Re: Extreme Pain -

[Guest guest]

,

Given those 2 choices, I would opt for standing in the Dr's office

and screaming but don't know if it will help. The alternative would

put you at the mercy of all the underpaid help. Pain is a horrible

thing to cope with as we all know. Have you been to a pain

specialist who is certified to offer medications that help if you

need them? Most Dr's are afraid to prescribe them but there are

specially trained pain management specialists who can help. It took

me three pain specialists before I found one who knew how to diagnose

and treat FM.

When I mention the muscle jerks, all the Dr's look glassy-eyed. They

are exactly as you described them. I was even having them during

both of my sleep studies before I fell asleep - don't know if I have

them when I am asleep. Since mine aren't painful, just very

annoying, I've been trying to ignore them. I think there is a

connection between the muscle jerks and the fact that sometimes my

legs or arms won't go in the direction I want them to. Scary I know.

I would try calling pain management centers and ask how they treat

pain. The first one I went to insisted on 3 shots in my lower back,

the second one insisted on 1 different type of shot in my lower

back. Fortunately when he saw that didn't work, he referred me to a

third pain specialist who is treating it with serious medication. Do

you live in or near a city that would give you some options? They

will all tell you they treat severe pain, but the question is how.

Good luck, Margaret B

> I'm in some serious pain lately. I'd like to know if any of you have

> an idea. I'm fighting other medical issues as well as FM. I'm on

> Lyrica, Flexeril, Elmiron, Vistaril, Elavil, Singulair, prescription

> acne creme, and I also have Lortab for extreme pain. Oh, and daily

> doses of immodium, occasional doses of ibuprofen. I have FM,

> Interstitial Cystitis and Degenerative Disc Disease. I've recently

> been having horrible muscle jerks. I notice them from time to time

> during the day but truly notice them in the evenings while relaxing...

> or trying to... with a teenage daughter and a very active son... and I

> notice them a LOT at night while trying to sleep. I don't actually

> sleep. Ever it feels like. I know, I know, I'm a medical train wreck

> and I am all over the place. No sleep does that to a brain. I don't

> feel that my rheumatologist understands my bladder disease. He can't

> understand why I take the meds I do. I'm just in pain so much

> lately. I'd like opinions on - if you were me - what would you do

> next? Stand in the doctor's office and scream or just have myself

> committed? Thanks, .

>

>