Re: Something good to post

[Guest guest]

Shari,

Welcome to the group! That's great you found a great dr. That is so difficult

for all of us, but must be an even bigger challenge to get one to listen to you

and treat you with what you need despite your past addiction. I'm sure being a

counselor now helps them realize you can handle it. I can't imagine going thru

this with no pain meds.....

Take Care,

Jill

Something good to post

Hi everyone, I'm new to the group. I was diagnosed with fibro last

month and have been having all those baffling symptoms for nearly 3

years. I got so frustrated many times, with dr's...with

myself...just

couldn't figure out what was up with me and somehow figured it was my

fault or " all in my head " . The diagnosis was a bit of a relief, but

I was still having trouble finding a doctor who would treat my pain

aggressively. Ironically, I am a recovering drug addict and

addictions counselor. So I understand to a point why they might be

vigilent about prescribing narcotics. However, I know from personal

experience that chronic pain is a huge trigger for relapse.

Anyway, I had a horrible flare day on Wednesday. I showed up at my

PCPs office twice for pain shots from the NP. First shot was torodol

and it did nothing, 2nd shot was nubain, and it only relieved the

pain for 3 hrs, so I had to call the dr. on call who put me on a

schedule of percocet for the night. It was a rough night.

So for the good news...I followed up w/ my PCP on Thursday as the

pain was abating. I was able to talk to him and he listened. He was

compassionate in prescribing pain medication for the days of acute

pain, and listened to me and complied when I suggested lidocaine

patches for my neck pain. For the first time in 3 yrs, I felt heard,

I felt compassion, and I felt as though I had a medical dr. who will

work WITH me. I need that kind of positive support to learn to live

and be at peace with having this syndrome/ailment that most likely

will be with me for a long time. It's hard to remember on the days

the pain is bad that I am determined to live the best life I can,

regardless of having fibro. So maybe it's a message to slow down

some

Thanks to all who participate in this group.

Shari

[Guest guest]

Shari,

First of all, welcome to the group. Secondly, I am glad you have

found a group of doctors/PCP who will take your past into

consideration, but also realize that you CANNOT live with pain the

rest of your life, or like you said, you will relapse into a

lifestyle you have worked very hard to get beyond. And that was a

challenge (my brother is a recovered addict/alcoholic as well) for

you. Keep up the fight, my friend, one day at a time.

Today, despite waking up froggy (probably the weather, I'll do a

breathing treatment to make sure my asthma and COPD aren't acting

up), I do not hurt. Anywhere. BUT....having read of so many who " did

too much " , I will not do too much. The weather is crummy today. I

think part of it was my DH let me sleep until I " naturally " woke up.

I think that is some of our problem - we don't get sufficient sleep!

Darlene

> Something good to post

>

>

> Hi everyone, I'm new to the group. I was diagnosed with fibro

last

> month and have been having all those baffling symptoms for nearly

3

> years. I got so frustrated many times, with dr's...with

> myself...just

> couldn't figure out what was up with me and somehow figured it

was my

> fault or " all in my head " . The diagnosis was a bit of a relief,

but

> I was still having trouble finding a doctor who would treat my

pain

> aggressively. Ironically, I am a recovering drug addict and

> addictions counselor. So I understand to a point why they might

be

> vigilent about prescribing narcotics. However, I know from

personal

> experience that chronic pain is a huge trigger for relapse.

>

> Anyway, I had a horrible flare day on Wednesday. I showed up at

my

> PCPs office twice for pain shots from the NP. First shot was

torodol

> and it did nothing, 2nd shot was nubain, and it only relieved the

> pain for 3 hrs, so I had to call the dr. on call who put me on a

> schedule of percocet for the night. It was a rough night.

>

> So for the good news...I followed up w/ my PCP on Thursday as the

> pain was abating. I was able to talk to him and he listened. He

was

> compassionate in prescribing pain medication for the days of

acute

> pain, and listened to me and complied when I suggested lidocaine

> patches for my neck pain. For the first time in 3 yrs, I felt

heard,

> I felt compassion, and I felt as though I had a medical dr. who

will

> work WITH me. I need that kind of positive support to learn to

live

> and be at peace with having this syndrome/ailment that most

likely

> will be with me for a long time. It's hard to remember on the

days

> the pain is bad that I am determined to live the best life I can,

> regardless of having fibro. So maybe it's a message to slow down

> some

>

> Thanks to all who participate in this group.

> Shari

>

>

>

>

>

>

[Guest guest]

Hi Shari,

I'm so glad you are here. I am also thrilled that you have a wonderful doctor. I

am fortunate too in that my pcp is willing to work with me and she takes my

suggestions pretty well too. We seem to be a team in this which is what you sure

do need. Looking forward to getting to know you.

/Mi

Something good to post

Hi everyone, I'm new to the group. I was diagnosed with fibro last

month and have been having all those baffling symptoms for nearly 3

years. I got so frustrated many times, with dr's...with

myself...just

couldn't figure out what was up with me and somehow figured it was my

fault or " all in my head " . The diagnosis was a bit of a relief, but

I was still having trouble finding a doctor who would treat my pain

aggressively. Ironically, I am a recovering drug addict and

addictions counselor. So I understand to a point why they might be

vigilent about prescribing narcotics. However, I know from personal

experience that chronic pain is a huge trigger for relapse.

Anyway, I had a horrible flare day on Wednesday. I showed up at my

PCPs office twice for pain shots from the NP. First shot was torodol

and it did nothing, 2nd shot was nubain, and it only relieved the

pain for 3 hrs, so I had to call the dr. on call who put me on a

schedule of percocet for the night. It was a rough night.

So for the good news...I followed up w/ my PCP on Thursday as the

pain was abating. I was able to talk to him and he listened. He was

compassionate in prescribing pain medication for the days of acute

pain, and listened to me and complied when I suggested lidocaine

patches for my neck pain. For the first time in 3 yrs, I felt heard,

I felt compassion, and I felt as though I had a medical dr. who will

work WITH me. I need that kind of positive support to learn to live

and be at peace with having this syndrome/ailment that most likely

will be with me for a long time. It's hard to remember on the days

the pain is bad that I am determined to live the best life I can,

regardless of having fibro. So maybe it's a message to slow down

some

Thanks to all who participate in this group.

Shari

[Guest guest]

Welcome to you, Shari. Nice to have you with us.

Jeanne in WI

Hi everyone, I'm new to the group. I was diagnosed with fibro last month and

have been having all those baffling symptoms for nearly 3 years. I got so

frustrated many times, with dr's...with myself...just couldn't figure out what

was up with me and somehow figured it was my fault or " all in my head " . The

diagnosis was a bit of a relief, but I was still having trouble finding a doctor

who would treat my pain aggressively. Ironically, I am a recovering drug addict

and addictions counselor. So I understand to a point why they might be vigilent

about prescribing narcotics. However, I know from personal

experience that chronic pain is a huge trigger for relapse.

Anyway, I had a horrible flare day on Wednesday. I showed up at my PCPs

office twice for pain shots from the NP. First shot was torodol and it did

nothing, 2nd shot was nubain, and it only relieved the pain for 3 hrs, so I had

to call the dr. on call who put me on a

schedule of percocet for the night. It was a rough night.

So for the good news...I followed up w/ my PCP on Thursday as the pain was

abating. I was able to talk to him and he listened. He was compassionate in

prescribing pain medication for the days of acute

pain, and listened to me and complied when I suggested lidocaine patches for

my neck pain. For the first time in 3 yrs, I felt heard, I felt compassion, and

I felt as though I had a medical dr. who will work WITH me. I need that kind of

positive support to learn to live and be at peace with having this

syndrome/ailment that most likely will be with me for a long time. It's hard to

remember on the days the pain is bad that I am determined to live the best life

I can, regardless of having fibro. So maybe it's a message to slow down some

Thanks to all who participate in this group.

Shari

[Guest guest]

Hi Shari,

Welcome to the group. With your new dx your head must really be spinning. It

took me and most of us a long time for doctors to eliminate just about every

other disease before settling on the fibro dx. But at least we know we don't

have the others.

I'm sorry for your past troubles and hope that a pain solution can be found.

I'm sure that is hard to deal with and that chronic pain would be a relapse

trigger. I'm also sorry you had to have such a rough night and tough time with

everything.

I'm so glad you have found a PCP you can talk to and who will listen. I

finally found one last June who is like that. It helps immensely to have

someone try to understand.

It probably would be good to slow down some, but maybe it won't require you to

stop too much. You can still live the best life you can. A positive attitude

like yours is the best medicine - after the pain is controlled.

Take care and make yourself at home. Just jump in anywhere.

Marti

shari_79_2000 saring@...> wrote:

Hi everyone, I'm new to the group. I was diagnosed with fibro last

month and have been having all those baffling symptoms for nearly 3

years. I got so frustrated many times, with dr's...with

myself...just

couldn't figure out what was up with me and somehow figured it was my

fault or " all in my head " . The diagnosis was a bit of a relief, but

I was still having trouble finding a doctor who would treat my pain

aggressively. Ironically, I am a recovering drug addict and

addictions counselor. So I understand to a point why they might be

vigilent about prescribing narcotics. However, I know from personal

experience that chronic pain is a huge trigger for relapse.

Anyway, I had a horrible flare day on Wednesday. I showed up at my

PCPs office twice for pain shots from the NP. First shot was torodol

and it did nothing, 2nd shot was nubain, and it only relieved the

pain for 3 hrs, so I had to call the dr. on call who put me on a

schedule of percocet for the night. It was a rough night.

So for the good news...I followed up w/ my PCP on Thursday as the

pain was abating. I was able to talk to him and he listened. He was

compassionate in prescribing pain medication for the days of acute

pain, and listened to me and complied when I suggested lidocaine

patches for my neck pain. For the first time in 3 yrs, I felt heard,

I felt compassion, and I felt as though I had a medical dr. who will

work WITH me. I need that kind of positive support to learn to live

and be at peace with having this syndrome/ailment that most likely

will be with me for a long time. It's hard to remember on the days

the pain is bad that I am determined to live the best life I can,

regardless of having fibro. So maybe it's a message to slow down

some

Thanks to all who participate in this group.

Shari

---------------------------------

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