Guest guest Posted April 29, 2008 Report Share Posted April 29, 2008 Dear sweet Debra- I'm sorry you had such a scarey Dr visit and with no real answers when you were done! I hate the headaches. I went to the neuro a few times. First time the diagnosis was Atention Deficit Dissorder (wich I think is true but I wont take the med for it) The second time and an MRI later it was Menieres, which explains why I get vertigo, motion sickness (when sitting still), hate bright lights especialy flickery ones like cop cars, and occassionaly fall flat on the ground for no apparent reason. That's about the worst I've had until getting the fibro symptoms and not getting a diagnosis other than that I am insane (which I knew anyway and has nothing to do with the PAIN) Also, I did get cortisone shots once, 2 in each ankle, from a podiatrist-hurt like hell and I swwore I'd never get another, stopped my feet from hurting though for about 2 weeks. SO poo-poo to all my complaints. I started this all off just to offer you some sympathy. Cassandra > > COULD MY LIFE GET ANY WORSE???? I am back from my Neurologist appointment and I left in tears. He didn't say anything about my weight because of all the other problems I have been having. I have been dizzy and at times have problems with my eyes and have headaches every single day that I am awake. Sometimes they are migraines and I have to take a shot and sometimes they are just plain old headaches. > Well...I am to have another spinal tap done ASAP and I am also suppose to make an appointment to see an eye doctor. He told me that he is pretty sure that I have Pseduotumor Cerebri. They really don't know what causes it exactly but after reading some websites everyone of them stated it can be brought on by doses of Cortizone. How many of those injections have I had??? About 8!!!! They say that if it's not treated or caught early you could lose your eyesight and there is a possiblity that the CFS that floats in your brain does not decrease in pressure surgery would be involved. > WHY??? WHY ALL OF A SUDDEN TO ME???? I am so angry and hurt and confused right now I don't know what to do. I guess the only thing I know for sure that I have is Fibromyalgia and I am FAT!!!!!!! > Life has to get better, doesn't it?? Please keep me in your prayers. Thanks for letting me vent. > Gentle Hugs and Soft Kisses, > Debra B > > > ________________________________________________________________________________\ ____ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/; _ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2008 Report Share Posted April 29, 2008 Thanks Cassandra, I just don't know what is going on with me and it seems that no one else does either! I have an appointment with eye specialist this Thursday at 9:30...........we will see what he has to say or not say. I have decided that I am not going to expect anything on Thursday or any other doctors appointment for that matter. I feel like sometimes I am just getting screwed!!! Debra B Re: Neurologist Update Dear sweet Debra- I'm sorry you had such a scarey Dr visit and with no real answers when you were done! I hate the headaches. I went to the neuro a few times. First time the diagnosis was Atention Deficit Dissorder (wich I think is true but I wont take the med for it) The second time and an MRI later it was Menieres, which explains why I get vertigo, motion sickness (when sitting still), hate bright lights especialy flickery ones like cop cars, and occassionaly fall flat on the ground for no apparent reason. That's about the worst I've had until getting the fibro symptoms and not getting a diagnosis other than that I am insane (which I knew anyway and has nothing to do with the PAIN) Also, I did get cortisone shots once, 2 in each ankle, from a podiatrist-hurt like hell and I swwore I'd never get another, stopped my feet from hurting though for about 2 weeks. SO poo-poo to all my complaints. I started this all off just to offer you some sympathy. Cassandra > > COULD MY LIFE GET ANY WORSE???? I am back from my Neurologist appointment and I left in tears. He didn't say anything about my weight because of all the other problems I have been having. I have been dizzy and at times have problems with my eyes and have headaches every single day that I am awake. Sometimes they are migraines and I have to take a shot and sometimes they are just plain old headaches. > Well...I am to have another spinal tap done ASAP and I am also suppose to make an appointment to see an eye doctor. He told me that he is pretty sure that I have Pseduotumor Cerebri. They really don't know what causes it exactly but after reading some websites everyone of them stated it can be brought on by doses of Cortizone. How many of those injections have I had??? About 8!!!! They say that if it's not treated or caught early you could lose your eyesight and there is a possiblity that the CFS that floats in your brain does not decrease in pressure surgery would be involved. > WHY??? WHY ALL OF A SUDDEN TO ME???? I am so angry and hurt and confused right now I don't know what to do. I guess the only thing I know for sure that I have is Fibromyalgia and I am FAT!!!!!!! > Life has to get better, doesn't it?? Please keep me in your prayers. Thanks for letting me vent. > Gentle Hugs and Soft Kisses, > Debra B > > > ____________ _________ _________ _________ _________ _________ _ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile. yahoo.com/ ; _ylt=Ahu06i62sR8HDt Dypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2008 Report Share Posted April 29, 2008 Debra, that's completely messed up what you are going through and have to face just around the corner. Stay strong, vent as much as you need to, the PenPal campaign is going to kick off shortly and will be something to look forward to rather than dread. The board it at your disposal, we listen because we care. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2008 Report Share Posted April 29, 2008 Thanks ! I look forward to the pen pal to get started. Debra B Re: Neurologist Update Debra, that's completely messed up what you are going through and have to face just around the corner. Stay strong, vent as much as you need to, the PenPal campaign is going to kick off shortly and will be something to look forward to rather than dread. The board it at your disposal, we listen because we care. ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2008 Report Share Posted April 29, 2008 Dear Debra, I am so sorry. Maybe it won't turn out to be anything severe. I will indeed pray for you. Hang in there. Love, Neurologist Update COULD MY LIFE GET ANY WORSE???? I am back from my Neurologist appointment and I left in tears. He didn't say anything about my weight because of all the other problems I have been having. I have been dizzy and at times have problems with my eyes and have headaches every single day that I am awake. Sometimes they are migraines and I have to take a shot and sometimes they are just plain old headaches. Well...I am to have another spinal tap done ASAP and I am also suppose to make an appointment to see an eye doctor. He told me that he is pretty sure that I have Pseduotumor Cerebri. They really don't know what causes it exactly but after reading some websites everyone of them stated it can be brought on by doses of Cortizone. How many of those injections have I had??? About 8!!!! They say that if it's not treated or caught early you could lose your eyesight and there is a possiblity that the CFS that floats in your brain does not decrease in pressure surgery would be involved. WHY??? WHY ALL OF A SUDDEN TO ME???? I am so angry and hurt and confused right now I don't know what to do. I guess the only thing I know for sure that I have is Fibromyalgia and I am FAT!!!!!!! Life has to get better, doesn't it?? Please keep me in your prayers. Thanks for letting me vent. Gentle Hugs and Soft Kisses, Debra B __________________________________________________________ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2008 Report Share Posted April 29, 2008 Dear Debra, My thoughts and prayers are with you... Hugs, Kristi > > Dear Debra, > I am so sorry. Maybe it won't turn out to be anything severe. I will indeed pray for you. Hang in there. > Love, > > Neurologist Update > > > COULD MY LIFE GET ANY WORSE???? I am back from my Neurologist appointment and I left in tears. He didn't say anything about my weight because of all the other problems I have been having. I have been dizzy and at times have problems with my eyes and have headaches every single day that I am awake. Sometimes they are migraines and I have to take a shot and sometimes they are just plain old headaches. > Well...I am to have another spinal tap done ASAP and I am also suppose to make an appointment to see an eye doctor. He told me that he is pretty sure that I have Pseduotumor Cerebri. They really don't know what causes it exactly but after reading some websites everyone of them stated it can be brought on by doses of Cortizone. How many of those injections have I had??? About 8!!!! They say that if it's not treated or caught early you could lose your eyesight and there is a possiblity that the CFS that floats in your brain does not decrease in pressure surgery would be involved. > WHY??? WHY ALL OF A SUDDEN TO ME???? I am so angry and hurt and confused right now I don't know what to do. I guess the only thing I know for sure that I have is Fibromyalgia and I am FAT!!!!!!! > Life has to get better, doesn't it?? Please keep me in your prayers. Thanks for letting me vent. > Gentle Hugs and Soft Kisses, > Debra B > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2008 Report Share Posted April 29, 2008 DEBA ! do you use Splenda ? i am only asking because for 3 years i had migraines , bad ! 3 days in bed , shots out the yozoo! and every test they could do , finally when this Easter came early , i didn`t get out to get splenda cause my man was sick , i used sugar for 4 days ,then when i got on Splenda for 2 days ,the headaches started again , needless to say ,no more Splenda for me Ethel Behold the turtle , he who makes slow progress wins the race ! Neurologist Update > COULD MY LIFE GET ANY WORSE???? I am back from my Neurologist appointment > and I left in tears. He didn't say anything about my weight because of all > the other problems I have been having. I have been dizzy and at times have > problems with my eyes and have headaches every single day that I am awake. > Sometimes they are migraines and I have to take a shot and sometimes they > are just plain old headaches. > Well...I am to have another spinal tap done ASAP and I am also suppose to > make an appointment to see an eye doctor. He told me that he is pretty > sure that I have Pseduotumor Cerebri. They really don't know what causes > it exactly but after reading some websites everyone of them stated it can > be brought on by doses of Cortizone. How many of those injections have I > had??? About 8!!!! They say that if it's not treated or caught early you > could lose your eyesight and there is a possiblity that the CFS that > floats in your brain does not decrease in pressure surgery would be > involved. > WHY??? WHY ALL OF A SUDDEN TO ME???? I am so angry and hurt and confused > right now I don't know what to do. I guess the only thing I know for sure > that I have is Fibromyalgia and I am FAT!!!!!!! > Life has to get better, doesn't it?? Please keep me in your prayers. > Thanks for letting me vent. > Gentle Hugs and Soft Kisses, > Debra B > > > > ________________________________________________________________________________\ ____ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. > http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2008 Report Share Posted April 30, 2008 I had been using Sweet N Low but since all of the postings I have started to use sugar again. It's the safest thing there is to use. Other than drinking coffee in the mornings, I only drink decaf tea and water so I guess will just have to see what happens. Debra B Neurologist Update > COULD MY LIFE GET ANY WORSE???? I am back from my Neurologist appointment > and I left in tears. He didn't say anything about my weight because of all > the other problems I have been having. I have been dizzy and at times have > problems with my eyes and have headaches every single day that I am awake. > Sometimes they are migraines and I have to take a shot and sometimes they > are just plain old headaches. > Well...I am to have another spinal tap done ASAP and I am also suppose to > make an appointment to see an eye doctor. He told me that he is pretty > sure that I have Pseduotumor Cerebri. They really don't know what causes > it exactly but after reading some websites everyone of them stated it can > be brought on by doses of Cortizone. How many of those injections have I > had??? About 8!!!! They say that if it's not treated or caught early you > could lose your eyesight and there is a possiblity that the CFS that > floats in your brain does not decrease in pressure surgery would be > involved. > WHY??? WHY ALL OF A SUDDEN TO ME???? I am so angry and hurt and confused > right now I don't know what to do. I guess the only thing I know for sure > that I have is Fibromyalgia and I am FAT!!!!!!! > Life has to get better, doesn't it?? Please keep me in your prayers. > Thanks for letting me vent. > Gentle Hugs and Soft Kisses, > Debra B > > > > ____________ _________ _________ _________ _________ _________ _ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. > http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ > > Quote Link to comment Share on other sites More sharing options...
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