RE: Pain and narcotics.... hydrocodone/oxycontin ect../Debra

[Guest guest]

Well, I'm one of those unfortunately people who have no pain meds. Is my

doctor and ass? Yes, I believe so. I've developed this new thing with

either sleep walking or sleep fighting. but I have no idea who I'm fighting

with. I've had a serious bout of chronic fatigue lately and somehow got up

in the middle of the night and all I remember is thrashing around. My ribs

are bruised again. same one as before I have nothing to ease it.

I just sit and cry because I have no idea of where to go for help. I hurt

so much from the fibro and then to have this mess on top of it has put me

over the edge. I just sneezed a little while ago and all I could do was

cry. It hurts so much. I also hurt my right knee (last time it was the

left one). At least this time I didn't get black eyes. I've always been

active in my sleep. toss, turn, wake up with head at the foot of the bed or

sideways across the bed, but this is getting ridiculous. What do I have to

do next? Land on my head and never wake up. And the fact that I get

nothing for the pain is ridiculous. I'm frustrated, in pain, and would give

my left ribs (they're the ones that hurt) to get something to help.

I see the doc on Friday and I'm afraid I'm going to lose it. My appointment

is early (8:20am) and usually I'm not that great in the morning, so I can't

guarantee I'll have a doctor after that.

She even had an ANA (indicating some autoimmune problem) come back positive

and sent me to a rheumatologist (after being on prednisone) and my tests

came back normal no one is doing anything.

I used to be better off when I was self medicating with alcohol. can't now

because of liver problems.

I'm frustrated. I think they are afraid to prescribe anything because I had

problems with fentanyl . well, from one of those " law commercials " I'm not

the only one. I almost died from it. seems to me the solution is easy.

don't give me fentanyl, but give me something else.

I have fought way to hard this past year to be able to just walk and be on

my own without someone checking on me daily. No one knows what I have gone

through to get to this point, I've done tons of stretching, I've eaten good

food, I do what I'm supposed to and it's like no one gives a crap.

I'm sorry this turned into a tirade but once I got started, I started to cry

and am now sitting here in a wet, sobbing, mess.

Thanks for listening.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of debra van

ness

Sent: Wednesday, April 02, 2008 1:40 PM

To: Fibromyalgia_Support_Group

Subject: Pain and narcotics.... hydrocodone/oxycontin ect..

Ok, I think that there may come a time with most of us that we have to take

narcotics for pain. I have been on hydrocodone now for about a year and

half. No, it does not do what it use to for the pain. BUT.... when I skip a

dose for too long, my body really tells me with fibro pain. The pain is

unbelievably worse. So, on that take, I guess it is helping me still.

I have the same fear expressed here by some. yeah, what happens when I am on

narcotic meds and have to keep stepping up the ladder to oxy or methadone?

Well, I fear that it will eventually quit working too. Then What? Or if I go

somewhere and don't have the hydrocodone or my doc discontinues it, then

what kind of withdrawals will I go through?

It is like being between a rock and a hard place.

BUT.... I do not think anyone should have to live with this crap without

proper pain control even if it means strong narcotics. I would not function

without it. Not because I am an addict, but because the fibro will rear his

ugly head 10 fold.

Do what you have to though. Do not suffer when there are medications that

were made for people IN PAIN. I know of all the bad rap about this. The

street pushers and people who use this medicine for a " high " . If it were not

for dumba$$es like that, we might not be looked at with such stigma. But we

take it for REAL PAIN. So, let it be so.

love and hugs,

Debra V.

---------------------------------

You rock. That's why Blockbuster's offering you one month of Blockbuster

Total Access, No Cost.

[Guest guest]

Oh Tigger,

I am so very sorry. Honey, have you tried other doctors??? Damn I would just

keep going till I found one that would give me some pain relief. That is one

thing that doctors are really ignorant about and that is pain management. It

makes me so angry..what kind of a doctor would let you suffer when he could give

you some relief in the form of a little pill. He is an a$$hole in my opinion.

Maybe it would help if you kicked his a$$. I wish there was something I could do

for you. Do you have sleeping pills??? You are probably thrashing around because

of the pain! I am disgusted. Good luck and let us know.

Love,

/Mi

Pain and narcotics.... hydrocodone/oxycontin ect..

Ok, I think that there may come a time with most of us that we have to take

narcotics for pain. I have been on hydrocodone now for about a year and

half. No, it does not do what it use to for the pain. BUT.... when I skip a

dose for too long, my body really tells me with fibro pain. The pain is

unbelievably worse. So, on that take, I guess it is helping me still.

I have the same fear expressed here by some. yeah, what happens when I am on

narcotic meds and have to keep stepping up the ladder to oxy or methadone?

Well, I fear that it will eventually quit working too. Then What? Or if I go

somewhere and don't have the hydrocodone or my doc discontinues it, then

what kind of withdrawals will I go through?

It is like being between a rock and a hard place.

BUT.... I do not think anyone should have to live with this crap without

proper pain control even if it means strong narcotics. I would not function

without it. Not because I am an addict, but because the fibro will rear his

ugly head 10 fold.

Do what you have to though. Do not suffer when there are medications that

were made for people IN PAIN. I know of all the bad rap about this. The

street pushers and people who use this medicine for a " high " . If it were not

for dumba$$es like that, we might not be looked at with such stigma. But we

take it for REAL PAIN. So, let it be so.

love and hugs,

Debra V.

---------------------------------

You rock. That's why Blockbuster's offering you one month of Blockbuster

Total Access, No Cost.

[Guest guest]

Thank you. I don't have many choices of doctors because I don't have

insurance right now and I'm at a sliding scale there. I'm at a loss

completely as to what to do and I have a feeling with me having an 8:20am

appointment she will not see me at my best. I may very well lose a doctor

because I've just had my full of it.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of

Andersen

Sent: Wednesday, April 02, 2008 8:46 PM

To: Fibromyalgia_Support_Group

Subject: Re: Pain and narcotics.... hydrocodone/oxycontin ect../Debra

Oh Tigger,

I am so very sorry. Honey, have you tried other doctors??? Damn I would just

keep going till I found one that would give me some pain relief. That is one

thing that doctors are really ignorant about and that is pain management. It

makes me so angry..what kind of a doctor would let you suffer when he could

give you some relief in the form of a little pill. He is an a$$hole in my

opinion. Maybe it would help if you kicked his a$$. I wish there was

something I could do for you. Do you have sleeping pills??? You are probably

thrashing around because of the pain! I am disgusted. Good luck and let us

know.

Love,

/Mi

Pain and narcotics.... hydrocodone/oxycontin ect..

Ok, I think that there may come a time with most of us that we have to take

narcotics for pain. I have been on hydrocodone now for about a year and

half. No, it does not do what it use to for the pain. BUT.... when I skip a

dose for too long, my body really tells me with fibro pain. The pain is

unbelievably worse. So, on that take, I guess it is helping me still.

I have the same fear expressed here by some. yeah, what happens when I am on

narcotic meds and have to keep stepping up the ladder to oxy or methadone?

Well, I fear that it will eventually quit working too. Then What? Or if I go

somewhere and don't have the hydrocodone or my doc discontinues it, then

what kind of withdrawals will I go through?

It is like being between a rock and a hard place.

BUT.... I do not think anyone should have to live with this crap without

proper pain control even if it means strong narcotics. I would not function

without it. Not because I am an addict, but because the fibro will rear his

ugly head 10 fold.

Do what you have to though. Do not suffer when there are medications that

were made for people IN PAIN. I know of all the bad rap about this. The

street pushers and people who use this medicine for a " high " . If it were not

for dumba$$es like that, we might not be looked at with such stigma. But we

take it for REAL PAIN. So, let it be so.

love and hugs,

Debra V.

---------------------------------

You rock. That's why Blockbuster's offering you one month of Blockbuster

Total Access, No Cost.