Re: I'm a Newbie! - Lyme SSDI

[Guest guest]

I have Lyme too and so spend more time on lyme groups that I am in.

I hope you are getting treated by a doctor who goes way beyond the

IDSA treatment guideline for lyme disease. If you are not being

treated for lyme now you need a new doctor.

I have just had my ALJ hearing for SSDI and am waiting to get the

decision.

>

> Hi to all!

> I'm a " newbie " to the group, but not to FM! I've had FM/CFIDS since

> 1990. I was also diagnosed withn Chronic Lyme disease as well back in

> 2002. I went through the disability process with SSDI and long term

> disabiltity through my employer at the time. I did receive it due to

> CFIDS and FM. I may be able to give a little help on going through

> the disability process.

> Right now I'm in the process of trying to find a new doc. I've been

> seeing the one I have now since I was diagnosed back in 1990. I would

> like to have a new set of eyes kind of look over my records, etc. I'm

> NOT looking forward to finding a new doc. That in itself will prove

> to be stressful, as there don't seem to be that many docs willing or

> educated on this disease. Unless they are out there and I don't know

> it!!! LOL

> Anyways..........I live in the Sunshine State (Tampa) and am looking

> forward to " meeting " everyone!

>

> Take Care!!

> Mona

>

[Guest guest]

I'll say hello to first - hope you have a favorable ALJ

decision! I am in the waiting process for the ALJ hearing, myself. I

detest waiting. I've been on LTD for 15 months now......

Mona , I would 2nd 's opinion on finding another doc to treat

Lyme. I had never heard of chronic Lyme. What is CFIDS? Welcome to

this group; you'll learn alot just by reading but questions are

always welcomed!

Darlene

> >

> > Hi to all!

> > I'm a " newbie " to the group, but not to FM! I've had FM/CFIDS

since

> > 1990. I was also diagnosed withn Chronic Lyme disease as well

back in

> > 2002. I went through the disability process with SSDI and long

term

> > disabiltity through my employer at the time. I did receive it due

to

> > CFIDS and FM. I may be able to give a little help on going

through

> > the disability process.

> > Right now I'm in the process of trying to find a new doc. I've

been

> > seeing the one I have now since I was diagnosed back in 1990. I

would

> > like to have a new set of eyes kind of look over my records, etc.

I'm

> > NOT looking forward to finding a new doc. That in itself will

prove

> > to be stressful, as there don't seem to be that many docs willing

or

> > educated on this disease. Unless they are out there and I don't

know

> > it!!! LOL

> > Anyways..........I live in the Sunshine State (Tampa) and am

looking

> > forward to " meeting " everyone!

> >

> > Take Care!!

> > Mona

> >

>