Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 I have severe sleep apnea and sleep with a c-pap and oxygen too. If I sleep well my fibro symptoms seem to lessen sometimes - and sometimes not. But I know without restorative sleep I am miserable for sure. Gentle hugs, Marla In a message dated 5/10/2008 5:20:24 P.M. Central Daylight Time, lgrijalva1@... writes: Hello all!!! I hope this day is bringing you great things. I have just been to the initial consultation with a sleep doctor and I am having a sleep study done this Monday. The paperwork I filled out asked if I have fibro and I thought that was wierd. The doc said that if I have sleep apnea and I start using a cpap the fibro would lessen. I am a little excited about this aspect, but i wonder if anyone else in the group has sleep apnea and experienced relief from their pain from CPAP machine... It just seems to good to be true. I'm pretty sure I have sleep apnea. Loretta **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 Loretta, I have both, but have not been using my cpap for quite a few years, but have been thinking about pulling it out again. So I will be interested to see if it helps. I think how it would help would be by getting a good nights sleep your body will have a chance to repair itself, which could help reduce the pain levels. Good luck Christi Randall www.singingwomenoftexas.com Sleep apnea and fibro Hello all!!! I hope this day is bringing you great things. I have just been to the initial consultation with a sleep doctor and I am having a sleep study done this Monday. The paperwork I filled out asked if I have fibro and I thought that was wierd. The doc said that if I have sleep apnea and I start using a cpap the fibro would lessen. I am a little excited about this aspect, but i wonder if anyone else in the group has sleep apnea and experienced relief from their pain from CPAP machine... It just seems to good to be true. I'm pretty sure I have sleep apnea. Loretta ------------------------------------ 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 Hi Loretta, I have sleep apnea and way back when I was dx there weren't many face masks to choose from or types of machines. There wasn't a face mask that was small enough to fit my features without letting air escape, which of course negates the use of it. For some reason I guess my eyes and nose are really close together. Weird, huh? Anyway now they have the full face masks and bi pap machines and ones that hydrate in addition to the forced air and ones that you can regulate how forceful you want the air so I'm sure you will find one that will do a great job. If you have it that is of course. I never have gone back to try out the new stuff, but have it on my to do list before I lose my insurance. There's lots on that to do list. I have been told by people who have fibromyalgia and sleep apnea that using the machine did lessen their symptoms. I'm sure with sleep deprivation gone you would have a much better power of concentration and not so much brain fog, in addition to lessening the other symptoms. I really need to give it a try because I think the fog affects my daily life more than anything else. If I could think and focus I could do a lot more stuff. Good luck on your test Monday. I'm surprised that a doctor would see you on a Saturday. Wow! Marti punkrockmom74 lgrijalva1@...> wrote: Hello all!!! I hope this day is bringing you great things. I have just been to the initial consultation with a sleep doctor and I am having a sleep study done this Monday. The paperwork I filled out asked if I have fibro and I thought that was wierd. The doc said that if I have sleep apnea and I start using a cpap the fibro would lessen. I am a little excited about this aspect, but i wonder if anyone else in the group has sleep apnea and experienced relief from their pain from CPAP machine... It just seems to good to be true. I'm pretty sure I have sleep apnea. Loretta --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 Hi Loretta, I started useing the Cpap a few weeks ago and yes I do think there is a bit of a difference. I want to say there is a lot of a difference but in order to prove that it's the new sleep pattern I'd have to stop some meds. I'm just not ready to do that yet. It hurt too much to even do a trial. However, I have noticed that I don't jerk as much in the legs and I don't have those little twitches that made my arms and hands feel like bugs were walking on me. The sleep doc had said that I was only getting stage 1 and 2 out of the 5 stages of sleep. In one of the stages your body does a total relaxing thing. He said even if I were to wake up during this stage I wouldn't be able to move. It's a stage our bodies really need to get keep healthy. He figures I haven't been able to reach it in a long time. So this has really been a treat sleeping all night. It has taken a long while to adjust to the mask and stuff. A couple of us are still feeling a little sufficated (SP)once in a while. I mean well when I say, I hope you have sleep apnea and that a cpap will help you too. Jan > > Hello all!!! > > I hope this day is bringing you great things. I have just been to the > initial consultation with a sleep doctor and I am having a sleep study > done this Monday. The paperwork I filled out asked if I have fibro > and I thought that was wierd. The doc said that if I have sleep apnea > and I start using a cpap the fibro would lessen. I am a little > excited about this aspect, but i wonder if anyone else in the group > has sleep apnea and experienced relief from their pain from CPAP > machine... It just seems to good to be true. I'm pretty sure I have > sleep apnea. > > Loretta > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 > > I have severe sleep apnea and sleep with a c-pap and oxygen too. I've been geting very suspicious that I may have some form of sleep apnea. Within the last 6 months I've had two episodes of what I can only describe as " dreaming about choking " and being snapped awake with an odd sensation in the back of my throat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 Hi Loretta - Our ability to feel better from sleep will only happen if we get into stage 3 and 4 sleep. I don't know if using the CPAP will help you to do that or not. Nevertheless, the CPAP is necessary for you not to die in your sleep and to get enough oxygen while you sleep. Time will tell if it helps your pain. Good luck. Jeanne in WI Hello all!!! I hope this day is bringing you great things. I have just been to the initial consultation with a sleep doctor and I am having a sleep study done this Monday. The paperwork I filled out asked if I have fibro and I thought that was wierd. The doc said that if I have sleep apnea and I start using a cpap the fibro would lessen. I am a little excited about this aspect, but i wonder if anyone else in the group has sleep apnea and experienced relief from their pain from CPAP machine... It just seems to good to be true. I'm pretty sure I have sleep apnea. Loretta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 Hi Christi, I think i have had it since my jaw was hurt in a fight with my dad when I was 16. I am hoping that things will improve-- if only my fatigue and high blood pressure improves I will be very happy! Thanks for the explanation on how it could help fibro, the doc didnt really explain it. I go in tomorrow to the sleep study. Thank you for the good luck! Loretta > > Loretta, > I have both, but have not been using my cpap for quite a few years, but have been thinking about pulling it out again. So I will be interested to see if it helps. I think how it would help would be by getting a good nights sleep your body will have a chance to repair itself, which could help reduce the pain levels. Good luck > > Christi Randall > www.singingwomenoftexas.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 Hi Marti! I am wondering, when they told you that you had sleep apnea was it recently or like a while ago, and did they ask you about possibly doing a tracheotomy? I am reading a book on it and the history on it says they used to do trachs before the masks were invented. I'm thinking-WOAH... that sounds really painful! Yes you should go in and get a new set up. The one I saw in the office was called the Mirage and it was made clear, to be almost invisible. It looked neat. I know what you mean about medical to do lists. I've been thinking about a sleep study for a while, years have gone by and there's so many specialists to see that I have to pick and choose. But now my blood pressure is in stage one hypertension, so I figured it is time. After this its on to the GI doc for a colonoscopy, FUN!!! It's funny you mention the fog, I was just dxed with ADHD, and started on Vyvance. My sleep doc said I might not need Vyvance if I get the mask. The doc saw me late afternoon on Friday, sorry I should have been more clear, my fog is real bad!!! Gentle hugs, Loretta > > Hi Loretta, > > I have sleep apnea and way back when I was dx there weren't many face masks to choose from or types of machines. There wasn't a face mask that was small enough to fit my features without letting air escape, which of course negates the use of it. For some reason I guess my eyes and nose are really close together. Weird, huh? Anyway now they have the full face masks and bi pap machines and ones that hydrate in addition to the forced air and ones that you can regulate how forceful you want the air so I'm sure you will find one that will do a great job. If you have it that is of course. > > I never have gone back to try out the new stuff, but have it on my to do list before I lose my insurance. There's lots on that to do list. > > I have been told by people who have fibromyalgia and sleep apnea that using the machine did lessen their symptoms. I'm sure with sleep deprivation gone you would have a much better power of concentration and not so much brain fog, in addition to lessening the other symptoms. I really need to give it a try because I think the fog affects my daily life more than anything else. If I could think and focus I could do a lot more stuff. > > Good luck on your test Monday. I'm surprised that a doctor would see you on a Saturday. Wow! > > Marti > > > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 Hi Jan! Thanks for your reply! I find it interesting that you mention the bugs, that happens to me, its wierd. SO that would go away with CPAP? Which meds do you have to stop, may I ask? I am excited at the thought that it could be apnea and a cpap could help my extreme fatigue! im so very tired, and trying to homeschool my son at the same time... > > Hi Loretta, > I started useing the Cpap a few weeks ago and yes I do think > there is a bit of a difference. I want to say there is a lot of a > difference but in order to prove that it's the new sleep pattern I'd > have to stop some meds. I'm just not ready to do that yet. It hurt too > much to even do a trial. However, I have noticed that I don't jerk as > much in the legs and I don't have those little twitches that made my > arms and hands feel like bugs were walking on me. > The sleep doc had said that I was only getting stage 1 and 2 out of the > 5 stages of sleep. In one of the stages your body does a total relaxing > thing. He said even if I were to wake up during this stage I wouldn't > be able to move. It's a stage our bodies really need to get keep > healthy. He figures I haven't been able to reach it in a long time. So > this has really been a treat sleeping all night. It has taken a long > while to adjust to the mask and stuff. A couple of us are still feeling > a little sufficated (SP)once in a while. > > I mean well when I say, I hope you have sleep apnea and that a cpap > will help you too. > Jan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 Hi Marla! I guess the common concensus is that treating sleep apnea lessens the pain but does not fully cure it. I hope I can get this treated b/c I am miserable, have been for years, mostly the fatigue. thanks, Loretta > > I have severe sleep apnea and sleep with a c-pap and oxygen too. If I sleep > well my fibro symptoms seem to lessen sometimes - and sometimes not. But I > know without restorative sleep I am miserable for sure. > > Gentle hugs, > Marla > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 Hey ? do you snore? do you wake up with a headache? do you fall asleep during the day too easily? have you been told by the GI doc you have GERD? you might have it. It wouldnt hurt to get a referral to a sleep center. You should check it out. Loretta > > > > I have severe sleep apnea and sleep with a c-pap and oxygen too. > > I've been geting very suspicious that I may have some form of sleep > apnea. > > Within the last 6 months I've had two episodes of what I can only > describe as " dreaming about choking " and being snapped awake with an > odd sensation in the back of my throat. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 Hey Jeanne, Thanks for the reply! I wonder if a combination of the cpap and my new sleep med could get me some restorative sleep? I am taking sonata. I havent had stage 3 or 4 sleep I feel in some time. i hardly ever dream. Is that a sign of this? you always have good info! Hope things are going alright on your end. gentle hugs, Loretta > > Hi Loretta - Our ability to feel better from sleep will only happen if we get into stage 3 and 4 sleep. I don't know if using the CPAP will help you to do that or not. Nevertheless, the CPAP is necessary for you not to die in your sleep and to get enough oxygen while you sleep. Time will tell if it helps your pain. Good luck. > Jeanne in WI > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 Hi Loretta, So far the buggy feeling is gone. I kept thinking a fly or somethig was walking on my shin or hands. It drove me nuts. I take Tramadol and baclofin. I take the tramadol more often than the 4 to 6 hours. Sometimes I take 2. Sometimes I can go a little longer. I take the baclofin mostly just at night. I usually pop 2 of those. Depending on the day. I pop advil some times too. I feel swollen or something and it seems to help. It's usually my chest and arms that hurt the most. Especially if I lay down. I have a new thing now. I'm not sure what its from. Maybe a pinched nerve. My left side on my shoulder blade is numb. It feels like the skin is a sleep. Also when I walk a lot, which I'm trying to do more of, my left leg on the outside of my thigh is the same way. Only I get a hot cold feeling with it. It almost feels like I spilled something on my leg. But the numb feeling goes all the way down to my toes on the outside left. It's nothing that hurts or really bugs me. It just is. Sometimes I have to feel my thigh to see if there is something there. Hope things work for you too. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Hmmmm. My DH just got diagnosed with GERD. He's having a physical next month. I think I will urge him again to ask about a sleep study. Jeanne in WI Hey ? do you snore? do you wake up with a headache? do you fall asleep during the day too easily? have you been told by the GI doc you have GERD? you might have it. It wouldnt hurt to get a referral to a sleep center. You should check it out. Loretta Quote Link to comment Share on other sites More sharing options...
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