Re: medications/ To Bonnie

[Guest guest]

In a message dated 4/10/2008 11:46:35 A.M. Eastern Daylight Time,

ladybug75901@... writes:

Sleep does little for me. I wake up feeling like I was hit by a mack truck

and the stiffness is unimaginable the first hour out of bed. After I take my

pain med, within an hour it lets up enough that I can move. So... research is

wrong in my case.

Same for me Debra....The pain and stiffness is the worst in the morning when

I get up out of bed...After I take the pain med, I really don't notice any

pain and can do most things, at least for 4 to 6 hrs...lol

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[Guest guest]

Pain pills do help my pain. Hydrocodone is the only thing that diminshes this

pain at all. So for me..... I will take pain pills because they help my pain

and they were made for pain.

Now... let me say that this may not be true for everyone, but from my own

experience this is how I see it. Sleep does little for me. I wake up feeling

like I was hit by a mack truck and the stiffness is unimaginable the first hour

out of bed. After I take my pain med, within an hour it lets up enough that I

can move. So... research is wrong in my case.

love and hugs,

Debra V.

Kate Court bonnie090196@...> wrote:

Look the research shows that pain killers do not help this disease so

those that

are on them will get little sympathy from Dr's in trying to get them. We simply

can't

pick the pain killer in double blind control studies, and 30% respond to a

placebo, it makes it infuriating because we all want to be pain free the problem

is that it isn't " real " pain, (I know it feels pretty darn real) but there is no

injury underlying it, just a bunch of brain waves acting up and until we

manage that bit all the pills in the world aren't going to help and more

importantly the Dr's well they simply don't beleive us.

The best you can hope for is some kind of middle ground with

your meds. For me its sleep I can endure the pain if I get the sleep.

Re: medications/Ann

Ann - Perhaps you've started at too high of a dose on the Lyrica? If not, you

are not the only person who can't tolerate the side effects. Other drugs that

are similar anti-seizure meds are Neurontin, Topomax, and Lamictal. I myself am

on Lamictal per my psychiatrist to help control my mood levels. So I cannot do

Lyrica.

Oxycontin is the strongest pain reliever out there. Most docs won't prescribe

unless others like Vicoden, Darvocet, Ultram don't work. I wish you luck in

getting the pain relief that you need. Take care.

Jeanne in WI

Hello,I am on Lyrica and have had some pretty bad dizzy spells, I am going to my

doctor tomorrow, I think I want to get off this medication due to the dizziness

and it is not taking any pain away. Could anyone

please tell me what other medications I can take so I can bring it up to my

doctor. I have a lot of pain and am thinking of asking him for oxycodone, do you

think this would help with the pain? Thank you all for your responses and thank

you for being here as I am new to this disease.

Sincerely,

Ann