Hoping the group can help with my question

[Guest guest]

Hi all,

I have been with the group about 3 weeks now and read your messages,

many that show great support of each other.

I am in the process of being diagnosed ( my GP suspects I do have

fibro) but I am waiting on appointment to see the rheumo dept (

which can take awhile here in the UK). I do have a question that I

am hoping that some of you might be able to help me with.

My question is how did the fibro start for you?

For me it started with pain in the ribs especially to touch and

hugging was a nightmare. Over time it seemed to get worse and

affected lots of areas including my shoulders, arms, face, right

hip, knees ankles just to name a few. I find these areas painful but

it waxes and wanes, no two days are alike. I also find these areas

very tender to the touch and all my bloods show no inflammation of

the muscles or bones. My calcium levels are ok and there was only a

little high reading on my phosphorus level. I sweat in cold weather

which is weird and cannot walk further than my kitchen without pain.

I do try to exercise my legs so I don't get muscle problems.

I also suffer with sleep problems, getting up at least twice a night

on days I can sleep. I do also have problems with urination at night

and this is another reason for disturbed sleep. I do nap and

sometimes find that I can fall asleep mid sentence, which of course

might be down to my medication ( MST, Lrica & Baclofen) I get

restless leg problems along with severe cramps that wake me

screaming and kick out loads ( much to my hubbys distress). I do

have both cervical and lumbar spondylosis along with what my

neurologist thinks is arachnoiditis.

I guess my reason for asking is through one of confusion, I have

researched fibro but found no where that describes how it all

starts. I guess it does start different for everyone but I am stuck

in a rut not knowing if I have fibro or not. Also difficult do to

the other problems I have to work out what sympton belongs to what

problem. I have not listed all my problems would be much longer

email if I did.

To be honest the reason I have not contributed to the group so far

is a feeling of if I should really be here or not. My family tries

to understand but like the topic on friends understanding my husband

can be unsupportive and quite cruel at time. I guess I just need to

talk to others that do understand.

Thanks in advance to all that reply

Hoping you all have a good pain free day

Meachelle