Re: It's Been Awhile..../Amy

[Guest guest]

Nice tohear from you again. sorry you are in so much pain. I hope it eases

for you soon. What is Levin?

Hugs,

On Mon, Apr 14, 2008 at 5:52 PM, Marti Boguski martibowenboguski@...>

wrote:

> Hi Amy,

>

> I remember you. You have been missed. It was good of you to jump right

> in; it is almost impossible to sort through the messages when you have been

> gone for a while. I have had the same problem. I had to delete the old

> messages and just pick a starting place to read the posts and then just

> jumped in like you are doing.

>

> I'm sorry you have been in such a long flare. It must really be taking a

> toll on you. I have no idea how you can run a farm, small or not. I feel

> like such a wimp. I can't even work anymore from my website, much less

> handle horses and a farm.

>

> Maybe adding the Cymbalta will help some. I hope so anyway.

>

> Try to take care of yourself and be proud of yourself for doing all that

> you do.

>

> Marti

>

> Amy Brand amy@...> wrote:

> Hey everyone....

>

> It has been awhile since I have posted here. I am not sure if anyone

> remembers me! There

> are so many messages it is a bit overwhelming to jump back in, but I am

> trying to weed

> through everything!

>

> I have had a bad non-stop flare for over a month. It just won't go away. I

> just got some of

> my meds tweaked the other day when I went to my Fibro Specialist.

>

> I was taking:

> 10mg Lexapro 1x per day

> 75mg Lyrica 2x per day

> Levin as needed for IBS

> 10mg Ambien

>

> I am now taking...as of Saturday:

> 30mg Cymbalta 1x per day

> 100mg Lyrica 3x per day

> Levin as needed

> 10mg Ambien

>

> This is the 4th time since December I have had my meds changed. Nothing

> has really

> worked so far for me. I've just been pretty miserable. I am way too Type A

> to just lay

> around. I run my own business, and I have a small farm & horses to feed.

> Sometimes I

> think all that is the only thing keeping me going. But gosh....my pain is

> so bad....it feels

> like entire spine is on fire!

>

>

>

>

>

>

>

>

[Guest guest]

The Levin is for my IBS. It works really well....you just take 1 or 2 as

needed....no more than

6 per day. It seems to work pretty well! It just really dries out my mouth!

> > Hey everyone....

> >

> > It has been awhile since I have posted here. I am not sure if anyone

> > remembers me! There

> > are so many messages it is a bit overwhelming to jump back in, but I am

> > trying to weed

> > through everything!

> >

> > I have had a bad non-stop flare for over a month. It just won't go away. I

> > just got some of

> > my meds tweaked the other day when I went to my Fibro Specialist.

> >

> > I was taking:

> > 10mg Lexapro 1x per day

> > 75mg Lyrica 2x per day

> > Levin as needed for IBS

> > 10mg Ambien

> >

> > I am now taking...as of Saturday:

> > 30mg Cymbalta 1x per day

> > 100mg Lyrica 3x per day

> > Levin as needed

> > 10mg Ambien

> >

> > This is the 4th time since December I have had my meds changed. Nothing

> > has really

> > worked so far for me. I've just been pretty miserable. I am way too Type A

> > to just lay

> > around. I run my own business, and I have a small farm & horses to feed.

> > Sometimes I

> > think all that is the only thing keeping me going. But gosh....my pain is

> > so bad....it feels

> > like entire spine is on fire!

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

My motto is that I might have fibro, but it does not have me. I fight

through daily too, to do things that are very difficult for me to do with

this darn disease and back problems. We look fine, so how is it we are

hurting so bad? I get that alot. Maybe we should wear a name tag that says "

I have fibro and am hurting bad today " ? Hope your pain eases soon.

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On Tue, Apr 15, 2008 at 5:04 AM, Amy Brand amy@...>

wrote:

> Ugh! So I woke up early from taking my Ambien! This has been happening a

> lot

> lately....grrr!

>

> Thanks for the encouraging words. I have not heard many from friends

> lately. Everyone is

> so negavtive & they just don't understand. The downplay my Fibromyalgia

> because they

> see me working with animals & they see me ride horses & do barnwork, so I

> must be ok,

> right? No...not at all!

>

> Today was one of the hardest struggles for me! The couch was calling my

> name, but so

> was my horses & barnwork. I kept putting it off. Finally I talked to my

> hubby (who was still

> at work) & I was so sore & so upset. So....I finally said outloud " I'm

> gonna conquer this

> damn Fibromyalgia! " and hung up the phone. So I walked out to the barn &

> did my

> barnwork.....slowly....but I did it. (I only have 3 stalls)

>

> I was so proud that I actually got everything done! I don't know how I did

> it!

>

> Then I came inside....took a hot epson salt bath like I do every

> night....laid on the couch &

> never moved since! My kitty is laying here with me!

>

>

>

> >

> > Hi Amy,

> >

> > I remember you. You have been missed. It was good of you to jump

> right in; it is

> almost impossible to sort through the messages when you have been gone for

> a while. I

> have had the same problem. I had to delete the old messages and just pick

> a starting

> place to read the posts and then just jumped in like you are doing.

> >

> > I'm sorry you have been in such a long flare. It must really be

> taking a toll on you. I

> have no idea how you can run a farm, small or not. I feel like such a

> wimp. I can't even

> work anymore from my website, much less handle horses and a farm.

> >

> > Maybe adding the Cymbalta will help some. I hope so anyway.

> >

> > Try to take care of yourself and be proud of yourself for doing all

> that you do.

> >

> > Marti

> >

>

>

>

>

> ------------------------------------

>

> 1. While it is wonderful to share our experiences with everyone on the

> list as to what treatments do and don't work for us, pls always check with

> your dr. Some treatments are dangerous when given along with other meds as

> well as to certain health conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is) pls

> don't be afraid to ask for help. It is the first step to trying to make

> that situation better.

>

> 3. To unsubscribe the e-mail is:

> Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member to be feeling bad at

> the same time when it comes to flares and b/c of that potentially take

> something another member says the wrong way. And that includes the things

> that one member may find funny (even if it's laughing at fibro itself) even

> though we who deal with illness whether one such as fibro or multiple

> illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a bad day

> pls let us know so that we can do our best to offer our support.

>

> Have a nice day everyone.

>

[Guest guest]

Hi again,

I didn't know there was a med for IBS that didn't cause the diarrhea to be

worse. I'll have to check on that one. I take Imodium AD and it works

sometimes.

Marti

Amy Brand amy@...> wrote:

The Levin is for my IBS. It works really well....you just take 1 or 2

as needed....no more than

6 per day. It seems to work pretty well! It just really dries out my mouth!

> > Hey everyone....

> >

> > It has been awhile since I have posted here. I am not sure if anyone

> > remembers me! There

> > are so many messages it is a bit overwhelming to jump back in, but I am

> > trying to weed

> > through everything!

> >

> > I have had a bad non-stop flare for over a month. It just won't go away. I

> > just got some of

> > my meds tweaked the other day when I went to my Fibro Specialist.

> >

> > I was taking:

> > 10mg Lexapro 1x per day

> > 75mg Lyrica 2x per day

> > Levin as needed for IBS

> > 10mg Ambien

> >

> > I am now taking...as of Saturday:

> > 30mg Cymbalta 1x per day

> > 100mg Lyrica 3x per day

> > Levin as needed

> > 10mg Ambien

> >

> > This is the 4th time since December I have had my meds changed. Nothing

> > has really

> > worked so far for me. I've just been pretty miserable. I am way too Type A

> > to just lay

> > around. I run my own business, and I have a small farm & horses to feed.

> > Sometimes I

> > think all that is the only thing keeping me going. But gosh....my pain is

> > so bad....it feels

> > like entire spine is on fire!

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thank you! My husband said I should walk around with a sign or something. Maybe

I

should walk around with a cane??? I am 28 & in very good shape....so people just

have no

idea I am sick....but I tell everyone!

> > >

> > > Hi Amy,

> > >

> > > I remember you. You have been missed. It was good of you to jump

> > right in; it is

> > almost impossible to sort through the messages when you have been gone for

> > a while. I

> > have had the same problem. I had to delete the old messages and just pick

> > a starting

> > place to read the posts and then just jumped in like you are doing.

> > >

> > > I'm sorry you have been in such a long flare. It must really be

> > taking a toll on you. I

> > have no idea how you can run a farm, small or not. I feel like such a

> > wimp. I can't even

> > work anymore from my website, much less handle horses and a farm.

> > >

> > > Maybe adding the Cymbalta will help some. I hope so anyway.

> > >

> > > Try to take care of yourself and be proud of yourself for doing all

> > that you do.

> > >

> > > Marti

> > >

> >

> >

> >

> >

> > ------------------------------------

> >

> > 1. While it is wonderful to share our experiences with everyone on the

> > list as to what treatments do and don't work for us, pls always check with

> > your dr. Some treatments are dangerous when given along with other meds as

> > well as to certain health conditions or just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't matter what it is) pls

> > don't be afraid to ask for help. It is the first step to trying to make

> > that situation better.

> >

> > 3. To unsubscribe the e-mail is:

> > Fibromyalgia_Support_Group-unsubscribe

> >

> > 4. Also, it is not uncommon for more than one member to be feeling bad at

> > the same time when it comes to flares and b/c of that potentially take

> > something another member says the wrong way. And that includes the things

> > that one member may find funny (even if it's laughing at fibro itself) even

> > though we who deal with illness whether one such as fibro or multiple

> > illnesses try to keep a sense of humor.

> >

> > 5. Pls let's be gentle with each other, and if you are having a bad day

> > pls let us know so that we can do our best to offer our support.

> >

> > Have a nice day everyone.

> >

[Guest guest]

Well...I have the constipation/cramping type of IBS....it gets really bad

sometimes & I get

really bad hemmorhoids. I can't take Immodium or anything like that because

it stops

me up so bad! I'm not sure if the Levin would help diarrhea or not.

> > > Hey everyone....

> > >

> > > It has been awhile since I have posted here. I am not sure if anyone

> > > remembers me! There

> > > are so many messages it is a bit overwhelming to jump back in, but I am

> > > trying to weed

> > > through everything!

> > >

> > > I have had a bad non-stop flare for over a month. It just won't go away. I

> > > just got some of

> > > my meds tweaked the other day when I went to my Fibro Specialist.

> > >

> > > I was taking:

> > > 10mg Lexapro 1x per day

> > > 75mg Lyrica 2x per day

> > > Levin as needed for IBS

> > > 10mg Ambien

> > >

> > > I am now taking...as of Saturday:

> > > 30mg Cymbalta 1x per day

> > > 100mg Lyrica 3x per day

> > > Levin as needed

> > > 10mg Ambien

> > >

> > > This is the 4th time since December I have had my meds changed. Nothing

> > > has really

> > > worked so far for me. I've just been pretty miserable. I am way too Type A

> > > to just lay

> > > around. I run my own business, and I have a small farm & horses to feed.

> > > Sometimes I

> > > think all that is the only thing keeping me going. But gosh....my pain is

> > > so bad....it feels

> > > like entire spine is on fire!

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

That's the problem I run into with Imodium if I take it much. I don't usually

have the constipation too badly unless I take stuff so I usually try to let it

run its course until it gets better (no pun intended). I have the cramping bad

and the bloating. Someone described it as the Explosive Diarrhea type. When

I've got to go I better find a bathroom right then or I'll go anyway. It

contributes to my not leaving the house much.

I'm sorry you have the bad cramping and hemorrhoids. They must be terrible.

I know they hurt really bad. My cousin is having surgery for them in May. He

is in a lot of pain too.

I hope you feel better,

Marti

Amy Brand amy@...> wrote:

Well...I have the constipation/cramping type of IBS....it gets really

bad sometimes & I get

really bad hemmorhoids. I can't take Immodium or anything like that because

it stops

me up so bad! I'm not sure if the Levin would help diarrhea or not.

> > > Hey everyone....

> > >

> > > It has been awhile since I have posted here. I am not sure if anyone

> > > remembers me! There

> > > are so many messages it is a bit overwhelming to jump back in, but I am

> > > trying to weed

> > > through everything!

> > >

> > > I have had a bad non-stop flare for over a month. It just won't go away. I

> > > just got some of

> > > my meds tweaked the other day when I went to my Fibro Specialist.

> > >

> > > I was taking:

> > > 10mg Lexapro 1x per day

> > > 75mg Lyrica 2x per day

> > > Levin as needed for IBS

> > > 10mg Ambien

> > >

> > > I am now taking...as of Saturday:

> > > 30mg Cymbalta 1x per day

> > > 100mg Lyrica 3x per day

> > > Levin as needed

> > > 10mg Ambien

> > >

> > > This is the 4th time since December I have had my meds changed. Nothing

> > > has really

> > > worked so far for me. I've just been pretty miserable. I am way too Type A

> > > to just lay

> > > around. I run my own business, and I have a small farm & horses to feed.

> > > Sometimes I

> > > think all that is the only thing keeping me going. But gosh....my pain is

> > > so bad....it feels

> > > like entire spine is on fire!

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >