Re: Connie- Hey

[Guest guest]

Hi Connie- I am sorry first that you are having a bad day, I have had a

bad 2 wks and haven't been on much just getting to the end of e-mails over 200!

It is impossible to get through in one day and then I end up with more by night,

usually I deal with it pretty good, but as I mentioned things have declined for

me lately, and the symptoms I am having are really causing me anxiety, which I

handle the pain much bettter! I have the mouth burning, extra body parts pain,

and headaches almost daily. I am also sorry you it has been disappointing for

you getting your posts, on off to the site, or whatever else is causing you to

not get response, I just want to say if you chose to leave, yet want to stay in

touch with someone I would be glad to have you stay in touch through my e-mail,

maybe I can listen, and help through your bad days. I do think this is a good

group though and don't know if you should not give it a bit longer? Got to

drag myself up and go check on

dinner, if I lived without a husband I would not have to worry about it LOL,

then again if he were not working today or even had gotten home before now he

would be cooking, as he is a great help, and I have been short with him, he trys

to do everything for me, and I only get the How many drugs do you take once in

awhile! I should be more patient. Take Care Connie

I hope you a able to sleep night, and lighter day tomm.

Sharon

I have not been a member very long, but it seems like it is not

helping

much. I have lots to say, I have lots to learn, I have lots of

questions that need to be answered, but when I post it takes sometimes

more than a day and a half to get it to show up. I am not sure if

there is something wrong with my program or my computer, but it is too

frustrating for me to worry about. I am not sure that I even feel that

I am good enough to be in this group. I am still waiting for aproval I

guess! Yes I am having a bad day, my back hurts and the doc won't

listen.

Connie

[Guest guest]

Connie,

I will echo sharon's sentiment. We all experience problems with

yapoop and sometimes I won't see my answers and/or questions for a

day or two and I'm in the lower 48! My suggestion or advice would be

to be patient - as it says somewhere in one of our files, a lot of us

flare at the same time (as it appears you are) and we are going thru

the same frustrations - doctors who won't listen or don't believe in

fibro, in-house family members who think we are faking this, and

weather changes that throw some of us for a loop (like me; I would

cheerfully remove my lower back if it would help stop the pain!

So don't leave because you don't get answered right away. Most of us

can only be online for a little bit of time because of the pain, or

like me again, my mind starts to fog over. Plus, in my case, I have

DVT (a blood clot) in my leg and have to keep my legs elevated for 3-

4 hrs at a time daily, which cuts into my online

time...lolol....because I belong to several other groups and each one

has 25 messages. It adds up fast!

Darlene

>

> Hi Connie- I am sorry first that you are having a bad day, I

have had a bad 2 wks and haven't been on much just getting to the end

of e-mails over 200! It is impossible to get through in one day and

then I end up with more by night, usually I deal with it pretty good,

but as I mentioned things have declined for me lately, and the

symptoms I am having are really causing me anxiety, which I handle

the pain much bettter! I have the mouth burning, extra body parts

pain, and headaches almost daily. I am also sorry you it has been

disappointing for you getting your posts, on off to the site, or

whatever else is causing you to not get response, I just want to say

if you chose to leave, yet want to stay in touch with someone I would

be glad to have you stay in touch through my e-mail, maybe I can

listen, and help through your bad days. I do think this is a good

group though and don't know if you should not give it a bit longer?

Got to drag myself up and go check on

> dinner, if I lived without a husband I would not have to worry

about it LOL, then again if he were not working today or even had

gotten home before now he would be cooking, as he is a great help,

and I have been short with him, he trys to do everything for me, and

I only get the How many drugs do you take once in awhile! I should

be more patient. Take Care Connie

> I hope you a able to sleep night, and lighter day

tomm. Sharon

>

>

> I have not been a member very long, but it seems like it

is not helping

> much. I have lots to say, I have lots to learn, I have lots of

> questions that need to be answered, but when I post it takes

sometimes

> more than a day and a half to get it to show up. I am not sure if

> there is something wrong with my program or my computer, but it is

too

> frustrating for me to worry about. I am not sure that I even feel

that

> I am good enough to be in this group. I am still waiting for

aproval I

> guess! Yes I am having a bad day, my back hurts and the doc won't

> listen.

> Connie

>

>

>

>

>

>

>