Re: Hi, I'm New

[Guest guest]

Hi

Wow you discribed some things that I put down to my diabetes.

The burning feet especially. The Doc told me to start wearing shoes

more. I'm in my bare feet all year long as much as possible. I stopped

wearing socks because they made my feet hurt. I swear I can feel every

fiber pushed in to the skin. I've been that way for a long time.

I'm sorry to hear about all the meds your on. But hey if it

works... At least you got yourself up and out. That's a great thing.

I think I'm going to see if my doc will get me some of the

Lyrica stuff. I'm so frustrated right now with this stupid pain. I know

this is a dumb thing to say, and I don't really mean it the way it

sounds but... I almost wish it were cancer or just something that can

be touched. Something that can be yanked out!!!

I'm used to being fast and contrary to my size I'm very active.

This not being able to move thing just makes me want to scream.

Everything is falling apart and all I can do is watch. I'm being left

behind.

I'm sorry I'm just so frustrated right now. I need to cry. But

it makes my chest hurt.

Jan

>

> I have been reading your messages (lurking) for awhile, but by the

> time I'm finished, I'm in too much pain to reply. So, unfortunately,

> I have to delete a lot.

[Guest guest]

Welcome Chris. Nice to have you with us.

Jeanne in WI

I have been reading your messages (lurking) for awhile, but by the time I'm

finished, I'm in too much pain to reply. So, unfortunately, I have to delete a

lot.

I was diagnosed with fibro in 1993, but had first symptoms in 1987. I was

on active duty Navy at the time, and retired with 20 years in 1991. I am so

grateful that my medical care costs me less

than $20 per month, and I found great drs. at the Pain Clinic at Walter

in D.C. This disease, disorder, syndrome, or whatever, is progressive and I am

living proof.

I spent 75% of my time in bed, until I lost 145 lbs. I got out of bed

because I was dying emotionally and spiritually, and I wanted to die. I prayed

for help and got it. I am a recovering alcoholic with over 29 yrs. sober, and

used the 12 steps to lose the weight.

What baffled the doctors, and me, was that I was in more pain after I lost the

weight. I told them it was because I lost the cushion of fat that protected my

muscles and bones. Seriously.

I've been on various meds, some narcotics, but I have a high tolerance and

they quit working in a couple of months, so they switch to something else. I am

now taking 45 mg. morphine, 300 mg. Lyrica,

and 200-300 mg. Tramadol. The Lyrica was just increased from 150, which

worked great for about 2 months. I want to get off the morphine, but if I need

it to function, I'll take it.

No one has mentioned using a TENS unit, maybe because they're so expensive

(another reason I'm glad my medical care is basically free). The unit really

helps me on certain areas, especially my neck and shoulders, sometimes my lower

back and butt. My gluteus muscles are always swollen, inflamed and painful, I

have to sit on an ice pack all the time.

My feet get very hot and burning if the temp is above 60. Anyone else have

this problem?

Also, I can't bend my knees without a lot of pain, so I have to prop my

legs up.

Anyway, poor me will stop whining now and remember to be grateful that this

is not terminal, though there are days I think I wish it was.

I identify with the guilt, frustration, anger, etc. I try to be gentle,

kind, understanding, and loving to myself, even if no one else is.

Take care of yourselves, everyone.

Chris

[Guest guest]

Hi

I can relate. I have had increased pain with the more weight I lose

from My Gastric Bypass. My doctors are actually telling me the same

thing about the less cushion around my nerves and bones. I do use a

TENS unit for my back and my knees. I feel it helps " numb " the area

at least for a little while. I am also trying Aqua Therapy where I

excersize in a heated pool. It helps keep my muscles moving. I am

still working with my doctors on the rght medications and dosages so

I am not sure what advice to give in that area. I hope now that you

have found this group we can lift your spirits.

Saundra

>

> Welcome Chris. Nice to have you with us.

> Jeanne in WI

>

>

> I have been reading your messages (lurking) for awhile, but by

the time I'm finished, I'm in too much pain to reply. So,

unfortunately, I have to delete a lot.

> I was diagnosed with fibro in 1993, but had first symptoms in

1987. I was on active duty Navy at the time, and retired with 20

years in 1991. I am so grateful that my medical care costs me less

> than $20 per month, and I found great drs. at the Pain Clinic at

Walter in D.C. This disease, disorder, syndrome, or whatever, is

progressive and I am living proof.

> I spent 75% of my time in bed, until I lost 145 lbs. I got

out of bed because I was dying emotionally and spiritually, and I

wanted to die. I prayed for help and got it. I am a recovering

alcoholic with over 29 yrs. sober, and used the 12 steps to lose the

weight.

> What baffled the doctors, and me, was that I was in more pain

after I lost the weight. I told them it was because I lost the

cushion of fat that protected my muscles and bones. Seriously.

> I've been on various meds, some narcotics, but I have a high

tolerance and they quit working in a couple of months, so they switch

to something else. I am now taking 45 mg. morphine, 300 mg. Lyrica,

> and 200-300 mg. Tramadol. The Lyrica was just increased from

150, which worked great for about 2 months. I want to get off the

morphine, but if I need it to function, I'll take it.

> No one has mentioned using a TENS unit, maybe because they're

so expensive (another reason I'm glad my medical care is basically

free). The unit really helps me on certain areas, especially my neck

and shoulders, sometimes my lower back and butt. My gluteus muscles

are always swollen, inflamed and painful, I have to sit on an ice

pack all the time.

> My feet get very hot and burning if the temp is above 60.

Anyone else have this problem?

> Also, I can't bend my knees without a lot of pain, so I have

to prop my legs up.

> Anyway, poor me will stop whining now and remember to be

grateful that this is not terminal, though there are days I think I

wish it was.

> I identify with the guilt, frustration, anger, etc. I try to

be gentle, kind, understanding, and loving to myself, even if no one

else is.

> Take care of yourselves, everyone.

>

> Chris

>

>

[Guest guest]

Hi Donna!

Nice to meet you. I think you will really enjoy this group.

Everyone is so nice! I've only belonged for a short time, but I've

learned so much. I look forward to getting to know you.

Take care.

Gentle Hugs,

Kristi

>

> Hi everyone,

>

> I joined the group a few days ago and figured it's time to

introduced

> my self. My name is Donna. I live in Massachusetts. I, like you all

> suffer with Fibro. I also suffer with depression & anxiety (which,

of

> course, is a part of it). I've done some reading on it, but I wanted

> people to relate to about it. Sometimes I feel so alone and that

> people think I'm some kind of hypochondriac. I do have a group of

good

> friends and family who are sympathetic, but they don't really

> understand. I've been reading some of your messages and relate.

> I see a therapist and am on so many pills it's ridiculous! My

> therapist just died from a brief battle with cancer. So now I have

to

> get used to someone new, it's nice to talk to them but even they

don't

> truly understand. So I'm hoping this group will be a kind of therapy

> for me.

>

> I look forward to getting to know all of you!

> Donna

>