Re: Do I Belong In This Group?

[Guest guest]

Cassandra, You have to stay on this group! You belong here and we can offer

support while you are waiting for a diagnoses. Even if you don't have fibro and

they find something else, you are still in chronic pain just like the rest of us

which means you belong here reguardless of what is causing it.

What are the other conditions did you find? What are the 2 you told me you

already have? It is scary waiting for a definite diagnoses. We've all been

their and we can help you get thru it.

Right now you need to try not to dwell on it. Do you like to read? Listen to

music? Watch movies? Have Cathy take you to a movie and maybe to a favorite

restaurant. Can you get a massage once a week?

Instead of going to Canada, how far away is another large US city? Why don't

you see if you can find an appt with someone there right away? Maybe you and

Cathy could go and spend a night or two and get the treatment you need now.

Please don't leave the group..........

Jill

Do I Belong In This Group?

I like being here-you are all so friendly and supportive and know alot about

FM.

Problem for me is I just can't find a Dr who doesn't have a 6 mo- 1 year wait

list who could

tell me for sure if I have Fibromyalgia.

Right now my dispicable diagnosis is Chronic Pain Syndrome where a " Pain

Specialist " ,

then a shrink, and then a pain psychologist take turns telling me my physical

pain is really

psychological.

Then there are the 19 or so conditions I have researched which have symptoms

that

mimick Fibro.

I am feeling very depressed again and I am scared. I do not want to be ill

like this but if I

have to be ill just let me have a solid diagnosis and some mdicine tohelp ease

the pain.

SO, " Should I Stay Or Should I Go Now "

Peace,

Cassandra

[Guest guest]

Absolutely! You still belong here, and more importantly you should be

and are welcome to belong.

It's true that there are quite a few syndromes that mimic

Fibromyalgia, like Post Polio Syndrome or PPS. Which I highly suspect

is the origin of my current condition.

The group is here to listen to what you have to say, the good and the bad.

Some of what you say or experience may be beneficial to another group

member, one of the big reasons for posting and keeping in touch.

The road to recovery/management may be a long one, but you don't have

to take the trip alone.

[Guest guest]

Of course you belong here. You probably have fibro. But if you don't, you sure

do have the symptoms even if it is something else. I do hope you get diagnosed.

However, you should not leave here. It is a good group and you are a great

member. You are welcome here. Don't go away. Pain and misery are common to us

all here weather or not we have been diagnosed.

hugs,

Debra V.

Subject: Do I Belong In This Group?

To: Fibromyalgia_Support_Group

Date: Sunday, April 20, 2008, 9:09 AM

I like being here-you are all so friendly and supportive and know alot about FM.

Problem for me is I just can't find a Dr who doesn't have a 6 mo- 1 year wait

list who could

tell me for sure if I have Fibromyalgia.

Right now my dispicable diagnosis is Chronic Pain Syndrome where a " Pain

Specialist " ,

then a shrink, and then a pain psychologist take turns telling me my physical

pain is really

psychological.

Then there are the 19 or so conditions I have researched which have symptoms

that

mimick Fibro.

I am feeling very depressed again and I am scared. I do not want to be ill like

this but if I

have to be ill just let me have a solid diagnosis and some mdicine tohelp ease

the pain.

SO, " Should I Stay Or Should I Go Now "

Peace,

Cassandra

________________________________________________________________________________\

____

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know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Cassandra - I'm sorry you're having trouble finding a doctor to diagnose you.

There are an awful lot of other illnesses with symptoms similar to FM. It's

really up to you if you want to stay or not. You might want to schedule an

appt. with one of those docs who require you to wait so long, and ask to be

placed on their cancellation list, bumping you up to a quicker appt.

We all know what it's like to be scared and depressed. I know you mentioned

that you have some mental health issues that have been diagnosed. Are you

currently taking any anti-d's? Perhaps your psychiatrist would consider trying

you on Cymbalta. This can help with pain. Just a thought. HTH.

Jeanne in WI

I like being here-you are all so friendly and supportive and know alot about

FM.

Problem for me is I just can't find a Dr who doesn't have a 6 mo- 1 year wait

list who could

tell me for sure if I have Fibromyalgia.

Right now my dispicable diagnosis is Chronic Pain Syndrome where a " Pain

Specialist " ,

then a shrink, and then a pain psychologist take turns telling me my physical

pain is really

psychological.

Then there are the 19 or so conditions I have researched which have symptoms

that

mimick Fibro.

I am feeling very depressed again and I am scared. I do not want to be ill

like this but if I

have to be ill just let me have a solid diagnosis and some mdicine tohelp ease

the pain.

SO, " Should I Stay Or Should I Go Now "

Peace,

Cassandra

[Guest guest]

Thank you all for being supportive. I will look into getting diagnosis in

another US city,

riding the bus, riding the bus....

Yes I am diagnosed with some psych conditins and medicated some. So many meds

make me very sick- like throw me back in the mental hospital sick or put me in

ICU at the

medical center. I've hard cymbalta is helpfull to many people but I had a nasty

reaction to

it. All SSRI's make me sick- as do any supplements that mess with Seratonin

levels. I really

have tried at least eight drugs in every class ofpharmaceuticals out there- I

have felt like

some kind of perverse science experiment for the last 15 years.

Then along comes this whole-body incapacitating pain. I remember having

something like

this off and on for ever. Is it possible I fisthad FMS after a life-threatening

Inflenza with

seizures at age 2? Can we be born with it? If it turns out I don't have FMS,

I'll let you

know what I do have.

Thank you allfor encouraging me to stay.

Peace.

Cassandra

>

> Cassandra - I'm sorry you're having trouble finding a doctor to diagnose you.

There are

an awful lot of other illnesses with symptoms similar to FM. It's really up to

you if you

want to stay or not. You might want to schedule an appt. with one of those docs

who

require you to wait so long, and ask to be placed on their cancellation list,

bumping you

up to a quicker appt.

> We all know what it's like to be scared and depressed. I know you

mentioned that

you have some mental health issues that have been diagnosed. Are you currently

taking

any anti-d's? Perhaps your psychiatrist would consider trying you on Cymbalta.

This can

help with pain. Just a thought. HTH.

> Jeanne in WI

>

> I like being here-you are all so friendly and supportive and know alot about

FM.

>

> Problem for me is I just can't find a Dr who doesn't have a 6 mo- 1 year

wait list who

could

> tell me for sure if I have Fibromyalgia.

>

> Right now my dispicable diagnosis is Chronic Pain Syndrome where a " Pain

Specialist " ,

> then a shrink, and then a pain psychologist take turns telling me my

physical pain is

really

> psychological.

>

> Then there are the 19 or so conditions I have researched which have

symptoms that

> mimick Fibro.

>

> I am feeling very depressed again and I am scared. I do not want to be ill

like this but

if I

> have to be ill just let me have a solid diagnosis and some mdicine tohelp

ease the pain.

>

> SO, " Should I Stay Or Should I Go Now "

>

> Peace,

> Cassandra

>

>

[Guest guest]

, You do belong here in this group!!! I understand the unknowns that you

are having right now. I have been there. First, I was told I had virtigo and

then meneires disease and was tested for that. I did not have either of those.

Then, I had an MRI and 2 spots showed up on my MRI and I was told I could have

MS. I underwent, not one but two spinal tabs and both were negative for MS. Then

I was sent to a Neurologists, who had to do his own testing. I underwent yet

another MRI for my back. There they found several herniated disc in my lower

back. I then underwent an EMG. I was told the nurse would perform the first part

of the test and if all went well that would be all of the testing with the EMG,

well the doctor came in and stuck more needles in my legs and back and found

that I had nerve damage due to the herniated disc that was pinching off my

nerves. The nerve damage was causing me to lose my balance and almost fall. I

was terminated from my job

due to not being released from my doctor. I still had no true diagnoses to the

pain that I was having, other than the back issues. It was several months later

that he did one last exam and told me that I had Fibromyalgia. I knew I was

hurting and it was a hurt that no one really understood, but I knew it was there

and it was real. I was also suffering from major depression, almost to the point

of being put in a hospital. I was in bad shape. Once I was told I had

fibromyalgia I began to educate my friends and family of this horrible pain. It

wasn't in my head! I was seeing a phsycitrist at the time for my depression and

he helped me with my depression and other meds at the time. Whether you have

fibromyalgia or CFS it's a tru pain. Its kinda in your head because your brain

is sending pain signals to your body, but you are not making it up...it's

real...it's there everyday. You will have better days soon I promise. Where do

you live? You may need to see

about getting your primary care doctor to get you in to see a Rheumo or a

Neuro. Please continue to monitor this group and keep us all posted on your

progress. You can't give up!!! It's real and we are a family here and will

listen and support you in anyway possible.

Debra B

Do I Belong In This Group?

I like being here-you are all so friendly and supportive and know alot about FM.

Problem for me is I just can't find a Dr who doesn't have a 6 mo- 1 year wait

list who could

tell me for sure if I have Fibromyalgia.

Right now my dispicable diagnosis is Chronic Pain Syndrome where a " Pain

Specialist " ,

then a shrink, and then a pain psychologist take turns telling me my physical

pain is really

psychological.

Then there are the 19 or so conditions I have researched which have symptoms

that

mimick Fibro.

I am feeling very depressed again and I am scared. I do not want to be ill like

this but if I

have to be ill just let me have a solid diagnosis and some mdicine tohelp ease

the pain.

SO, " Should I Stay Or Should I Go Now "

Peace,

Cassandra

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Debra,

You have been through it!

I do have meneieres disease but that only causes me to fall over occasionaly and

have

noise in my ears and head- not what causes this all over body pain.

EVERYONE, thank you fr your kind support and caring.

PEACE

Cassandra

>

> , You do belong here in this group!!! I understand the unknowns that you

are

having right now. I have been there. First, I was told I had virtigo and then

meneires

disease and was tested for that. I did not have either of those. Then, I had an

MRI and 2

spots showed up on my MRI and I was told I could have MS. I underwent, not one

but two

spinal tabs and both were negative for MS. Then I was sent to a Neurologists,

who had to

do his own testing. I underwent yet another MRI for my back. There they found

several

herniated disc in my lower back. I then underwent an EMG. I was told the nurse

would

perform the first part of the test and if all went well that would be all of the

testing with

the EMG, well the doctor came in and stuck more needles in my legs and back and

found

that I had nerve damage due to the herniated disc that was pinching off my

nerves. The

nerve damage was causing me to lose my balance and almost fall. I was terminated

from

my job

> due to not being released from my doctor. I still had no true diagnoses to

the pain that

I was having, other than the back issues. It was several months later that he

did one last

exam and told me that I had Fibromyalgia. I knew I was hurting and it was a hurt

that no

one really understood, but I knew it was there and it was real. I was also

suffering from

major depression, almost to the point of being put in a hospital. I was in bad

shape. Once I

was told I had fibromyalgia I began to educate my friends and family of this

horrible pain.

It wasn't in my head! I was seeing a phsycitrist at the time for my depression

and he

helped me with my depression and other meds at the time. Whether you have

fibromyalgia

or CFS it's a tru pain. Its kinda in your head because your brain is sending

pain signals to

your body, but you are not making it up...it's real...it's there everyday. You

will have better

days soon I promise. Where do you live? You may need to see

> about getting your primary care doctor to get you in to see a Rheumo or a

Neuro.

Please continue to monitor this group and keep us all posted on your progress.

You can't

give up!!! It's real and we are a family here and will listen and support you in

anyway

possible.

>

> Debra B

>

>

>

> Do I Belong In This Group?

>

> I like being here-you are all so friendly and supportive and know alot about

FM.

>

> Problem for me is I just can't find a Dr who doesn't have a 6 mo- 1 year wait

list who

could

> tell me for sure if I have Fibromyalgia.

>

> Right now my dispicable diagnosis is Chronic Pain Syndrome where a " Pain

Specialist " ,

> then a shrink, and then a pain psychologist take turns telling me my physical

pain is

really

> psychological.

>

> Then there are the 19 or so conditions I have researched which have symptoms

that

> mimick Fibro.

>

> I am feeling very depressed again and I am scared. I do not want to be ill

like this but if I

> have to be ill just let me have a solid diagnosis and some mdicine tohelp ease

the pain.

>

> SO, " Should I Stay Or Should I Go Now "

>

> Peace,

> Cassandra

>

>

>

>

>

>

________________________________________________________________________________\

____

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;

_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

[Guest guest]

I am rooting for you hun. Please stay strong and good things will come. stay

with us .K? you need us and we you, please stay here with us.

hugs,

> Debra,

> You have been through it!

> I do have meneieres disease but that only causes me to fall over

> occasionaly and have

> noise in my ears and head- not what causes this all over body pain.

>

> EVERYONE, thank you fr your kind support and caring.

>

> PEACE

> Cassandra

>

>

>

>

> >

> > , You do belong here in this group!!! I understand the unknowns

> that you are

> having right now. I have been there. First, I was told I had virtigo and

> then meneires

> disease and was tested for that. I did not have either of those. Then, I

> had an MRI and 2

> spots showed up on my MRI and I was told I could have MS. I underwent, not

> one but two

> spinal tabs and both were negative for MS. Then I was sent to a

> Neurologists, who had to

> do his own testing. I underwent yet another MRI for my back. There they

> found several

> herniated disc in my lower back. I then underwent an EMG. I was told the

> nurse would

> perform the first part of the test and if all went well that would be all

> of the testing with

> the EMG, well the doctor came in and stuck more needles in my legs and

> back and found

> that I had nerve damage due to the herniated disc that was pinching off my

> nerves. The

> nerve damage was causing me to lose my balance and almost fall. I was

> terminated from

> my job

> > due to not being released from my doctor. I still had no true diagnoses

> to the pain that

> I was having, other than the back issues. It was several months later that

> he did one last

> exam and told me that I had Fibromyalgia. I knew I was hurting and it was

> a hurt that no

> one really understood, but I knew it was there and it was real. I was also

> suffering from

> major depression, almost to the point of being put in a hospital. I was in

> bad shape. Once I

> was told I had fibromyalgia I began to educate my friends and family of

> this horrible pain.

> It wasn't in my head! I was seeing a phsycitrist at the time for my

> depression and he

> helped me with my depression and other meds at the time. Whether you have

> fibromyalgia

> or CFS it's a tru pain. Its kinda in your head because your brain is

> sending pain signals to

> your body, but you are not making it up...it's real...it's there everyday.

> You will have better

> days soon I promise. Where do you live? You may need to see

> > about getting your primary care doctor to get you in to see a Rheumo or

> a Neuro.

> Please continue to monitor this group and keep us all posted on your

> progress. You can't

> give up!!! It's real and we are a family here and will listen and support

> you in anyway

> possible.

> >

> > Debra B

> >

> >

> >

> > Do I Belong In This Group?

> >

> > I like being here-you are all so friendly and supportive and know alot

> about FM.

> >

> > Problem for me is I just can't find a Dr who doesn't have a 6 mo- 1 year

> wait list who

> could

> > tell me for sure if I have Fibromyalgia.

> >

> > Right now my dispicable diagnosis is Chronic Pain Syndrome where a " Pain

> Specialist " ,

> > then a shrink, and then a pain psychologist take turns telling me my

> physical pain is

> really

> > psychological.

> >

> > Then there are the 19 or so conditions I have researched which have

> symptoms that

> > mimick Fibro.

> >

> > I am feeling very depressed again and I am scared. I do not want to be

> ill like this but if I

> > have to be ill just let me have a solid diagnosis and some mdicine

> tohelp ease the pain.

> >

> > SO, " Should I Stay Or Should I Go Now "

> >

> > Peace,

> > Cassandra

> >

> >

> >

> >

> >

> >

>

>

________________________________________________________________________________\

____

> > Be a better friend, newshound, and

> > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;

> _ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

> >

[Guest guest]

I have and you will get through this! We are all behind you!

Debra B

Do I Belong In This Group?

>

> I like being here-you are all so friendly and supportive and know alot about

FM.

>

> Problem for me is I just can't find a Dr who doesn't have a 6 mo- 1 year wait

list who

could

> tell me for sure if I have Fibromyalgia.

>

> Right now my dispicable diagnosis is Chronic Pain Syndrome where a " Pain

Specialist " ,

> then a shrink, and then a pain psychologist take turns telling me my physical

pain is

really

> psychological.

>

> Then there are the 19 or so conditions I have researched which have symptoms

that

> mimick Fibro.

>

> I am feeling very depressed again and I am scared. I do not want to be ill

like this but if I

> have to be ill just let me have a solid diagnosis and some mdicine tohelp ease

the pain.

>

> SO, " Should I Stay Or Should I Go Now "

>

> Peace,

> Cassandra

>

>

>

>

>

>

____________ _________ _________ _________ _________ _________ _

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now. http://mobile. yahoo.com/ ;

_ylt=Ahu06i62sR8HDt Dypao8Wcj9tAcJ

>

>