Re: Newbie, New Diagnosis and questions - Joe

[Guest guest]

Hi Joe!!

Welcome to our group. We are a wonderful group, friendly, and lots of

experience regarding our awful disease.

You did a wonderful job of describing the pain. I am glad your sons " get it " .

That is wonderful.

Looking forward to getting to know you more.

Hugs,

Annie

Joe Marshall joebliss66@...> wrote:

Greets!

I am a 42 year old guy who started having mystery pains in the right forearm

about 4 months ago before they went everywhere about a month ago. My

rheumatologist says that after boatloads of tests, I have fibro starting up.

I have to go through a couple more months for the insurance companies for

the official diagnosis so right now we are going with myofagial (sp?) pain

and some other non-specific thing, but I am in my first flare with a lot of

emotion, pain and confusion.

I am sure everyone here is familiar with the horror stories about being

doubled over and paralyzed in pain for 5 minutes because it feels like your

arm is splitting because a cold wind caught it in front of your children, or

waking up with you ribs and arms hurting like nuts for no reason, the first

time experiencing your body being unable to do the things you like to do

best intermittently, like play guitar because the fingers are locking and

painful or the forearm is killing, or the body strength is tapped, docs

scrambling trying to figure out how to control the pain and try to make

things somewhat " normal. " I'm left with questions like " What is happening

to me? What is going to happen to me? When will this flare end? And why

won't this pinch in my neck go away when the rest of the pain subsides

during the day?

I am trying to go through all of this pretty gracefully and with as much

hope as I can, but sometimes I get so angry about it. I don’t blame anyone

or anything, but the " why this have to happen " question is obviously on my

mind. Knowing friends who have had it for a long time and are pretty

debilitated is quite scary.

I'm trying to educate myself, but right now I am just trying to hang on and

ride this thing out. I am moving form OH to FL this year to get myself out

of the cold (the cold wrecks me), and I know I have to change my lifestyle,

but what do I do, physically and psychologically to make this easier on

myself to accept and to cope with?

Thanks for listening. I figure this would be THE place where people would

understand, because most of my family does not, other than my sons.

Deep breath,

~Joe

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1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr. Some

treatments are dangerous when given along with other meds as well as to certain

health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.