Re: Horrible Night/ like torture/Restless legs syndrome?Hinky

[Guest guest]

Wow that must be miserable. I have it a bit, but sems like my night meds

take care of it. I take seroquel for sleep. Ihope you get to feeling better.

Ty for the well wishes.

Hugs,

>

> Does anyone else out there have restless leg syndrom as well as the

> Fibro???

> I have been on Requip for about 3 years now and they keep having to

> increase the dosage. I now take it all day long (1mg. Tid) and 2mg at

> bed and I'm still getting it now & again. If I forget just one pill

> during the day it starts... I took all of them yesterday and It started

> as soon as I got in bed... Lord I was up walking the floors and

> wiggling my legs and about to scream from being sooo exhausted from it

> all. My husband says. " take another pill " so I did (1mg) and finally

> about 2:30 it eased up. I got into bed and an hour later I woke up with

> my legs just moving all over, here we go again!!!! I took another pill

> and the about 3:30 I got to sleep.

>

> this is so stressful, I mean I don't sleep much anyway but to have to

> wear yourself out just walking and wiggling your legs. I have actually

> worn myself out to the point that I finally just go to sleep from

> exhaustiion. Is this a side effect of Fibro too???? Or is this just

> another wonderfull thing to deal with??? I keep thinking of and

> the thorn in his side.... Hinky

>

>

> ------------------------------------

>

> 1. While it is wonderful to share our experiences with everyone on the

> list as to what treatments do and don't work for us, pls always check with

> your dr. Some treatments are dangerous when given along with other meds as

> well as to certain health conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is) pls

> don't be afraid to ask for help. It is the first step to trying to make

> that situation better.

>

> 3. To unsubscribe the e-mail is:

> Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member to be feeling bad at

> the same time when it comes to flares and b/c of that potentially take

> something another member says the wrong way. And that includes the things

> that one member may find funny (even if it's laughing at fibro itself) even

> though we who deal with illness whether one such as fibro or multiple

> illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a bad day

> pls let us know so that we can do our best to offer our support.

>

> Have a nice day everyone.

>

[Guest guest]

I think I have the RLS as well. I also experience leg cramps in both legs. About

a week ago I woke up about 5am screaming in pain due to the cramps. I screamed

to my husband to help me. I scared him to death. I could feel my feet going in

different directions and I tried really hard to get out of bed to stand and work

them out but it was like I was paralzed. I couldn't move at all! Of course my

pain doctor referred me to my PCP....so sick of being passed around like a dish

on the dinner table!

Debra B

Gladewater, Texas

Re: Horrible Night/ like torture/Restless legs syndrome?Hinky

Wow that must be miserable. I have it a bit, but sems like my night meds

take care of it. I take seroquel for sleep. Ihope you get to feeling better.

Ty for the well wishes.

Hugs,

>

> Does anyone else out there have restless leg syndrom as well as the

> Fibro???

> I have been on Requip for about 3 years now and they keep having to

> increase the dosage. I now take it all day long (1mg. Tid) and 2mg at

> bed and I'm still getting it now & again. If I forget just one pill

> during the day it starts... I took all of them yesterday and It started

> as soon as I got in bed... Lord I was up walking the floors and

> wiggling my legs and about to scream from being sooo exhausted from it

> all. My husband says. " take another pill " so I did (1mg) and finally

> about 2:30 it eased up. I got into bed and an hour later I woke up with

> my legs just moving all over, here we go again!!!! I took another pill

> and the about 3:30 I got to sleep.

>

> this is so stressful, I mean I don't sleep much anyway but to have to

> wear yourself out just walking and wiggling your legs. I have actually

> worn myself out to the point that I finally just go to sleep from

> exhaustiion. Is this a side effect of Fibro too???? Or is this just

> another wonderfull thing to deal with??? I keep thinking of and

> the thorn in his side.... Hinky

>

>

> ------------ --------- --------- ------

>

> 1. While it is wonderful to share our experiences with everyone on the

> list as to what treatments do and don't work for us, pls always check with

> your dr. Some treatments are dangerous when given along with other meds as

> well as to certain health conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is) pls

> don't be afraid to ask for help. It is the first step to trying to make

> that situation better.

>

> 3. To unsubscribe the e-mail is:

> Fibromyalgia_ Support_Group- unsubscribe@ yahoogroups. com

>

> 4. Also, it is not uncommon for more than one member to be feeling bad at

> the same time when it comes to flares and b/c of that potentially take

> something another member says the wrong way. And that includes the things

> that one member may find funny (even if it's laughing at fibro itself) even

> though we who deal with illness whether one such as fibro or multiple

> illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a bad day

> pls let us know so that we can do our best to offer our support.

>

> Have a nice day everyone.

>

[Guest guest]

Oh, how well I remember those first nights of having restless legs!!

But it wasn't just my legs that were moving, my entire body was

jerking violently!!! And I wasn't the one screaming, it was MY

HUSBAND telling me TO STOP THAT!!!! It got sooo bad that

eventually, if it happened, I would go sleep in the guest room and

finally, I think at some point, we could not sleep in the same bed

because I never knew when it would happen and for the longest time,

he accused me of doing it deliberately!! 18 years later he knows

better and it doesn't happen as often nor as severe as it did but I

can remember lying there trying to just become stiff and I had NO

idea what it was that was causing it. Didn't know anyone else who

had anything like it! Now I don't have it very often and despite the

fact that my body clock is not on the same time as my husband's I am

sleeping in a different room these days. He has told me that on some

of our trips over the past 8 months, that when we have been in a

hotel room with a king size bed, I fall asleep before he does and I

don't move.

I don't know what to tell anyone that might help with that problem --

I may just be taking so many psych meds that my body is more relaxed

or it could be that I have the valium which I can and do take --- and

that I only take at night (and there better not be a doc spying on us

or the DEA but sometimes, I take my daily allotment all at once,

other times I go for days/weeks with out any!)

>

> >

> > Does anyone else out there have restless leg syndrom as well as

the

> > Fibro???

> > I have been on Requip for about 3 years now and they keep having

to

> > increase the dosage. I now take it all day long (1mg. Tid) and

2mg at

> > bed and I'm still getting it now & again. If I forget just one

pill

> > during the day it starts... I took all of them yesterday and It

started

> > as soon as I got in bed... Lord I was up walking the floors and

> > wiggling my legs and about to scream from being sooo exhausted

from it

> > all. My husband says. " take another pill " so I did (1mg) and

finally

> > about 2:30 it eased up. I got into bed and an hour later I woke

up with

> > my legs just moving all over, here we go again!!!! I took another

pill

> > and the about 3:30 I got to sleep.

> >

> > this is so stressful, I mean I don't sleep much anyway but to

have to

> > wear yourself out just walking and wiggling your legs. I have

actually

> > worn myself out to the point that I finally just go to sleep from

> > exhaustiion. Is this a side effect of Fibro too???? Or is this

just

> > another wonderfull thing to deal with??? I keep thinking of

and

> > the thorn in his side.... Hinky

> >

> >

> > ------------ --------- --------- ------

> >

> > 1. While it is wonderful to share our experiences with everyone

on the

> > list as to what treatments do and don't work for us, pls always

check with

> > your dr. Some treatments are dangerous when given along with

other meds as

> > well as to certain health conditions or just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't matter what it

is) pls

> > don't be afraid to ask for help. It is the first step to trying

to make

> > that situation better.

> >

> > 3. To unsubscribe the e-mail is:

> > Fibromyalgia_ Support_Group- unsubscribe@ yahoogroups. com

> >

> > 4. Also, it is not uncommon for more than one member to be

feeling bad at

> > the same time when it comes to flares and b/c of that potentially

take

> > something another member says the wrong way. And that includes

the things

> > that one member may find funny (even if it's laughing at fibro

itself) even

> > though we who deal with illness whether one such as fibro or

multiple

> > illnesses try to keep a sense of humor.

> >

> > 5. Pls let's be gentle with each other, and if you are having a

bad day

> > pls let us know so that we can do our best to offer our support.

> >

> > Have a nice day everyone.

> >