Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 Hello, my son had a shunt placed in August in hopes that by relieving the hydrocephalus it would also release the pressure on the chiari, but he has since had most of the symptoms return, headaches, fatigue, etc. He is having a MRI on Nov 4th to see if the chiari is still tight. My question is that for the last 3 days he has complained of a dry mouth and he is drinking juice, sprite or water almost continuously. He had never had any trouble with dry mouth or dehydration before, does anyone else with chiari have this or is it a coincidence? Thanks, Khristi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2002 Report Share Posted October 24, 2002 Hi Khristi, Yep, I have constant dry mouth now but, I know mine is due to the medication I'm on. I've always got a bottle of water next ot me. Have a beautiful day! Love & laughter, In a message dated 10/23/2002 8:33:29 PM Eastern Daylight Time, kdc0223@... writes: > Hello, my son had a shunt placed in August in hopes that by relieving the > hydrocephalus it would also release the pressure on the chiari, but he has > since had most of the symptoms return, headaches, fatigue, etc. He is > having > a MRI on Nov 4th to see if the chiari is still tight. My question is that > for > the last 3 days he has complained of a dry mouth and he is drinking juice, > sprite or water almost continuously. He had never had any trouble with dry > mouth or dehydration before, does anyone else with chiari have this or is > it > a coincidence? > > Thanks, > Khristi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 As a type 2, I didn't go on insulin until my 15th year of diabetes. It was the best thing that could have happened to me. At once my control was 100% better and thats what its all about. If you are needle-scared, this list has lots of people who can tell you, you don't need to be. So I really can't answer your question about whether its possible to never proceed to insulin, it might be, but I think it would be very much harder and a more stringent lifestyle if you followed it. I know this list has lots of experts and I am not one of them, but insulin was just the greatest thing that came along, for me. Jo dzr2blkhim wrote: >Lee here: > >I know it varies from person to person....yet I read a post that >caused me to think that all Type II will eventually go on insulin. >I apologize...I could not find it when I went back. And possibly I >misunderstood. >Is it possible with control....to not ever proceed to insulin? >Sorry but this has concerned me. >Lee > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Lee again: Jo my son is Type I....and is 31 and has a pump. He says it is much better than before. His readings were terrifying before...in 5oo's and would end up in emergency. I was so scared he would die. But he can eat now and stays very much controlled. Was able to go back to work two years ago. Some damage to kidneys at that time...but they are functioning better also. Lee > > >Lee here: > > > >I know it varies from person to person....yet I read a post that > >caused me to think that all Type II will eventually go on insulin. > >I apologize...I could not find it when I went back. And possibly I > >misunderstood. > >Is it possible with control....to not ever proceed to insulin? > >Sorry but this has concerned me. > >Lee > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Its a lot easier for you to expand your food choices when you can test, test, test, and find what is good for you and what isn't. It's not a license to hit the doughnut shop or anything like that, but if you have made a mistake with a food choice you can correct it with a little insulin. Jo dzr2blkhim wrote: >Lee here: >Thanks Jo for your comments. >As I have read these many posts....it seems many have said...if I am >correct...that " on " insulin one can eat a better variety of >foods...yet control better via the insulin? >Is this correct? >It seems via pills .....diet is so restricted and a bit boring. >Although I am checking out different sites for more ideas. >Thanks!! >Lee > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2005 Report Share Posted November 19, 2005 Lee here: Thanks Vicki....no it was not too long a post. Sad that patients are let go so long and end up hurt before something is done...while it can be corrected. Thanks again! Lee > > Hi, Lee...the reason a lot of type 2s progress to insulin (and even then > don't have very good control) is because their diabetes has progressed > to the point where pills simply don't do the job. However, it's > entirely possible to control with exercise and diet for quite a long > time before needing to go to pills. > > The time to go on pills is when diet and exercise don't give good > control. > > And the time to go on insulin is when pills don't give good control. > > Many doctors wait until complications develop -- kidney failure, heart > disease, retinopathy -- before starting diabetics on insulin. This is a > big mistake, IMHO. > > Many type 2s find it a lot easier to control with insulin - if they're > taught how to use it correctly. I read another post from you, Lee, > where you mentioned how your son, a type 1, had such poor control with > insulin but now things are better on the pump. I'm glad he's doing > better, but the thing is, if he'd been properly trained on how to dose > his insulin, he could have had excellent control even without the pump > > The way our medical system is set up, however, doctors simply don't have > time -- or the knowledge -- to do an individualized dosing program for > each and every diabetic, so they prescribe a " standard dose " , that is, > take a certain amount of a certain kind of insulin at specific times of > day, regardless of what kind of food is being eaten. They also often > prescribe a " sliding scale, " which corrects high BGs after the fact. > This is very inefficient and most often results in a mismatch between > food and insulin. This is probably why your son had such poor control > before he went on the pump. > > If your son was taught how to use the pump correctly, he bases his dose > of insulin on the carbs eaten at each meal. This same method can be used > for insulin dosing without a pump, too. I've been doing it for over 6 > years now with excellent control. > > I've rambled on and sorta lost track of your original question so I'll > answer it briefly right here. No, all type 2s do not progress to > insulin. But many prefer to, because it gives more freedom and, properly > dosed, better control. > Vicki > > A question > > > > Lee here: > > > > I know it varies from person to person....yet I read a post that > > caused me to think that all Type II will eventually go on insulin. > > I apologize...I could not find it when I went back. And possibly I > > misunderstood. > > Is it possible with control....to not ever proceed to insulin? > > Sorry but this has concerned me. > > Lee > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 I keep hearing that BPs see the world differently. They behave the way they do because they don't see things as the rest of us do. How exactly do they see things? Just from their own self centered perspective? I have read and listened to all of you on this site for a yr now and then I see my daughter's actions and excuses for those actions and her reactions to things and I still don't get exactly how is it that they think? Can anyone give me more in depth explanations for how they do think, because I am still very confused. For instance, in my dauhgter's case of these constant pregnancies and her with a heart defect, knowing she is high risk for every pregnancy, but not using birth control. ANd she never seems particularly worried about it. It is me who does the worrying. And she doesn't seem to be the least bit concerned about how she will support and care for 4 children----2 of whom will be under 1 1/2 yrs old this summer. How or what must she be thinking? Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 In a message dated 2/16/2006 10:37:34 AM Eastern Standard Time, cascorsam@... writes: For instance, in my dauhgter's case of these constant pregnancies and her with a heart defect, knowing she is high risk for every pregnancy, but not using birth control. ANd she never seems particularly worried about it. It is me who does the worrying. And she doesn't seem to be the least bit concerned about how she will support and care for 4 children----2 of whom will be under 1 1/2 yrs old this summer. How or what must she be thinking? Jean I look at it this way. K feels that she made it through 3 births okay, what is one more? And, she sees that she's managed okay so far raising 3, she's not in the streets, the system came through for her before, it will again. What was it K always said to you? I'm not worried, I always land on my feet? DebbieL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 In a message dated 2/16/2006 10:37:34 AM Eastern Standard Time, cascorsam@... writes: How or what must she be thinking? Jean This would be a good question to pose on my daughter. When the time is right, I will sit her down, she always gives me input for people here in the group. Maybe she could shed some light onto what was going through her mind when she was doing what she was doing. I will let you know. DebbieL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 You should read The Angry Heart, by ph Santoro. It is a collaboration between a psychologist and a BP in recovery. The author has a website at: www.slshealth.com This book is a self-help guide for BPs. Like anything, if they don't want to participate in their recovery, nothing will work, but because this book is a collaborative effort it gives a lot of insight into how they think. I hope that gives you a place to start! Helen _____ From: WTOParentsOfBPs [mailto:WTOParentsOfBPs ] On Behalf Of cascorsam@... Sent: Thursday, February 16, 2006 10:32 AM To: WTOParentsOfBPs Subject: Re: A Question I keep hearing that BPs see the world differently. They behave the way they do because they don't see things as the rest of us do. How exactly do they see things? Just from their own self centered perspective? I have read and listened to all of you on this site for a yr now and then I see my daughter's actions and excuses for those actions and her reactions to things and I still don't get exactly how is it that they think? Can anyone give me more in depth explanations for how they do think, because I am still very confused. For instance, in my dauhgter's case of these constant pregnancies and her with a heart defect, knowing she is high risk for every pregnancy, but not using birth control. ANd she never seems particularly worried about it. It is me who does the worrying. And she doesn't seem to be the least bit concerned about how she will support and care for 4 children----2 of whom will be under 1 1/2 yrs old this summer. How or what must she be thinking? Jean Quote Link to comment Share on other sites More sharing options...
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