Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 Welcome to the group , You are feeling like several of us have, tired of the doc's telling you that " you are fine " , " nothing is wrong " only to find out that there is something wrong. I just recently joined this group myself and let me tell you what, these are some of the most wonderful people I have ever met. They have helped me so much, you won't be upset that you joined this group. Look forward to getting to know you better, > > Hi my name is and I live in the Philly Burbs of Pa. > My reason for joining the group is to be able to talk with others who live > what I live ... and hopefully learn some tips and tricks (When I read that > many of you look like Salonpas patch mummies on the home page of this group, I > KNEW I had found my tribe, lol) and information that will help me find the > right doctors and find some relief. > I have been passed around from doctor to doctor for over 2 years now and my > pain never gets any better, in fact it only gets worse. After a year of > doctors, specialist, PT, more doctors, shots, tests, MRIs etc I threw what could > be called a tantrum in the doctor of the week's office and was FINALLY told > " oh yea you have Fibromyalgia, didn't anyone ever tell you that? " From there > I was sent to yet another doctor to physically examine me and make sure this > latest diagnosis was correct. I could not believe how painful that exam was > and cried through the whole thing. I not only have Fibromyalgia but her > sister ::grin:: Polymyalgia came along as well ... AND because that wasn't > enough fun, I beat all odds and was one of the very rare " young " women (I'm 42) to > have a severe complication of Polymyalgia, temporal arteritis ... which also > brought blinding migraines. > Bottom line, I hurt every single day and my friends and family are wonderful > and they try so hard to understand and make it better for me, but they can't > do either and I desperately need to find people who do understand what I go > through every day to talk to before I go completely insane. > Thank you for letting me join your family ... I am really looking forward to > getting to know all of you. > > ... Living with Fibromyalgia, Polymyalgia, Temporal Arteritis, > Arthritis of the Spine, Miagraines ... My Honey, 4 Boys, 4 Nekid Sphynx Cats, 5 > Chihuahuas, 7 Parrots > > > > **************Wondering what's for Dinner Tonight? Get new twists on family > favorites at AOL Food. > (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 welcome stacey, sorry you had to find us and join. all this stuff we have really does suck, and docs are getting to hardly write scripts for pain meds. i guess i will be heading to a pain mgmt clinic soon. i also have taken in puppymill rescued chihuahuas who remain too fearfull of people and can't be picked up and adopted out by the rescues i got them from. buy my adopting days are over, thanks to these medical problems. take care, marg > > Hi my name is and I live in the Philly Burbs of Pa. > My reason for joining the group is to be able to talk with others who live >forward to > getting to know all of you. > > ... Living with Fibromyalgia, Polymyalgia, Temporal Arteritis, > Arthritis of the Spine, Miagraines ... My Honey, 4 Boys, 4 Nekid Sphynx Cats, 5 > Chihuahuas, 7 Parrots Quote Link to comment Share on other sites More sharing options...
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