Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 I did not write them. I hope someone somewhere did. I hope they mention this damn curse called fibromyalgia. I hope they decide to give some kind of airtime to this. Let me know. I have to work tonight. Keep me posted. love and hugs, Debra V. Subject: nbc evening news To: Fibromyalgia_Support_Group Date: Tuesday, May 13, 2008, 10:28 AM did anyone email them about diseases like ours? last night they did a story about " mystery diseases " that affect typically women. i was wondering if anyone from here actually got thru to anyone in the news.so they mentioned they will talk about 3 diseases, maybe one each night. but last night the one briefly discussed was lupus. i was hoping it would be fibro or cfids. but while it did give exposure and some credibility to mysterious diseases that typically affect women, they ended the lupus story with the lady saying that she decided not to use her energy fighting her disease, but instead to use her energy living with it, and they showed her jogging off into the sunset! I WISH !!! how one-sided! no mention of how many suffer, can't funtion and end up on ssdi with lupus. i will see if any other " mysterious diseases " are mentioned tonight. take care, marg Quote Link to comment Share on other sites More sharing options...
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