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Re: Ignorant about CFS

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,

Thank you for the links. I will have to check them out tomorrow when I have

time to sit and read and can actually stay awake and comprehend.

Have a great night!

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, all I can tell you is what I have learned on the net and my personal

experience with chronic fatigue. I just find that 98% of the time I am

exhausted beyond belief no matter how much I sleep or rest. IF I wake up on a

very rare occasion feeling " good " , it lasts for about 5 or 6 hours before I feel

like I have not been to bed in days. What little energy I can muster up is

shortlived. It is not the kind of tired where you go to bed and sleep then wake

up refreshed like normal people. You wake up feeling like you have not been to

bed even after 8 or 9 hours of sleep. (I usually sleep, but apparently it is

not the right kind of sleep because I NEVER feel rested).

I have tried energy drinks too. I don't seem to get much out of them though.

But the best ones are the ones with alot of B vitamins. I also pop alot of B12

some days. I really cannot tell that it helps much though.

This " tired " goes back about 20 years ago. I was always tired. It was not

this kind of exhaustion though. It seems as the years went by and the fibro

kicked in, it is a tired beyond belief. People just dont get it. They just say

" well, just sleep in tomorrow " .... That does not rellieve it. Nothing does

sometimes.

Well, let me say that I guess sleep helps some because without it I flare

bigtime like I did today from overdoing yesterday.

Hope this helps,

hugs,

Debra V.

jaimeislove@...> wrote:

If anyone has a good website link about CFS could you send it to me,

please?

I'm not sure if this is something else I may have, but here's a little

background.

In late 2006 I had a personal issue and became very depressed. I could not sleep

and if I did it was only for a couple hours. Since that personal issue became

resolved a month afterwards, I have been soo damn tired during the day that

sometimes I do not get out of bed until 11:00 a.m. Luckily with my job my

schedule is VERY flexible. I'm fine at night and seem to have more energy. But

when I try to go to sleep, I either lay there for hours or I fall asleep and

sleep forever.

It's hard to explain. I just feel so tired. Occassionally I drink one of those

energy drinks (Rockstar coffee flavored) and I feel alright. Other times I use

the B12 and feel ok. Other times without either I feel alright. Then there's the

days where I am just so tired I feel dead.

I also have RLS but not too bad. It really bothers me when I get too tired or

when I lay for too long.

So, if anyone has any info that may help me, I'd appreciate it!

---------------------------------

You rock. That's why Blockbuster's offering you one month of Blockbuster Total

Access, No Cost.

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,

After reading your post, have you ever been checked for sleep apnea?

Because while you may have CFS, it's possible that one of the

underlying causes of your exhaustion could be sleep apnea. It's worth

checking into, that's for sure! I have obstructive sleep apnea and

sleep with a bipap machine every night. I am rested, although I do

get fatigued during the day, especially if I don't get a nap of some

kind.

Darlene

> If anyone has a good website link about CFS could you

send it to me, please?

>

> I'm not sure if this is something else I may have, but here's a

little background.

>

> In late 2006 I had a personal issue and became very depressed. I

could not sleep and if I did it was only for a couple hours. Since

that personal issue became resolved a month afterwards, I have been

soo damn tired during the day that sometimes I do not get out of bed

until 11:00 a.m. Luckily with my job my schedule is VERY flexible.

I'm fine at night and seem to have more energy. But when I try to go

to sleep, I either lay there for hours or I fall asleep and sleep

forever.

>

> It's hard to explain. I just feel so tired. Occassionally I drink

one of those energy drinks (Rockstar coffee flavored) and I feel

alright. Other times I use the B12 and feel ok. Other times without

either I feel alright. Then there's the days where I am just so tired

I feel dead.

>

> I also have RLS but not too bad. It really bothers me when I get

too tired or when I lay for too long.

>

> So, if anyone has any info that may help me, I'd appreciate it!

>

>

>

> ---------------------------------

> You rock. That's why Blockbuster's offering you one month of

Blockbuster Total Access, No Cost.

>

>

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