Re: I WONT SHUT UP........

[Guest guest]

Debra,

I have been thinking about what I can do for our cause, I don't know

much about Fibromyalgia but I have been reading up on it and going

through all the " fun " stuff for 2 1/2 years now. I am thinking about

contacting a Christian station in northern Indiana about it and I

also have a few other places that I can contact. I also know someone

that works at our local newspaper, used to babysit for him, and I

have thought about talking to him about it. One of my business

partners has asked me if I would do a conference call on Fibromyalgia

for our business and I have been considering doing that. I want to

help get the word out about this disease because I know how many

times I got " the look " from doctor's or the attitude from doctor's

and I don't want anyone else to go through that. I will let you know

what I find out.

Take care,

>

> Just to say that I am feeling like crap. I felt good this morning

and now that it is time for work, the change is here. I don't

understand this disease how it can change from one hour to the next.

Oh well, will be off this weekend.

> Anyway, I am going to try to write at least 3 or 4 more letters to

medias. I WILL NOT SHUT UP. I will go with my local KTRE news

channel here. Also the Lufkin Daily News. Also will write CNN again

to a different CNN address. If we all keep this attitude, someone

will start listening to us. The WORLD needs to KNOW that we are not

a bunch of lazy hypochondriacs that just want to lie to get drugs.

Seems that is the opinion of alot of people. But with time and more

and more speaking out from us.... it might make a difference.

>

> love and hugs,

> off to work...... (sick of course),

> Debra V.

>

>

>

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[Guest guest]

Hi Debra - I'm thrilled you are such a champion for our cause. As far as not

feeling well when it's time to go to work, I know for me, I can stress myself

out before an event (dr's appt., family gathering, etc.), and I will feel awful

because of it. Do you think that dreading having to go into work makes you

sicker? I don't know what can help that, except to maybe repeat some

affirmations to yourself over and over. You know, something like, " I am strong

enough to go to work and do my job well in spite of my pain. " Take care.

Jeanne in WI

Just to say that I am feeling like crap. I felt good this morning and now

that it is time for work, the change is here. I don't understand this disease

how it can change from one hour to the next. Oh well, will be off this weekend.

Anyway, I am going to try to write at least 3 or 4 more letters to medias. I

WILL NOT SHUT UP. I will go with my local KTRE news channel here. Also the

Lufkin Daily News. Also will write CNN again to a different CNN address. If we

all keep this attitude, someone will start listening to us. The WORLD needs to

KNOW that we are not a bunch of lazy hypochondriacs that just want to lie to get

drugs. Seems that is the opinion of alot of people. But with time and more and

more speaking out from us.... it might make a difference.

love and hugs,

off to work...... (sick of course),

Debra V.

[Guest guest]

I think we do stress over going somewhere! Whether to work, friends or whatever.

Like today, we are going to my in-laws for dinner for our Mother's Day. I woke

up this morning kinda feeling good, but with the regular aches and pains and now

I feel like I am just stressed and hurt all over more than normal. I actually

feel that I have a flare coming again! If so that will be 3 for me since last

Saturday!!! OUCH!!!  I love going to my in-laws but there is just something

about having to go anywhere. I too stress over going to the doctors appts and

usually can't sleep the night before. I try to let it go but it just isn't that

easy. Today, I ache, my right leg is killing me, my head hurts, I feel as if my

bones ache. It's just strange! But I am going tonight come hell or high water!!!

I am not going to let this stop me from visiting and at least try to have a good

time. People don't understand exactly what WE go through each and everyday.

Have a great weekend and Happy Mother's Day

Debra B

Re: I WONT SHUT UP........

Hi Debra - I'm thrilled you are such a champion for our cause. As far as not

feeling well when it's time to go to work, I know for me, I can stress myself

out before an event (dr's appt., family gathering, etc.), and I will feel awful

because of it. Do you think that dreading having to go into work makes you

sicker? I don't know what can help that, except to maybe repeat some

affirmations to yourself over and over. You know, something like, " I am strong

enough to go to work and do my job well in spite of my pain. " Take care.

Jeanne in WI

Just to say that I am feeling like crap. I felt good this morning and now that

it is time for work, the change is here. I don't understand this disease how it

can change from one hour to the next. Oh well, will be off this weekend.

Anyway, I am going to try to write at least 3 or 4 more letters to medias. I

WILL NOT SHUT UP. I will go with my local KTRE news channel here. Also the

Lufkin Daily News. Also will write CNN again to a different CNN address. If we

all keep this attitude, someone will start listening to us. The WORLD needs to

KNOW that we are not a bunch of lazy hypochondriacs that just want to lie to get

drugs. Seems that is the opinion of alot of people. But with time and more and

more speaking out from us.... it might make a difference.

love and hugs,

off to work...... (sick of course),

Debra V.