Fwd: Fibromyalgia Survey from AFFTER

[Guest guest]

Please read the information below, anyone can participate, you do not have to

have fibro to do so. They need as many responses as they can get in a short

amount of time.

Thank you

Shari Ferbert info@...> wrote:

Date: Fri, 11 Apr 2008 09:41:17 -0400

To: kbabcock1@...

Subject: Fibromyalgia Survey from AFFTER

If you are having trouble viewing this message, please go to

http://community.icontact.com/p/affter/newsletters/affterorg.

**This is a duplicate of a message sent 4/9/08 - being sent in text format for

those of you who are not set up for HTML.

If you have not taken the survey, I encourage you to do so, and *please* forward

it on to frieneds and family members. We need as many people as possible to

participate in this short amount of time we have. In particular, please ask

friends and family members who do NOT have fibromyalgia to participate, as a

large control group is very important!

Thank you for your time.

If you do not wish to receive future mailings from AFFTER, please use the

" manage your subscriptions " tab at the end of this newsletter.

Thank you,

Shari Ferbert

President, AFFTER

****************************************************************

AFFTER Fibromyalgia Focus On-Line E-News

Advocates for Fibromyalgia Funding, Treatment, Education and Research

Volume 3 : March 8, 2008

Bringing medical news and other updates to you.

~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~

RESEARCH INITIATIVE

AFFTER's Second On-Line Survey - 2008

We welcome you to participate in AFFTER's second research project, involving

another on-line survey.

You are receiving this notification because at one time you contacted us for

information, have been a member of one of our groups or participated in our

survey last year.

We sincerely appreciate all the participation in our study last year and hope

you will join us in this research effort. All who participate should feel

satisfaction in knowing your efforts are enabling researchers to learn more

about fibromyalgia.

Significant results from our first survey enabled AFFTER to collaborate with

researchers to produce multiple abstracts (research summaries). Three abstracts

were chosen for presentation at the American College of Rheumatology meeting in

November 2007 and were published in the Journal of Arthritis and Rheumatism.

Last year's study disclosed areas to evaluate in more detail and revealed

additional topics to explore. Working with FMS researchers, AFFTER has compiled

a new survey in effort to gain more understanding about this complex condition.

This questionnaire should take about 10 minutes to complete; we appreciate you

taking the time to participate!

Start the survey by pasting this link into your browser:

http://www.surveymonkey.com/s.aspx?sm=7uK_2bwe9M6uQHdelEDr1YGg_3d_3d

**DEADLINE** April 23, 2008! If you are going to participate, please do so now

so you dont forget or miss the deadline!

View abstracts from our 2007 studies at our website:

http://www.affter.org/research.htm

Please use the " FORWARD TO A FRIEND " link at the end of this page to send the

same survey to friends or family members, whether they do or do not have

fibromyalgia. In particular, please encourage people WITHOUT fibromyalgia to

participate because a good control group is necessary to validate any study and

give the data more meaning.

Feel free to contact us if you have any questions or comments. If you do not

wish to receive future mailings from AFFTER, you can unsubscribe by using the

" manage your subscription " tab at the end of this email.

Sincerely,

Shari Ferbert

President, AFFTER

MORE ABOUT AFFTER

(Advocates for Fibromyalgia Funding, Treatment, Education and Research)

A non-profit, 501©(3) organization, dedicated to helping those with

Fibromyalgia and related conditions.

MISSION STATEMENT

To participate in activities that increase awareness and understanding of

fibromyalgia in the public, medical community and patient population. To

organize charitable activities to specifically fund research and education that

could lead to finding a cure or more effective treatments for fibromyalgia.

* * * *

AFFTER is run by volunteers, most of whom have fibromyalgia. We have a solid

organization in place with a professional board of directors and a strong

medical advisory committee, including nationally and internationally known

researchers. AFFTER works with these researchers to conduct FMS research. We

publish newsletters (printed and online) to share research updates with the FMS

community, as well as a variety of other information on treatments, coping tips,

etc. There are board members who are responsible for coordinating fund raising

activities, educational projects, networking with other groups, publications,

internet correspondence and publicity. We work with our medical advisory

committee to help fund research projects that would benefit all FMS patients. We

offer an information packet that includes general medical information about FMS,

treatments, research news, lists of helpful websites and other resources

regarding medications, support groups, etc. If you provide

us with

your mailing address, we would be happy to send this complimentary packet to

you.

* * * * * * * *

Are you registered to receive medical news from AFFTER?

For those of you who are new to AFFTER or our various news and support groups,

this specific e-newsletter is in developmental stage and will soon replace our

current Medical News Update emails.

AFFTER's Medical News Updates:

This is an electronic news brief that comes out when information becomes

available. It could be news about research and new treatments, educational

materials or various other resources.

Click on this link to register to join AFFTER's Medical News Group:

http://health.groups.yahoo.com/group/AFFTERMedicalNews/join

AFFTER's On-Line Support Group:

- Do you want to get to know others who suffer with FMS?

- Do you want to find fibro friendly health care providers near you?

- Do you want to know what treatments are working for other people with FMS?

- Do you want to attend a support group but there is not o ne near you or you

are too ill to

leave the house?

If any of those questions apply to you then you might be interested in joining

our on-line support group; a place in cyberspace where over 400 people from

around the world gather and communicate via email.

Click here to join AFFTER's On-Line Support Group:

http://health.groups.yahoo.com/group/affter/join

~ ~ ~ ~ ~ ~ ~ ~ ~ ~

To learn more about fibromyalgia or AFFTER, or to make a tax-deductible

contribution, visit our website: http://www.AFFTER.org. Credit card donations

are now accepted through Paypal on our website; every dime is appreciated. We

need your support to achieve our mission, which is to help improve the lives of

the millions of people suffering with FMS.

This message was sent by: AFFTER, PO Box 768, Libertyville, IL 60045

Powered by iContact: http://freetrial.icontact.com

Forward to a friend:

http://app.icontact.com/icp/sub/forward?m=132083&s=9277365&c=V7CK&cid=227622

Comment on this message

http://community.icontact.com/p/affter/newsletters/affterorg/posts/fibromyalgia-\

survey-from-affter#commentform

Manage your subscription:

http://app.icontact.com/icp/mmail-mprofile.pl?r=9277365&l=7615&s=V7CK&m=132083&c\

=227622

Receive our messages as an RSS feed:

http://affter.icontact.com/newsletters/rss.xml?r=9277365&l=7615&s=V7CK&m=132083&\

c=227622

__________________________________________________