Re: Misc reponses

[Guest guest]

Hi - I am so sorry you had a mother who could be that cruel, while you

took care of her?, I don't know if I could of done it. I don't have a close

relationship with my mom, though she would like it, just somethings that I think

could of been dealt with better by her when I was young I can't seem to let go

of, or repair? She will do anything for me though, and has helped alot when she

has health issues herself, she has some other type of disease which is also very

painfull, I always forget what it is, Polymy something. Anyway I wanted to ask

you about the oxcycontin, as I am headed that way, I have held off, because I am

semi afraid of it, I was a med tech, when I worked and I pretty much know all my

med's, so I along with the world because of the street bums selling it at no

worry to themselves as long as they get the big buck, and are killing many a

person including the childeren. But I want to know when you first started does

it snow you on top of taking the

pain away? I am on the vicodin ES right now, have been for yrs., and have had

percocet for break through at night, as the other if I take it does not let me

sleep, and I get pain through the night, which has become almost every night

now!!, sometime almost go to the ER for a shot bad, but don't want to deal with

the anxiety of the whole trip there when I know if I could just go over and get

in and out quick would be ok, but you know the ER's. So the other thing is I

know person's who was given the oxcycontin after surgery and when they stopped,

it was a nightmare coming off, my Dr. belives in the Fibro, and believes we

should not have to endure pain, and thinks I am one of the ones who will have to

take pain med's for the rest of my life she has seen this, but I need to go to

the Pain Clinic for the stronger pill, and this also makes me anxious, I don't

want to go through all the new stuff again, I hate new patient visits, but if

you think the oxcycontin helps that much

I may think more of going, as I don't want to get on it unless I hear from

otheres that the relief good, as I have to take large doses of anything, and

this scares me, but I am on 6-8 vicodin ES a day and I know the liver can get

involved and wonder now where it is on me, I come from a family of poorer livers

to begin with. Well keep us posted on this will you.. .Thanks

Sharon

J tracy9j@...> wrote: Hi, Al

I sent my reponses to the wrong list. So, you may be seeing this again. Sorry

about that.

As for mattress toppers, I bought two 4-inch memory foam toppers from Overstock

and laid it on a wood platform. It works pretty good as a mattress for me. I

think I may get one more, though. My hip bones still need a little more cushion.

I am 5 foot 6 and weigh 190 pounds, but all my fat is unfortunately around my

waist, so I have no natural cushion around my pointy areas.

I take Oxycontin 2 times a day and hydrocodone for break-through pain. My doc

upped my Oxy to 60 mg twice a day and I think we've hit the right dose for now.

I started this dose on Wednesday and I have only had 1 hydro instead of the

usual 6. I asked my doctor if he could recommend a psycologist. I wanted to talk

to one to see if they could suggest some better " tools " for dealing with all the

different aspects of this disease. He set me up with one for next week and also

set me up with an appointment to the new pain clinic. I will be going there for

my first 2 hour session on April 7th. He was pretty surprised that anyone would

ask for psycological help for dealing with pain. I figured the more help I can

get, the better since this is a condition that I will be living with for the

rest of my life. I'm really looking forward to these sessions.

It's hard to convince people that you are sick. It really hurts when people

close to you don't believe you. My mother was probably the worst. She died

before I was officially diagnosed. She was positive I was being a slacker and

looking for any excuse to not do things for her, even though I took care of her

for several months doing heavy lifting etc. She pretty much caused the worst

damage to my spine and all she could do was tell my step-dad and brother that I

was stupid and useless...She used those words, too. Nobody needs that kind of

treatment. My brother and my step-dad don't really understand fibro but they are

pretty sympathetic. My " friends " don't believe that my fibro pain is all that

bad because they only see me on my better days. It's the " Yuppie flu " , don't you

know? I have 2 real friends who are supportive and that's all I need. My husband

is a saint. He does all he can to help me out.

It's really hard to accept this diagnosis. It took me about 8 months before I

decided to believe what my doctor was telling me. I have done a ton of research

and finally accepted that this is what I have and I am going to deal with it and

fight as hard as I can to keep my quality of life as good as I can. It's not

easy to say no to social activities. It's not easy to ask for help when you are

used to doing everything for yourself. At first I was depressed and then I got

angry. Why me? Then I got to the point of acceptence. Now I don't feel sorry for

myself...I figure it could be worse...I could have cancer or heart disease. I am

done fighting with myself and now I'm researching as much as I can to get the

help and tools I need to deal with it and get on with my life, no matter where

it leads me.

Well, take care, All. My you be as well as you can be today.

J in East Northcentral Minnesota

http://sisypheanranch.blogspot.com/

'Life isn't about how to survive the storm, but how to dance in the rain.'

[Guest guest]

Hi ,

You have arrived at a good place. I'm happy to hear that you want to do all you

can in order to live your best life. Me too, I figure by the time I'm done

reading all the books I have, I'll be able to start putting M.D. after my name!!

Hugs,

/Mi

Misc reponses

Hi, All.

I sent my reponses to the wrong list. So, you may be seeing this again. Sorry

about that.

As for mattress toppers, I bought two 4-inch memory foam toppers from

Overstock and laid it on a wood platform. It works pretty good as a mattress for

me. I think I may get one more, though. My hip bones still need a little more

cushion. I am 5 foot 6 and weigh 190 pounds, but all my fat is unfortunately

around my waist, so I have no natural cushion around my pointy areas.

I take Oxycontin 2 times a day and hydrocodone for break-through pain. My doc

upped my Oxy to 60 mg twice a day and I think we've hit the right dose for now.

I started this dose on Wednesday and I have only had 1 hydro instead of the

usual 6. I asked my doctor if he could recommend a psycologist. I wanted to talk

to one to see if they could suggest some better " tools " for dealing with all the

different aspects of this disease. He set me up with one for next week and also

set me up with an appointment to the new pain clinic. I will be going there for

my first 2 hour session on April 7th. He was pretty surprised that anyone would

ask for psycological help for dealing with pain. I figured the more help I can

get, the better since this is a condition that I will be living with for the

rest of my life. I'm really looking forward to these sessions.

It's hard to convince people that you are sick. It really hurts when people

close to you don't believe you. My mother was probably the worst. She died

before I was officially diagnosed. She was positive I was being a slacker and

looking for any excuse to not do things for her, even though I took care of her

for several months doing heavy lifting etc. She pretty much caused the worst

damage to my spine and all she could do was tell my step-dad and brother that I

was stupid and useless...She used those words, too. Nobody needs that kind of

treatment. My brother and my step-dad don't really understand fibro but they are

pretty sympathetic. My " friends " don't believe that my fibro pain is all that

bad because they only see me on my better days. It's the " Yuppie flu " , don't you

know? I have 2 real friends who are supportive and that's all I need. My husband

is a saint. He does all he can to help me out.

It's really hard to accept this diagnosis. It took me about 8 months before I

decided to believe what my doctor was telling me. I have done a ton of research

and finally accepted that this is what I have and I am going to deal with it and

fight as hard as I can to keep my quality of life as good as I can. It's not

easy to say no to social activities. It's not easy to ask for help when you are

used to doing everything for yourself. At first I was depressed and then I got

angry. Why me? Then I got to the point of acceptence. Now I don't feel sorry for

myself...I figure it could be worse...I could have cancer or heart disease. I am

done fighting with myself and now I'm researching as much as I can to get the

help and tools I need to deal with it and get on with my life, no matter where

it leads me.

Well, take care, All. My you be as well as you can be today.

J in East Northcentral Minnesota

http://sisypheanranch.blogspot.com/

'Life isn't about how to survive the storm, but how to dance in the rain.'

[Guest guest]

Sharon,

I take Percocet and Oxycontin or Morphine. It sounds like you take enough

narcotics that it will not " snow " you. It is a long lasting pain reliever and

then you can use your vicodine for break thru pain. I would not be afraid of it

if you need it. Oxycontin is not as hard on your body as narcotics. The couple

side effects I get from it is that it causes major constipation, it can irritate

the stomach (take with food), and sometimes it makes me really cranky. But, I

can not live without it and my narcotics. I'm surprised how many people on here

don't take much in the form of pain pills. If I didn't have the meds I do, my

pain is severe enough with my fibro and a multitude of other things that I would

literally commit suicide. As far as addiction, I've been on pain meds for 4

years. I've never had a problem until last fall. I came down with pneumonia

and was to sick to make it to my monthly appt. They could not fit me in for

another week and I was completely out of my meds. I didn't think it would be a

big deal because I had prescription for Advil for my pneumonia. Well, on my

second day of no pain meds my world turned upside down. I have to say it was

one of the most terrifying moments of my life. I tore my house apart looking

for a pill that I made have overlooked. My husband had to rush down to my pain

specialist and beg for a prescription. But again, I have to have it to survive

thru my pain. It's one more thing I have to deal with. That's another reason

why the Lyrica commercial is so condescending. Anyway, let me know if you have

anymore questions.

Jill

Re: Misc reponses

Hi - I am so sorry you had a mother who could be that cruel, while you

took care of her?, I don't know if I could of done it. I don't have a close

relationship with my mom, though she would like it, just somethings that I think

could of been dealt with better by her when I was young I can't seem to let go

of, or repair? She will do anything for me though, and has helped alot when she

has health issues herself, she has some other type of disease which is also very

painfull, I always forget what it is, Polymy something. Anyway I wanted to ask

you about the oxcycontin, as I am headed that way, I have held off, because I am

semi afraid of it, I was a med tech, when I worked and I pretty much know all my

med's, so I along with the world because of the street bums selling it at no

worry to themselves as long as they get the big buck, and are killing many a

person including the childeren. But I want to know when you first started does

it snow you on top of taking the

pain away? I am on the vicodin ES right now, have been for yrs., and have had

percocet for break through at night, as the other if I take it does not let me

sleep, and I get pain through the night, which has become almost every night

now!!, sometime almost go to the ER for a shot bad, but don't want to deal with

the anxiety of the whole trip there when I know if I could just go over and get

in and out quick would be ok, but you know the ER's. So the other thing is I

know person's who was given the oxcycontin after surgery and when they stopped,

it was a nightmare coming off, my Dr. belives in the Fibro, and believes we

should not have to endure pain, and thinks I am one of the ones who will have to

take pain med's for the rest of my life she has seen this, but I need to go to

the Pain Clinic for the stronger pill, and this also makes me anxious, I don't

want to go through all the new stuff again, I hate new patient visits, but if

you think the oxcycontin helps that much

I may think more of going, as I don't want to get on it unless I hear from

otheres that the relief good, as I have to take large doses of anything, and

this scares me, but I am on 6-8 vicodin ES a day and I know the liver can get

involved and wonder now where it is on me, I come from a family of poorer livers

to begin with. Well keep us posted on this will you.. .Thanks Sharon

J tracy9j@...> wrote: Hi, Al

I sent my reponses to the wrong list. So, you may be seeing this again. Sorry

about that.

As for mattress toppers, I bought two 4-inch memory foam toppers from

Overstock and laid it on a wood platform. It works pretty good as a mattress for

me. I think I may get one more, though. My hip bones still need a little more

cushion. I am 5 foot 6 and weigh 190 pounds, but all my fat is unfortunately

around my waist, so I have no natural cushion around my pointy areas.

I take Oxycontin 2 times a day and hydrocodone for break-through pain. My doc

upped my Oxy to 60 mg twice a day and I think we've hit the right dose for now.

I started this dose on Wednesday and I have only had 1 hydro instead of the

usual 6. I asked my doctor if he could recommend a psycologist. I wanted to talk

to one to see if they could suggest some better " tools " for dealing with all the

different aspects of this disease. He set me up with one for next week and also

set me up with an appointment to the new pain clinic. I will be going there for

my first 2 hour session on April 7th. He was pretty surprised that anyone would

ask for psycological help for dealing with pain. I figured the more help I can

get, the better since this is a condition that I will be living with for the

rest of my life. I'm really looking forward to these sessions.

It's hard to convince people that you are sick. It really hurts when people

close to you don't believe you. My mother was probably the worst. She died

before I was officially diagnosed. She was positive I was being a slacker and

looking for any excuse to not do things for her, even though I took care of her

for several months doing heavy lifting etc. She pretty much caused the worst

damage to my spine and all she could do was tell my step-dad and brother that I

was stupid and useless...She used those words, too. Nobody needs that kind of

treatment. My brother and my step-dad don't really understand fibro but they are

pretty sympathetic. My " friends " don't believe that my fibro pain is all that

bad because they only see me on my better days. It's the " Yuppie flu " , don't you

know? I have 2 real friends who are supportive and that's all I need. My husband

is a saint. He does all he can to help me out.

It's really hard to accept this diagnosis. It took me about 8 months before I

decided to believe what my doctor was telling me. I have done a ton of research

and finally accepted that this is what I have and I am going to deal with it and

fight as hard as I can to keep my quality of life as good as I can. It's not

easy to say no to social activities. It's not easy to ask for help when you are

used to doing everything for yourself. At first I was depressed and then I got

angry. Why me? Then I got to the point of acceptence. Now I don't feel sorry for

myself...I figure it could be worse...I could have cancer or heart disease. I am

done fighting with myself and now I'm researching as much as I can to get the

help and tools I need to deal with it and get on with my life, no matter where

it leads me.

Well, take care, All. My you be as well as you can be today.

J in East Northcentral Minnesota

http://sisypheanranch.blogspot.com/

'Life isn't about how to survive the storm, but how to dance in the rain.'