HI EVERYONE

[Guest guest]

HI EVERYONE,

I JUST WONTED TO UPDATE EVERYONE. SINCE MY MUSCLES HAVE GOTEN SO BAD I

AM GETTING

WHERE IT IS VERRY DIFFICULT TO WALK NOT ONLY THAT BUT IT IS ALSO SO PAINFUL

ANY MORE TO DO ANY

THING. AND I WAS INFORMED BY MY MOM THAT I HAD A VASCULAR SURGON IN WITH MY

NEUROSURGON

BECAUSE OF THE EXTRA BLOOD VESSLES AND MUSCLE BANDING WICH IS CLASIC CHIARI

BANDING.. DID

ANYONE ELSE HAVE A VASCULAR SURGON ALSO? NOW I AM WATING FOR A THUROUAL

MUSCLULAR

WORKUP. I HOPE IT IS SOMETHING THAT CAN BE TREETED . I AM SO SCARED OF NOT

BEING ABLE TO

WALK ONE DAY. I ALMOST CANNOT WALK BY THE TIME I LEAVE WORK.. NOT ONLY THAT

BUT I HURT SO

IN MY NECK AND HEAD I AM WONDERING IF MY SURGON IS MISSING SOMETHING. I

CANNOT EVEN LAUGH

NOW AND I AM A VERRY LAUGHING PERSON NO MATTER HOW BAD I FEEL . AND I HATE

NOT LAUGHING.

I GET OFF BALLANCE SO EASLEY. AND MY MUSCLES ARE ALL AT WARE AND WHEN I

DONT TAKE THE

MORIPHINE TIME RELEASED TWICE A DAY I HURT SO BAD I CANNOT STAND TO STAND ,

SIT , WALK OR LYE

DOWN. DOES ANYONE ON EITHER GROUP HAVE SOME KIND OF MUSCLE DESEASE THAT DOES

THE SAME

THING TO YOU AND WAS IT HARD TO DIGNOSE ? IF SO DID IT CAUSE SYMPTOMS

CLOSELY RELATED TO

THE CHIARI? HELP ME UNDER STAND MY SELF.. I THINK ME AND MY NEUROSURGON ARE

AT A LOSS NOW..

I WAS TOLD I HAVE DECENGERATION OF DISC IN MY LUMBAR AND CERVICAL REGION

WICH MY DR SAYS

IS PROBABLY GOING TO BE A SOURCE OF ARTHURTIS. AND I HAVE DECENGREATING

MUSCLES WICH IS A

IS A FORM OF MUSCULAR DYSTROPHY . AM I JUST GOING TO GO DOWN HILL FROM

HERE...

GOD BLESS EVERYONE ..

AND EVERYONE PLEASE FORGIVE ME FOR NOT BEING ON MUCH I AM WORKING 40 HR A

WEEK OVER

NIGHTS AND I AM JUST HAVING A HARD TIME KEEPING UP . I HURT SO BAD I CANNOT

REMEMBER WHAT I

WONT TO SAY TO ANYONE THAT HAS HAD SURGERY. JUST PLEASE KEEP YOU SELF

PRAYING AND THINKING

GOOD THOUGHTS AND EVERYTHING WILL BE ALLRIGHT. JUST BECAUSE I AM GOING

THROUGHT A BAD

SPELL DOES NOT MEAN EVERYONE WILL THAT HAS EITHER CHIARI OR PSEUDOTUMOR

CEREBRI.

AND I WOULD DO THE SURGERY OVER IN A HEART BEAT FOR BOTH CONDITIONS... MY DR

IS WONDERFUL

I COULD NOT ASK FOR A BETTER MORE UNDERSTANTING DR. NOR COULD I ASK FOR A

SURGON SO

KNOLAGBLE IN THE CHIARI FEILD. EVEN IF HE IS NOT NOTED ON THE CHIARI LIST HE

KNOW WHAT HE IS

DOING AND HE HAS DONE OVER A THOUSAND OF THESE ...

SO GOD BLESS EVERYONE AND HANG IN THEIR..

LOVE IN CHRISTS NAME

MISTY