to Marti

[Guest guest]

Hi ,

It's nice to meet you too.

If all you have is Fibromyalgia then you have a lot to complain about! It is

a hard thing to have. It doesn't need to be complicated by anything else to be

a " pain " !

Thank you for your kind words. You are so sweet. If I need to and it works

out that way, then I will move in with wherever we can find a place.

Things will work out one way or another and it seems like there's only one way

for me to go - up - cause I'm down pretty far now. I will keep holding out for

the " up " .

Take care and thanks again,

Marti

uniceander Lander2004@...> wrote:

It is very nice to meet you!! I have been hearing about you since I've

joined a couple of months ago. All I can say is, God bless you for all

you are going through!! I'm so very sorry about all your difficulties.

It was good of your son to offer you a place to live. Do you think you

could do it? My husband and I live with my almost 97 year old Mom. I

will admit, it is very stressful, but I wouldn't have it any other way

and I'm sure your son feels the same way. I will add your dear little

grandson to my prayer list...poor little guy. Please take care of

yourself. Oh, all I have is fibro, so compared to you honey, I have

nothing to complain about!!

Hugs,

/Mi

__________________________________________________

[Guest guest]

Hi Margaret,

Thank you for welcoming me back! It is good to be back and posting again. I

missed you all and am enjoying reading the posts again.

Marti

Margaret Badner margaretbadner@...> wrote:

It is good to see that you are back with us and sending e-mails

again. I wish you all the best.

Margaret B

__________________________________________________

[Guest guest]

Boy, that son of yours sounds like a very special man. I don't think

many of us enjoy change. I personally hate it. I too live out in " the

country " with open spaces...I'd go nuts if I had to live in close

proximity to other people. It's not that I'm antisocial, I just love

being able to amble around (when I'm able!!). But, if I had to, I

would. Change stinks but I guess we can't get away from it!

I do know what you mean about missing your grandbabies. I nanny for a

family that the youngest is 2 and she is my baby! She and I are so

close, always giving me hugs and kisses, I could eat her up. As nice as

it is to have my weekends to myself without screaming kids, I do miss

her!!! They do bring great joy into our lives with their trusting,

loving ways.

Hope you find a workable solution, in the meantime...gobble up those

kids!!!!

Hugs,

/Mi

[Guest guest]

Hi Marti,

Oh boy, your library sounds divine...I am a book person as well. When I moved in

with my Mom after Dad died, I had to get rid of a lot of my books. Broke my

heart. I have lots boxed up in the basement...someday I hope I can get them out

again. Before he died my brother had made me floor to ceiling bookcases for my

condo and I stained them all. They were beautiful. There is nothing like a

book!!

/Mi

Re: Re: Chronic Myofascial Pain (CMP) What is it? Do I have it

too?

Hi ,

I have been researching this illness for years, well since 1989 when it was

first suggested that I might have it, before my dx in 1991. At that time it was

through newsletters, conferences and books. The Fibromyalgia Network has a good

newsletter. Fibromyalgia Advocate is a good bood too. It tells a lot about how

to advocate (duh) for yourself. I have several other good books, but now that we

have the Internet I do most of my research on there.

I would like to get the book you named though. I will try to find it used on

Amazon. It's great how cheap (50 cents and up) the used, and sometimes new,

older books are. I'm one who loves to hold and read a real book. I read in one

of your posts that you have 5 full size book shelves. I have floor to ceiling

bookshelves too. They even have a ladder that rolls around them. (The grand

children are real fans of the ladder.) I also have trouble focussing since the

fibro monster attacked me. (also have AADD) But I can still do research and

slowiy make it through books. I love them so.

I really enjoy your posts and your humor. I watched the Painting video and

cracked up! My son sends me links to hysterical videos he comes across. One was

with Sara Silverman trying to get at her boyfriend Jerry and then another one

with Jerry getting back at her. I'll see if I still have the links. They are

really funny. On second thought they have bad language and might offend. Sorry,

I've insulted myself. Oh well, I live alone so at least no one else is insulted.

Anyway keep the great posts coming,

Marti

Loest boltzero@...> wrote:

I just bought a book from the used book store entitled, " Fibromyalgia &

Chronic Myofascial Pain Syndrome " subtitled, " A Survival Manual " .

Written by Devin Starlanyl, M.D.

And Ellen Copeland, M.S., M.A.

I would recommend this book to everyone, to arm yourself with

knowledge and take control of your health.

Find out the facts on Fibromyalgia from doctors that are actively

conducting research, and treating patients. (Not the typical " weenies " ).

Educating yourself has an additional benefit in helping not only to

cope with FM but also in shedding light on the medical professions

lack of sensible knowledge, and when doctors and the insurance are

B.S.ing you to the point where you are no better off health wise.

Several FM suffers that I have come in contact with have conducted

research to obtain information through several resources.

The internet, publications, support groups, or through doctors that

have 2 brain cells to rub together.

It's a slow process, but the message is getting out.

Fibromyalgia is a real disease/disorder, all everyone can make a

difference in spreading the word around. Not only for our sakes, but

for those that will also have the displeasure of being " touched " by it.

This Yahoo! group is top notch, and at times is the sole source of

" real " support. Keep up the good work everyone.