Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 Hi my name is and I live in the Philly Burbs of Pa. My reason for joining the group is to be able to talk with others who live what I live ... and hopefully learn some tips and tricks (When I read that many of you look like Salonpas patch mummies on the home page of this group, I KNEW I had found my tribe, lol) and information that will help me find the right doctors and find some relief. I have been passed around from doctor to doctor for over 2 years now and my pain never gets any better, in fact it only gets worse. After a year of doctors, specialist, PT, more doctors, shots, tests, MRIs etc I threw what could be called a tantrum in the doctor of the week's office and was FINALLY told " oh yea you have Fibromyalgia, didn't anyone ever tell you that? " From there I was sent to yet another doctor to physically examine me and make sure this latest diagnosis was correct. I could not believe how painful that exam was and cried through the whole thing. I not only have Fibromyalgia but her sister ::grin:: Polymyalgia came along as well ... AND because that wasn't enough fun, I beat all odds and was one of the very rare " young " women (I'm 42) to have a severe complication of Polymyalgia, temporal arteritis ... which also brought blinding migraines. Bottom line, I hurt every single day and my friends and family are wonderful and they try so hard to understand and make it better for me, but they can't do either and I desperately need to find people who do understand what I go through every day to talk to before I go completely insane. Thank you for letting me join your family ... I am really looking forward to getting to know all of you. ... Living with Fibromyalgia, Polymyalgia, Temporal Arteritis, Arthritis of the Spine, Miagraines ... My Honey, 4 Boys, 4 Nekid Sphynx Cats, 5 Chihuahuas, 7 Parrots **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
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