Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 I'm so sorry that you didn't get better news. I will continue to pray for your son and your entire family as you make this journey with him. I will pray for the doctors to have the wisdom needed to give him the best care possible. Hang in there--please continue to keep us informed. Cindi in KC Lori dodgeturbo99@...> wrote: Hi Guys, , my sons preliminary Diagnosis is Lymphoma ( not sure what kind) said we should know that by tomorrow. Then we get home exhausted and the oncologist came in after we h.ad left and told him that at they were going to do a bone marrow biopsy on his hipbones today and a test and cat scan of all of his lymph nodes. This was after the hospitalist had told us that they are going to keep doing radiation and may start Chemo . The oncologist is working with the Mayo Clinic in Rochester, MN. The kid looks so healthy and is bored. They were suppose to move him out of intensive care yesterday. To the fifth floor. Do not think that is going to happen yet. wants to come home so bad we are both so angry we just want to know who is actually in charge, the hospitalist or the oncologist. We are told one thing and then told something else. WE are exhausted, I will try and write more later. Its 5:30 am central and need to get ready to go. Lori Hammer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 Lori, I am so sorry you and are going through this. I know how frustrating it is to be told one thing and then another. You may want to ask to speak to the house supervisor or a case worker to voice your concerns and get things worked out before they get way out of control. You should not have to sit there and ride the rollercoaster you are on. You and are in my thoughts and prayers. With all my love, Debra B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 Hi, Lori. Sorry that you and you family and especially your son are going through this. They may not want to move him because he might pick up a bug and he absolutely doesn't need that at this time, what with the bone mattow biopsy, etc. He may be run down enough with all the other stuff that's going on that he may catch something really easily. I sounds like you are both frustrated and worried and need some extra rest. Are you driving a long way to and from the hospital? You know, a lot of hospitals have cheaper rates at local hotels so you could maybe stay closer. That way, you could spend less time driving and more time resting. Just a thought. Good thoughts are being sent your way. Hugs. Take care. J in East Northcentral Minnesota http://sisypheanranch.blogspot.com/ 'Life isn't about how to survive the storm, but how to dance in the rain.' preliminary diagnosis Hi Guys, , my sons preliminary Diagnosis is Lymphoma ( not sure what kind) said we should know that by tomorrow. Then we get home exhausted and the oncologist came in after we h.ad left and told him that at they were going to do a bone marrow biopsy on his hipbones today and a test and cat scan of all of his lymph nodes. This was after the hospitalist had told us that they are going to keep doing radiation and may start Chemo . The oncologist is working with the Mayo Clinic in Rochester, MN. The kid looks so healthy and is bored. They were suppose to move him out of intensive care yesterday. To the fifth floor. Do not think that is going to happen yet. wants to come home so bad we are both so angry we just want to know who is actually in charge, the hospitalist or the oncologist. We are told one thing and then told something else. WE are exhausted, I will try and write more later. Its 5:30 am central and need to get ready to go. Lori Hammer . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 Debra, so sorry your family is going through this! And it must make it even harder when you are getting conflicting reports from people at the hospital!!! You are in my thoughts and prayers. > > Hi Guys, > > , my sons preliminary Diagnosis is Lymphoma ( not sure what kind) said we should know that by tomorrow. Then we get home exhausted and the oncologist came in after we h.ad left and told him that at they were going to do a bone marrow biopsy on his hipbones today and a test and cat scan of all of his lymph nodes. > > This was after the hospitalist had told us that they are going to keep doing radiation and may start Chemo . The oncologist is working with the Mayo Clinic in Rochester, MN. The kid looks so healthy and is bored. They were suppose to move him out of intensive care yesterday. To the fifth floor. Do not think that is going to happen yet. > > wants to come home so bad we are both so angry we just want to know who is actually in charge, the hospitalist or the oncologist. We are told one thing and then told something else. > > WE are exhausted, I will try and write more later. Its 5:30 am central and need to get ready to go. > > Lori Hammer > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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