Re: New here- overwhelmed- been sick my whole life/Wenzdai

[Guest guest]

>

> Just wanted to let yu know i am out here and appreciate this site.

I am

> feeling very sick today- wearing dark sunglasses in the house. I

tried

> to figure out when it all started. This week I feel like i did

during

> the months after i had mumps and meningitis at age 12. Last week

I

> had dark circles under my eyes just like in my school photo when I

was 9

> and in some of my baby pictures (allergies?) I have allways had a

hard

> time falling asleep and a hard time waking up (even if I sleep 10

> hours)- I remember my parents saying I must be the only child on

earth

> who had to be dragged out of bed on christmas morning whining " just

10

> more minutes,please.' -it was a running gag and became a favorite

> family story. Before that I had early childhood malnutrition and

> rickets. Very small and not much hair,one photo shows me eating snow

> (Iwas hungry). My parents dissagree about my age. Dad says Iwas

born a

> year earlier than mom says and it's hard to give either one of them

the

> benefit of the doubt. As soon as I could speak I complained of

head

> aches At age two I had a severe strain of influenza. At age 8 I

had

> peculair illness the lasted (acute portion) 24hrs, included

> hallucinations, seizures high bodytemp - fascinated the med school

as a

> handfull of oter kids had the same thing. So they studied us all

for a

> few months In my mid twentys I was diagnosed with Hashimoto's (auto

> immune) thyroid disorder. Made me verry ill at the time but now i

just

> take a thyroid pill every day. at diagnosis the dr said my

bloodwork was

> the most extreme he'd ever seen and that I must have been on low

thyroid

> function for years- amazd I was able to walk into the office. A few

> years ago i was on a psych med called seroquel (a 'cousin drug' to

> zyprexa) and developed somethng called metabolic syndrome. most of

the

> symptoms of that are gone now but i still have high cholesterol.

And a

> lot of belly fat; dr blamed it on the 'stress hormone' cortisol and

> said that was part of the metobolic syndrome. I am not yet

diagnosed

> with Fibromyalgia - allthough my dr and everyone else I meet say my

> current condition meets all requirments for diagnossis. We ust

wait for

> the right specialist to put a name to my sufferring. My illness and

> inability to do basic household tasks puts a load on my partner,and

she

> already has her own load to carry and does worry about me so.

Today the

> only painmeds I can take are tylenol and aspirin. I take lithium and

> mostly a lot of drugs could kill me if they are combined with

lithium so

> i have to be very carefull. I tried tramadol/ultram and it gave me

bad

> head ache and severe nausea. All the drs I see are reluctant to

> prescribemea narcotic. i have no substance abuse history, but I

live in

> a town with a thriving street market for narcotics. hmm, i could use

> some extra cash! just kidding. Oh bless me I have been typing for

ever.

> I hope this is an okay Hello.Wenzdai

>Hey Wenzdai,

Just a shout out to you that this is what we are here for, venting is

a good thing. You might want to see a rheumytologist for your

symptoms they would be the ones to diagnose you. I sure hope you get

to feeling better soon. You are blessed by God. Try the best you can

to have a good day.

Sincerely,

Ann