.....

Dena,

I would like to say WELCOME to the group.  No need to apologize for a

lengthy introduction, we have all done it...:-)  I am also new to

Fibromyalgia and also got a book off the net about it and I have

learned a lot from it and from this group.  If you ever have a

problem this is the place to come to, everyone here is absolutely

wonderful.  I have been having a bad time for the past week and this

is where I come to talk about it.  We all look forward to getting to

know you a little better.

Also there is a post about myspace and if you have Yahoo! Messenger

we are all adding each other to our sites so join on in with us all.

Take care and nice to meet you,

>

> Hi to everyone!  I am new to ALL of this so I apologize in advance

> for this lengthy introduction, but I have NOBODY to discuss this

> with that would understand.  My name is Dena and I am a 36 year old

> married mom of 3 (12, 10, 8).  We live in Ohio.  I was always a

> thin, energetic, on-the-go person.  During my pregnancies, I had

> Graves disease (overactive thyroid) and it seems everything went

> downhill from there.  For the last 10 years, I've had a myriad of

> sympotoms including kidney stones/flank pain, irregular/rapid

> heartbeat with chest pain, mono and 5th disease in the same year,

> IBS (I've had since age 16), ear stuffiness/pain/ringing, popping

> jaw, frequent sore throats, very frequent headaches, facial pain,

> muscle twitches/spasms/vibrations, interior knee pain on both

sides,

> irritability/mood swings/loss of patience, stiff upper

> back/neck/shoulders (I'm constantly cracking everything to loosen

it

> up), extreme fatigue, waking mutliple times at night (although I

> have NO trouble actually falling asleep), and right now I'm having

> severe left hip/leg pain, and I'm hyper-sensitive to touch (if

> someone pokes me, it feels like they hit me with a hammer).  I've

> gained 40 pounds over the last 8 years (20 in the last 2).  I've

had

> every test you can imagine (x-rays, ultrasounds, echocardiagrams,

> blood work, etc.....) and everything is always " normal " .  FINALLY,

> my doctor just announced that I most definitely have fibro after my

> latest round of complete blood workup.  Everything was normal

except

> my ANA was ever-so-slightly elevated.  For now he started me on

> 30mg/day of Cymbalta however I can't take it yet because my

> insurance company is giving me fits about authorizing it (Medical

> Mutual).  My doctor did not refer me to a rheumatologist but I'm

> wondering if I should consider that.  I have no idea what to do or

> where to go from here.  I'm going to order a book from Amazon and I

> joined this group to hopefully get more help here than from the

> doctor.  So that's me in a nutshell.  Thank you for letting me join

> your group and again, sorry for such a long introduction!

>

------------------------------------

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr. 

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help.  It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way.  And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

>

> Hi to everyone! I am new to ALL of this so I apologize in advance

> for this lengthy introduction, but I have NOBODY to discuss this

> with that would understand. My name is Dena and I am a 36 year old

> married mom of 3 (12, 10, 8). We live in Ohio. I was always a

> thin, energetic, on-the-go person. During my pregnancies, I had

> Graves disease (overactive thyroid) and it seems everything went

> downhill from there. For the last 10 years, I've had a myriad of

> sympotoms including kidney stones/flank pain, irregular/rapid

> heartbeat with chest pain, mono and 5th disease in the same year,

> IBS (I've had since age 16), ear stuffiness/pain/ringing, popping

> jaw, frequent sore throats, very frequent headaches, facial pain,

> muscle twitches/spasms/vibrations, interior knee pain on both sides,

> irritability/mood swings/loss of patience, stiff upper

> back/neck/shoulders (I'm constantly cracking everything to loosen it

> up), extreme fatigue, waking mutliple times at night (although I

> have NO trouble actually falling asleep), and right now I'm having

> severe left hip/leg pain, and I'm hyper-sensitive to touch (if

> someone pokes me, it feels like they hit me with a hammer). I've

> gained 40 pounds over the last 8 years (20 in the last 2). I've had

> every test you can imagine (x-rays, ultrasounds, echocardiagrams,

> blood work, etc.....) and everything is always " normal " . FINALLY,

> my doctor just announced that I most definitely have fibro after my

> latest round of complete blood workup. Everything was normal except

> my ANA was ever-so-slightly elevated. For now he started me on

> 30mg/day of Cymbalta however I can't take it yet because my

> insurance company is giving me fits about authorizing it (Medical

> Mutual). My doctor did not refer me to a rheumatologist but I'm

> wondering if I should consider that. I have no idea what to do or

> where to go from here. I'm going to order a book from Amazon and I

> joined this group to hopefully get more help here than from the

> doctor. So that's me in a nutshell. Thank you for letting me join

> your group and again, sorry for such a long introduction!

>

Welcome to the group dena this is a wonderful group to be in for

support as we are all going through the same thing!!!!! Leanne

[Guest guest]

Welcome to the group that understands fibromyalgia.  It is our home because it

is the only place most of us can come to talk about this with others who

understand.

You need to find a doctor who is willing to prescribe more than an

antidepressant for fibromyalgia.  (although, I have heard that Cymbalta helps

some people with the pain of fibro).  BUT,  most of us require pain meds, muscle

relaxers, tranquilizers at times and some other meds depending on the symptoms. 

Lyrica would have been a good start for him to prescribe.  I know it is

expensive and your insurance might give you fits about it before they approve

it.  Lyrica has helped me some... but it is not a cure by any stretch of the

imagination.  It just seems I do not have to take quite as many pain pills most

days and have more energy than I did before I started it.  I can actually do

things on my off days from work that I NEVER could have done before I started

it.

My advice, find another doctor.

Or, see if he will work with you to get you on some meds that help.

hugs,

Debra V. (East TX)

Subject: Hello, I'm new.....

To: Fibromyalgia_Support_Group

Date: Friday, May 9, 2008, 9:55 AM

Hi to everyone! I am new to ALL of this so I apologize in advance

for this lengthy introduction, but I have NOBODY to discuss this

with that would understand. My name is Dena and I am a 36 year old

married mom of 3 (12, 10, 8). We live in Ohio. I was always a

thin, energetic, on-the-go person. During my pregnancies, I had

Graves disease (overactive thyroid) and it seems everything went

downhill from there. For the last 10 years, I've had a myriad of

sympotoms including kidney stones/flank pain, irregular/rapid

heartbeat with chest pain, mono and 5th disease in the same year,

IBS (I've had since age 16), ear stuffiness/pain/ ringing, popping

jaw, frequent sore throats, very frequent headaches, facial pain,

muscle twitches/spasms/ vibrations, interior knee pain on both sides,

irritability/ mood swings/loss of patience, stiff upper

back/neck/shoulders (I'm constantly cracking everything to loosen it

up), extreme fatigue, waking mutliple times at night (although I

have NO trouble actually falling asleep), and right now I'm having

severe left hip/leg pain, and I'm hyper-sensitive to touch (if

someone pokes me, it feels like they hit me with a hammer). I've

gained 40 pounds over the last 8 years (20 in the last 2). I've had

every test you can imagine (x-rays, ultrasounds, echocardiagrams,

blood work, etc.....) and everything is always " normal " . FINALLY,

my doctor just announced that I most definitely have fibro after my

latest round of complete blood workup. Everything was normal except

my ANA was ever-so-slightly elevated. For now he started me on

30mg/day of Cymbalta however I can't take it yet because my

insurance company is giving me fits about authorizing it (Medical

Mutual). My doctor did not refer me to a rheumatologist but I'm

wondering if I should consider that. I have no idea what to do or

where to go from here. I'm going to order a book from Amazon and I

joined this group to hopefully get more help here than from the

doctor. So that's me in a nutshell. Thank you for letting me join

your group and again, sorry for such a long introduction!

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Hi Dena- Welcome to the FaMily. You're in the right place. We all know what

you are going through. A rheumatologist is only necessary if you feel you

aren't getting proper care from your doctor. My insurance requires extra info.

for practically every expensive name brand med these days. I hope the Cymbalta

is approved and that it helps you. I take 60 mg. twice a day, but the norm is

60 mg. a day for adults.

Once you get on the Cymbalta if you don't feel it helps enough, then you can

ask for muscle relaxers, pain meds, and possibly Lyrica. If your doc is willing

to prescribe, then you're in good shape doc-wise. I hope this helps some.

Please write and ask questions whenever you need to. That's what we are

here for.

Jeanne in WI

Hi to everyone! I am new to ALL of this so I apologize in advance for this

lengthy introduction, but I have NOBODY to discuss this with that would

understand. My name is Dena and I am a 36 year old

married mom of 3 (12, 10, 8). We live in Ohio. I was always a thin,

energetic, on-the-go person. During my pregnancies, I had Graves disease

(overactive thyroid) and it seems everything went downhill from there. For the

last 10 years, I've had a myriad of sympotoms including kidney stones/flank

pain, irregular/rapid

heartbeat with chest pain, mono and 5th disease in the same year, IBS (I've

had since age 16), ear stuffiness/pain/ringing, popping jaw, frequent sore

throats, very frequent headaches, facial pain,

muscle twitches/spasms/vibrations, interior knee pain on both sides,

irritability/mood swings/loss of patience, stiff upper back/neck/shoulders (I'm

constantly cracking everything to loosen it up), extreme fatigue, waking

mutliple times at night (although I have NO trouble actually falling asleep),

and right now I'm having

severe left hip/leg pain, and I'm hyper-sensitive to touch (if someone pokes

me, it feels like they hit me with a hammer). I've gained 40 pounds over the

last 8 years (20 in the last 2). I've had every test you can imagine (x-rays,

ultrasounds, echocardiagrams, blood work, etc.....) and everything is always

" normal " . FINALLY,

my doctor just announced that I most definitely have fibro after my latest

round of complete blood workup. Everything was normal except my ANA was

ever-so-slightly elevated. For now he started me on

30mg/day of Cymbalta however I can't take it yet because my insurance company

is giving me fits about authorizing it (Medical Mutual). My doctor did not

refer me to a rheumatologist but I'm wondering if I should consider that. I

have no idea what to do or

where to go from here. I'm going to order a book from Amazon and I joined

this group to hopefully get more help here than from the doctor. So that's me

in a nutshell. Thank you for letting me join your group and again, sorry for

such a long introduction!