Re: Newbie... just to introduce myself-

[Guest guest]

Hi ,

You wrote some great stuff here!! You have joined a wonderful, supportive and

fun group.

Hugs,

Annie in TN

Jarvis-Dustman mjarvisdustman@...> wrote:

Hi All!

Thought I'd take a moment to introduce myself, since I'm new to the

group... My name is , i'm 32... married with 3 kids.... I've

suffered for years with fibromyalgia, but just 5 years ago, they put

a name on it.

I've done decently with the disease, up until the last year... it

seems to be one flare up after another.. and the past few months,

have just been one long one and seems to be getting worse (didn't

think that was posible)... At first, it just effected my

neck/shoulders and legs.. but now, it's all over... I can no longer

work, most of the time don't feel like leaving the house, because I

hurt too bad and too tired! I can no longer do most of the things I

enjoy doing (scrapbooking, sewing, baking, crafts, photography)

because it hurts too bad.

Tomorrow, I start the new study in Indianapolis, for Roboxetine...

which is the new medicine to treat not only the symptoms of fibro,

but also help with the pain. I will be on it for the next 16

months.. I'm just hoping and praying that this medicine will bring

me some relief.

I've done pretty good in the past, with handling everying... but here

lately, I cry a lot, am frustrated & aggrevated... I'm angry...

angry this disease has destoyed my life...

I kinda snapped this week, on my blog, after the thousand time

someone saying it was just depression... here is part of what I

wrote: " Everyone blames it on depression, it's not depression, it's

realization... Realization of a disease that is destroying me... it's

taking away everything I love to do... Realization that I will never

be rid of this horrible disease, for there is no cure... Realization

that it will just continue to get worse... "

I just have to know, do any of you guys have to battle ignorant

people over this disease? People who think that it's " all in your

head " and " if you just left your house more, then you wouldn't be

depressed? " There are times I wished I had cancer or a disease that

people could grasp the concept of... so they would get off my back

about it...

I'm tired of people thinking they need to " save " me... it's got to

the point where people have tried to force me from my home and to go

out... my husband put a stop to that and started telling everyone

off LOL which is a new roll for us, cause normally I'm the outspoken

one, that handles everything.. but I just don't have it in me right

now. My husband, my parents, and my family are very supportive and

understand what I live with daily. I'm very fortunate there.

Well now that I've written a novel and vented LOL (didn't realize how

much I had wrote until I went back up to read it LOL)... thanks for

listening... it's nice to know that there are people out there that

truly understand what I feel..

Hope everyone has a great day!

*HUGS*

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