Re: New Lyrica commercial?---yeah, SHOWERS????????????

[Guest guest]

In a message dated 4/7/2008 11:56:32 P.M. Pacific Daylight Time,

ladybug75901@... writes:

No mention of the over exhaustion so bad you can hardly take a shower some

days.

I go FIVE days without taking a bath. Horrible isn't it. By the time that

I get out of the tub, I am so exhausted, I pay for it that day and the next.

I can't take showers, because my balance is so bad that I have had terrible

falls in the shower.

Love and gentle hugs,

Debi/Central Cal.-55

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[Guest guest]

In a message dated 4/8/2008 12:13:13 A.M. Pacific Daylight Time,

ladybug75901@... writes:

Poor Debi. I hate that for you.

In between times, I take a sponge bath and yet that is hard. Why won't they

tell it like it is?

Love and gentle hugs,

Debi/Central Cal.-55

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[Guest guest]

In a message dated 4/8/2008 12:50:54 A.M. Pacific Daylight Time,

lovinglifeinnv@... writes:

After that my hair is driving me nuts so I give in.

My neck and shoulders are so bad that I have to have help to get my hair

washed. Yeah, I know I'm just playing it up to the hilt. LOL.

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[Guest guest]

Poor Debi. I hate that for you. NO, the commercial does not tell even 1/4 of

the true story. It is getting me annoyed. It just makes us look like we are in

a " little discomfort " that can be cured with a pill.

love ya,

Debra V.

DebiAC012553@... wrote:

In a message dated 4/7/2008 11:56:32 P.M. Pacific Daylight Time,

ladybug75901@... writes:

No mention of the over exhaustion so bad you can hardly take a shower some

days.

I go FIVE days without taking a bath. Horrible isn't it. By the time that

I get out of the tub, I am so exhausted, I pay for it that day and the next.

I can't take showers, because my balance is so bad that I have had terrible

falls in the shower.

Love and gentle hugs,

Debi/Central Cal.-55

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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[Guest guest]

I've been known to go 2 1/2 days. When I'm so sick I can't get out of bed.

After that my hair is driving me nuts so I give in.

Angie Harley Mama Double-D

Carson City, NV; Single, five children (3 at home), 2 dogs, 4 cats, snow skiing,

camping, Harley Rider, Lone Wolf, Blue Thong Society/High Sierra Thong Snappers

member, LFA Advocate, independent, opinionated, outspoken, and open minded.

" It's always something. " ~~~Gilda Radner

" While we have the gift of life, it seems to me the only tragedy is to allow

part of us to die - whether it is our spirit,our creativity, or our glorious

uniqueness. " ~~~Gilda Radner

http://www.mybloglog.com/buzz/members/AGBlog/

http://360.yahoo.com/lovinglifeinnv

http://www.myspace.com/amkg

http://doripost.agrato.info/

http://wine-and-chocolate.blogspot.com/

http://weblog.xanga.com/purplepassionate

http://www.revolutionhealth.com/blogs/angiemg

http://www.facebook.com/profile.php?id=592316375

http://health.groups.yahoo.com/group/LupusSurvivorsU/

Re: New Lyrica commercial?---yeah, SHOWERS????????????

In a message dated 4/7/2008 11:56:32 P.M. Pacific Daylight Time,

ladybug75901@ yahoo.com writes:

No mention of the over exhaustion so bad you can hardly take a shower some

days.

I go FIVE days without taking a bath. Horrible isn't it. By the time that

I get out of the tub, I am so exhausted, I pay for it that day and the next.

I can't take showers, because my balance is so bad that I have had terrible

falls in the shower.

Love and gentle hugs,

Debi/Central Cal.-55

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protect your friends from email address harvesters which can lead to more

Spam, unwanted mail, and even viruses.

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addresses.

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0016)

[Guest guest]

In a message dated 4/8/2008 3:44:57 A.M. Pacific Daylight Time,

zimmy2@... writes:

I don't know as I could get down and up out of the tub every day

either. But geez, for your soul as well as your body, I hope you can

find a way to bathe daily. It's so easy to get to where we don't

take care of ourselves. I speak for myself, but it's crucial that I

pull myself out and get cleaned up daily, even if I go back to bed

afterwards.

Z

Thank you, hon. Like I said later, I do at least get sponge baths on a

daily basis. So when I am feeling stronger, I deal with a real bath.

Love you,

Debi in Ca.

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[Guest guest]

> I go FIVE days without taking a bath. Horrible isn't it. By the

> time that

> I get out of the tub, I am so exhausted, I pay for it that day and

> the next.

> I can't take showers, because my balance is so bad that I have had

> terrible

> falls in the shower.

Debi,

Can you not get a shower chair? There are little white stools that

you can set in the shower and sit on. I didn't have one when I had

my knee replacements, but I used a wooden four-legged stool covered

by a trash bag.

I also had handicapped rails installed some years ago: a horizontal

one on the side of the tub, and a vertical one where I can grasp it

to step into the tub. Even though I no longer have as bad mobility

issues, and am no longer super morbidly obese, I still grasp that

vertical rail when I get in and out. I also use a bath mat so I

don't slip.

I don't know as I could get down and up out of the tub every day

either. But geez, for your soul as well as your body, I hope you can

find a way to bathe daily. It's so easy to get to where we don't

take care of ourselves. I speak for myself, but it's crucial that I

pull myself out and get cleaned up daily, even if I go back to bed

afterwards.

Z

[Guest guest]

Try for everyday but more like every other day. the lady in that Lyrica

commercial does not even fit the bill. musles ached,so tender to the touch "

LMAO.

[Guest guest]

You know what aggravates me about those stupid commercials? Aside

from the fact that it doesn't show us as we really are and can be -

it makes us seem as though we'll be magically cured by taking a

pill......and if we " don't " receive relief, well, then, we are

obviously nuts.

Darlene

>

>

> In a message dated 4/7/2008 11:56:32 P.M. Pacific Daylight Time,

> ladybug75901@... writes:

>

> No mention of the over exhaustion so bad you can hardly take a

shower some

> days.

>

> I go FIVE days without taking a bath. Horrible isn't it. By the

time that

> I get out of the tub, I am so exhausted, I pay for it that day and

the next.

> I can't take showers, because my balance is so bad that I have had

terrible

> falls in the shower.

>

>

> Love and gentle hugs,

> Debi/Central Cal.-55

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> Be a good e-mail buddy, and ALWAYS

> protect your friends from email address harvesters which can lead

to more

> Spam, unwanted mail, and even viruses.

> Copy and paste forwards into a new email and place parenthesis

around the

> addresses.

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> **************Planning your summer road trip? Check out AOL Travel

Guides.

> (http://travel.aol.com/travel-guide/united-states?

ncid=aoltrv00030000000016)

>

>

[Guest guest]

I use these big wipes when I cannot take a shower. They have aloe in them and

they make me feel fresh. You can order them online.

Annie

DebiAC012553@... wrote:

In a message dated 4/8/2008 3:44:57 A.M. Pacific Daylight Time,

zimmy2@... writes:

I don't know as I could get down and up out of the tub every day

either. But geez, for your soul as well as your body, I hope you can

find a way to bathe daily. It's so easy to get to where we don't

take care of ourselves. I speak for myself, but it's crucial that I

pull myself out and get cleaned up daily, even if I go back to bed

afterwards.

Z

Thank you, hon. Like I said later, I do at least get sponge baths on a

daily basis. So when I am feeling stronger, I deal with a real bath.

Love you,

Debi in Ca.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Be a good e-mail buddy, and ALWAYS

protect your friends from email address harvesters which can lead to more

Spam, unwanted mail, and even viruses.

Copy and paste forwards into a new email and place parenthesis around the

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~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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[Guest guest]

I am the same way. I have a chair for the shower but I can't stand to be in

it.

I cry the whole time I shower because to me it is the most humiliating thing

I have done so far. I am so fat - even in the chair I can't lift my feet to

wash them well.

It does help but it is still exhausting. Anyway, gt the chair it does help

when you are

up to taking the shower.

>

> On Apr 8, 2008, at 3:03 AM, DebiAC012553@...

wrote:

>

> > I go FIVE days without taking a bath. Horrible isn't it. By the

> > time that

> > I get out of the tub, I am so exhausted, I pay for it that day and

> > the next.

> > I can't take showers, because my balance is so bad that I have had

> > terrible

> > falls in the shower.

>

> Debi,

>

> Can you not get a shower chair? There are little white stools that

> you can set in the shower and sit on. I didn't have one when I had

> my knee replacements, but I used a wooden four-legged stool covered

> by a trash bag.

>

> I also had handicapped rails installed some years ago: a horizontal

> one on the side of the tub, and a vertical one where I can grasp it

> to step into the tub. Even though I no longer have as bad mobility

> issues, and am no longer super morbidly obese, I still grasp that

> vertical rail when I get in and out. I also use a bath mat so I

> don't slip.

>

> I don't know as I could get down and up out of the tub every day

> either. But geez, for your soul as well as your body, I hope you can

> find a way to bathe daily. It's so easy to get to where we don't

> take care of ourselves. I speak for myself, but it's crucial that I

> pull myself out and get cleaned up daily, even if I go back to bed

> afterwards.

>

> Z

>

>

[Guest guest]

>

> I am the same way. I have a chair for the shower but I can't stand

to be in

> it.

> I cry the whole time I shower because to me it is the most

humiliating thing

>

The part I literally -hate- about Fibromyalgia is that it infringes on

my " dignity " , we all have our dignity and some of it has to be let go

or modified in some manner to cope with Fibronyalgia and to have

quality of life.

Years back was the last time I was able to take a bath, the mechanics

of climbing into the tub became impossible. Now it's all showers,...no

more " rubber ducky " songs although I supose I could hang a rubber ducky

by the shower head, it's not the same.

[Guest guest]

> I am the same way. I have a chair for the shower but I can't stand

> to be in

> it.

> I cry the whole time I shower because to me it is the most

> humiliating thing

>

> I have done so far. I am so fat - even in the chair I can't lift

> my feet to

> wash them well.

>

> It does help but it is still exhausting. Anyway, gt the chair it

> does help

> when you are

> up to taking the shower.

Geez. This is like my grandmother walking down the street holding

her cane in the air to show everybody she didn't need it.

I hope that you will stop crying from humiliation for using the

shower chair. For pete's sake, is anyone going to *know* that you

use one? Use what you need to when you need it to do things. What

on earth does it matter if you can't do things the way you used to?

As for washing your feet, get a long handled brush. It feels

wonderful. If you can't reach to wash your posterior, use a longer

wash cloth or a hand towel and stuff it in various crevices to soak

while you're sitting, and use a shower massage to rinse. If you

can't stand to do the dishes or load and unload the dishwasher, or to

chop vegetables and prepare food, get a stool for the kitchen. If

your posterior doesn't fit on a small sized stool, get one with a

bigger seat. If carrying laundry hampers is to hard, put the hamper

on a luggage cart and wheel it. If it's too painful to walk around

the bed repeatedly to make it, learn to make it one side at a time.

Maybe it's because I've been so badly mobility impaired, and was

super morbidly obese for so many years - I've found many ways over

the years to accomplish tasks that I could no longer do in a

conventional way. There's a great deal of satisfaction in coming up

with clever ways to accomplish ordinary tasks that most people take

for granted. Some people will never understand why others do things

differently. I remember one co-worker calling me lazy because I e-

mailed or called instead of walking over to his office; he didn't

care that every step was excruciating for me. The heck with him.

So use the danged shower chair and stop crying about it!

Z

[Guest guest]

>

>>

>> I am the same way. I have a chair for the shower but I can't stand

> to be in

>> it.

>> I cry the whole time I shower because to me it is the most

> humiliating thing

>>

> The part I literally -hate- about Fibromyalgia is that it infringes on

> my " dignity " , we all have our dignity and some of it has to be let go

> or modified in some manner to cope with Fibronyalgia and to have

> quality of life.

>

I have to disagree here. My dignity does not depend on the way I do

things, but the end result. And there are value judgments to make.

Is the dignity of standing to load the dishwasher, and possibly not

being able to do it, greater than the dignity of having someone walk

into my house and not see a mountain of dishes in the sink, because I

sat on a stool to load the dishwasher? Is the dignity of avoiding

the grocery store because I can't make it through the store, and

having an empty fridge and pantry, greater than the dignity of

dishing up a nourishing meal for myself because I rode a cart through

the store? Is the dignity of wearing dirty, smelly, wrinkled

clothing because I couldn't get the laundry hamper to the laundry

room greater than the dignity of pulling clean clothing out of a

drawer because I wheeled the hamper to the laundry room on a luggage

cart? Or is foul body odor somehow more dignified than doing

whatever I need to do, standing or sitting, to get clean?

I was severely mobility impaired for years, and super morbidly obese

even longer. Being able to walk and stand, and being a normal size

is new to me and hasn't yet lost its novelty, nor have I forgotten

what it takes to function when mobility impaired or obese. I lost my

mobility during those years, not my dignity.

Z

> Years back was the last time I was able to take a bath, the mechanics

> of climbing into the tub became impossible. Now it's all showers,...no

> more " rubber ducky " songs although I supose I could hang a rubber

> ducky

> by the shower head, it's not the same.

>

[Guest guest]

,

I have found that since my hand/arm strength isn't what it used to

be, even in such a short period of time, that rather than " overload "

myself, I will make multiple trips - for example, if I know stuff has

to go into our bedroom and I obviously know I will make more than one

trip to said bathroom off master bedroom because of the water pill I

take, I kind of " line things up " on my kitchen counter and as I make

a trip to the restroom, I take stuff in and put it up. Same with the

bed. First thing in the morning, I am too darned stiff to make the

bed at all so I leave it for one of " those trips " . I cannot stand for

long periods anymore, but I empty and put up all I can and then come

back to it. I may make my DH's coffee on one trip (the kitchen is on

the way....lol), the kids' lunches coming back from another. My

philosophy has changed a wee bit - as long as I get it done, does it

matter if it takes me a good portion of the day, on and off, to do

it? Absolutely not. As for the floors, DH takes care of those because

they set off such severe spasms that it takes a muscle relaxer AND a

painkiller to get 'em gone. So I do the frou-frou stuff, he does the

floors.

And next year, when we redo our bathroom (going to expand the shower

and take out the tub), I am already asking for the bars to be put in

and also, perhaps a ledge/seat; I've seen them on those home shows so

I know they are available.

I know that no matter if we are male or female, we have to get over

the embarrassment of us needing to utilize things to get stuff done.

I will also do what I can to make myself as healthy as possible (i.e.

continue to lose weight); it won't help my pain other than there

won't be as much swelling and therefore as much inflammation, but

I'll feel better about me. And since this disease has taken so much

already, I need to feel good about me and may be able to add more on

to what I am capable of!

I like the idea of a foot brush thingie; I am going to put that on my

list. As a diabetic, I have to be careful of my feet but they gotta

be clean too!

Darlene

>

> > I am the same way. I have a chair for the shower but I can't

stand

> > to be in

> > it.

> > I cry the whole time I shower because to me it is the most

> > humiliating thing

> >

> > I have done so far. I am so fat - even in the chair I can't

lift

> > my feet to

> > wash them well.

> >

> > It does help but it is still exhausting. Anyway, gt the chair

it

> > does help

> > when you are

> > up to taking the shower.

>

>

> Geez. This is like my grandmother walking down the street holding

> her cane in the air to show everybody she didn't need it.

>

> I hope that you will stop crying from humiliation for using the

> shower chair. For pete's sake, is anyone going to *know* that you

> use one? Use what you need to when you need it to do things.

What

> on earth does it matter if you can't do things the way you used

to?

> As for washing your feet, get a long handled brush. It feels

> wonderful. If you can't reach to wash your posterior, use a

longer

> wash cloth or a hand towel and stuff it in various crevices to

soak

> while you're sitting, and use a shower massage to rinse. If you

> can't stand to do the dishes or load and unload the dishwasher, or

to

> chop vegetables and prepare food, get a stool for the kitchen. If

> your posterior doesn't fit on a small sized stool, get one with a

> bigger seat. If carrying laundry hampers is to hard, put the

hamper

> on a luggage cart and wheel it. If it's too painful to walk

around

> the bed repeatedly to make it, learn to make it one side at a time.

>

> Maybe it's because I've been so badly mobility impaired, and was

> super morbidly obese for so many years - I've found many ways over

> the years to accomplish tasks that I could no longer do in a

> conventional way. There's a great deal of satisfaction in coming

up

> with clever ways to accomplish ordinary tasks that most people

take

> for granted. Some people will never understand why others do

things

> differently. I remember one co-worker calling me lazy because I e-

> mailed or called instead of walking over to his office; he didn't

> care that every step was excruciating for me. The heck with him.

>

> So use the danged shower chair and stop crying about it!

>

> Z

>

>

>