Re: I WONT SHUT UP..Jeanne

May 10, 2008

Jeanne, thanks for the uplift. You are so wonderful. I never really dread the

place I am going to but dread the way I will feel all day sometimes. It seems I

have this " friend " at work who does not believe me and I don't think she is a

" friend " anymore. Can I ask you a question... this may sound stupid.... but do

you think sometimes that people are actaully jealous that we have this damn

curse of a disease because they can't get prescription mediations we

can???????????????????? I believe that plays a role in some peoples animosity

toward us. So, instead of believing that we live in hell most of our lives,

they would rather believe we are full of crap.

Well. love and hugs,

Will look up some more sites to send letter to today about US. Not about just

me but about US because I feel the need to get the word out.

Debra V.

Subject: Re: I WONT SHUT UP........

Date: Saturday, May 10, 2008, 9:16 AM

Hi Debra - I'm thrilled you are such a champion for our cause. As far as not

feeling well when it's time to go to work, I know for me, I can stress myself

out before an event (dr's appt., family gathering, etc.), and I will feel awful

because of it. Do you think that dreading having to go into work makes you

sicker? I don't know what can help that, except to maybe repeat some

affirmations to yourself over and over. You know, something like, " I am strong

enough to go to work and do my job well in spite of my pain. " Take care.

Jeanne in WI

Just to say that I am feeling like crap. I felt good this morning and now that

it is time for work, the change is here. I don't understand this disease how it

can change from one hour to the next. Oh well, will be off this weekend.

Anyway, I am going to try to write at least 3 or 4 more letters to medias. I

WILL NOT SHUT UP. I will go with my local KTRE news channel here. Also the

Lufkin Daily News. Also will write CNN again to a different CNN address. If we

all keep this attitude, someone will start listening to us. The WORLD needs to

KNOW that we are not a bunch of lazy hypochondriacs that just want to lie to get

drugs. Seems that is the opinion of alot of people. But with time and more and

more speaking out from us.... it might make a difference.

love and hugs,

off to work...... (sick of course),

Debra V.

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