Re: Re: Darlene/ CPAP - Margaret

May 7, 2008

Darlene,

Yes I am on oxygen also because my oxygen level was so low in the

test. The pulmonologist wanted that. I have been using distilled

water in the CPAP machine. I really don't think it is the mask that

is causing the problems although I don't like it much. I usually can

sleep through anything. As for pillows, I learned long ago that the

only pillow that would keep me from having migraines was a down

pillow. Once I bought a memory foam pillow for $100 many years ago.

Every time I tried to use if again, another migraine. I finally gave

it to my daughter and she loved it. I did find a sleep apnea forum

online and read a lot of it before I even got the machine. I will

keep trying to use it for awhile but as they say, you can't teach an

old dog new tricks. I did discover that by lowering the temperature

of the A/C I can breath better so perhaps if I try keeping the A/C on

all night it will help. (Hate those utility bills!)

Thanks for writing and also for defining HTH, Margaret B

> Margaret,

> HTH = hope that helps

>

> I have a humidifier built into my bi-pap machine as well (have it set

> on 2 most nights) and don't have any issues. You mentioned oxygen -

> do you also have oxygen attached to your machine? I don't, just

> whatever comes thru the machine itself. What kind of water did they

> tell you to use in your machine? If they didn't tell you, you should

> use distilled water.

>

> It is going to take some time to get used to using your machine. I

> have switched to a contour pillow and am checking into another one

> that is supposed to make it even easier for mask wearers! I also

> belong to a yahoo group about sleep apnea....lol.....that might help

> you some. My doctor (and others who are " non-breathers " ) suggested

> wearing just the mask part around the house to get the feel of it. I

> couldn't because of my glasses, but others have tried it successfully.

>

> Good luck! It's important to keep trying to use the mask and be as

> compliant as possible. It will help alleviate some of your other

> health issues if you have anything besides this fibro beast!

>

> Darlene

>

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