Re: Re: I'm a Newbie! - Lyme SSDI/

[Guest guest]

The doc I've been seeing for the past 17 years is Lyme literate. However, the

problem I'm having is that the oral antibiotic treatments did not work. We tried

IV Rocephin but i had a reaction and cannot do that particular treatment. My doc

seemed very frustrated by these turn of events....................not to mention

me too!!!! Well, I got a copy of my records and he wrote in them that " patient

just doesn't seem to want to get better " !!!!! I was livid when I saw it,

needless to say. To answer your question, I am in the process of trying to find

a new doc. I went to one last week that treats FM but he is also retesting me

for lyme. Once the results are in I'll go from there on the treatment protocols.

Good luck with your SSDI!

Mona

To: Fibromyalgia_Support_Group@...: forageahead@...:

Mon, 31 Mar 2008 00:29:01 +0000Subject: Re: I'm a Newbie! - Lyme SSDI

I have Lyme too and so spend more time on lyme groups that I am in.I hope you

are getting treated by a doctor who goes way beyond theIDSA treatment guideline

for lyme disease. If you are not beingtreated for lyme now you need a new

doctor. I have just had my ALJ hearing for SSDI and am waiting to get

thedecision.>> Hi to all!> I'm a " newbie " to the group,

but not to FM! I've had FM/CFIDS since > 1990. I was also diagnosed withn

Chronic Lyme disease as well back in > 2002. I went through the disability

process with SSDI and long term > disabiltity through my employer at the time. I

did receive it due to > CFIDS and FM. I may be able to give a little help on

going through > the disability process.> Right now I'm in the process of trying

to find a new doc. I've been > seeing the one I have now since I was diagnosed

back in 1990. I would > like to have a new set of eyes kind of look over my

records, etc. I'm > NOT looking forward to finding a new doc. That in itself

will prove > to be stressful, as there don't seem to be that many docs willing

or > educated on this disease. Unless they are out there and I don't know >

it!!! LOL> Anyways..........I live in the Sunshine State (Tampa) and am looking

> forward to " meeting " everyone! > > Take Care!!> Mona >

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[Guest guest]

Doesn't want to get better? Dr.'s are so ignorant to what people with

chronic illnesses go thru. Too bad every Dr. couldn't spend one month of

their life going thru what we go thru. It's amazing to me how many Dr.'s

lack empathy. I hope you're new dr. works out well for you......

Jill

Re:

I'm a Newbie! - Lyme SSDI

I have Lyme too and so spend more time on lyme groups that I am in.I hope

you are getting treated by a doctor who goes way beyond theIDSA treatment

guideline for lyme disease. If you are not beingtreated for lyme now you

need a new doctor. I have just had my ALJ hearing for SSDI and am waiting to

get thedecision.>> Hi to all!> I'm a " newbie " to the

group, but not to FM! I've had FM/CFIDS since > 1990. I was also diagnosed

withn Chronic Lyme disease as well back in > 2002. I went through the

disability process with SSDI and long term > disabiltity through my employer

at the time. I did receive it due to > CFIDS and FM. I may be able to give a

little help on going through > the disability process.> Right now I'm in the

process of trying to find a new doc. I've been > seeing the one I have now

since I was diagnosed back in 1990. I would > like to have a new set of eyes

kind of look over my records, etc. I'm > NOT looking forward to finding a

new doc. That in itself will prove > to be stressful, as there don't seem to

be that many docs willing or > educated on this disease. Unless they are out

there and I don't know > it!!! LOL> Anyways..........I live in the Sunshine

State (Tampa) and am looking > forward to " meeting " everyone! > > Take

Care!!> Mona >

_________________________________________________________________

Watch " Cause Effect, " a show about real people making a real difference.

Learn more.

http://im.live.com/Messenger/IM/MTV/?source=text_watchcause