Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 Hey Tigger, Have you seen a neuro? Were you taking anything for sleep. They took my sister in law off ambien because she had sleep walking, and eating. Then she had some kind of seizure from it. The other drs she was seeing were not associating this with her sleep meds. The neuro has seen it many times with that type of med. they have her on a different type of sleep med now that doesn't cause that problem. Now, On April 29 at 8:30am I'll be at court. I have to see my neuro for an assessment on the 17. Fun, fun! I'm not very good in the am. The neuro doesn't have a problem with me going for disability. My pcp is good but his practice doesn't " do " court. LOL He didn't fill out my assessment even though he is following my case and rx my meds. My lawyer says they do good notes so at least that is a plus. He is good at referrals. My neuro I have had for my mygraines and now for my rls and fibro and pain management. I've come to the conclusion they are right that is all in my head. Every time something else shows it's ugly head it seems to be connected to the cns, the pns, and the brain chemicals and endrocine system. Like I said, it is physically all in my head. My pituitary isn't giving the right message to my thyroid, I am diabetic, had uterine cancer, migraines, rls, ibs,the electrical system for my heart is messed up, asmatha, glacoma,lactose intollerant, bad lower back, oa, carpal tunnel, degenerative artheritis in my knee, a spine that is confused which direction to curve, degeneration in my back, oh yeah, fibro, high bp and cholesterol, chronic bronchitis, hypersensitive hearing, smell, sensation to pain and touch and who knows what else I forgot. Oh and a week befor my hearing I only turn 47 so of course I'll have that against me. The pain, fatigue and fibrofog round out things nicely. Boy do I hope I get my disability. It's bad enough that I can only walk short distances with my rollator walker. I really must stop complaining. Keep your fingers crossed. I need hot water. We are really struggling. No oil so water has to be boiled for bathing and cleaning. The cable is off because we are behind.. no computeror tv. I'm able to connect off my neighbors using my laptop. We were able to cover the electricity the morgage and phones. My car still neeeds to be fixed and then reregistered and put back on the insurance. We have been using only my husbands car. Keep your fingers crossed. Momma needs a swimming pool and walk in shower and hot tub. Ahhhhh, the hot water theme. JudyMer ---- Tigger tigger.pinkraincoat@...> wrote: > Well, I'm one of those unfortunately people who have no pain meds. Is my > doctor and ass? Yes, I believe so. I've developed this new thing with > either sleep walking or sleep fighting. but I have no idea who I'm fighting > with. I've had a serious bout of chronic fatigue lately and somehow got up > in the middle of the night and all I remember is thrashing around. My ribs > are bruised again. same one as before I have nothing to ease it. > > > > I just sit and cry because I have no idea of where to go for help. I hurt > so much from the fibro and then to have this mess on top of it has put me > over the edge. I just sneezed a little while ago and all I could do was > cry. It hurts so much. I also hurt my right knee (last time it was the > left one). At least this time I didn't get black eyes. I've always been > active in my sleep. toss, turn, wake up with head at the foot of the bed or > sideways across the bed, but this is getting ridiculous. What do I have to > do next? Land on my head and never wake up. And the fact that I get > nothing for the pain is ridiculous. I'm frustrated, in pain, and would give > my left ribs (they're the ones that hurt) to get something to help. > > > > I see the doc on Friday and I'm afraid I'm going to lose it. My appointment > is early (8:20am) and usually I'm not that great in the morning, so I can't > guarantee I'll have a doctor after that. > > > > She even had an ANA (indicating some autoimmune problem) come back positive > and sent me to a rheumatologist (after being on prednisone) and my tests > came back normal no one is doing anything. > > > > I used to be better off when I was self medicating with alcohol. can't now > because of liver problems. > > > > I'm frustrated. I think they are afraid to prescribe anything because I had > problems with fentanyl . well, from one of those " law commercials " I'm not > the only one. I almost died from it. seems to me the solution is easy. > don't give me fentanyl, but give me something else. > > > > I have fought way to hard this past year to be able to just walk and be on > my own without someone checking on me daily. No one knows what I have gone > through to get to this point, I've done tons of stretching, I've eaten good > food, I do what I'm supposed to and it's like no one gives a crap. > > > > I'm sorry this turned into a tirade but once I got started, I started to cry > and am now sitting here in a wet, sobbing, mess. > > > > Thanks for listening. > > > > Tigger (Ruth) in Rhode Island > > > > > > _____ > > From: Fibromyalgia_Support_Group > [mailto:Fibromyalgia_Support_Group ] On Behalf Of debra van > ness > Sent: Wednesday, April 02, 2008 1:40 PM > To: Fibromyalgia_Support_Group > Subject: Pain and narcotics.... hydrocodone/oxycontin ect.. > > > > Ok, I think that there may come a time with most of us that we have to take > narcotics for pain. I have been on hydrocodone now for about a year and > half. No, it does not do what it use to for the pain. BUT.... when I skip a > dose for too long, my body really tells me with fibro pain. The pain is > unbelievably worse. So, on that take, I guess it is helping me still. > > I have the same fear expressed here by some. yeah, what happens when I am on > narcotic meds and have to keep stepping up the ladder to oxy or methadone? > Well, I fear that it will eventually quit working too. Then What? Or if I go > somewhere and don't have the hydrocodone or my doc discontinues it, then > what kind of withdrawals will I go through? > It is like being between a rock and a hard place. > > BUT.... I do not think anyone should have to live with this crap without > proper pain control even if it means strong narcotics. I would not function > without it. Not because I am an addict, but because the fibro will rear his > ugly head 10 fold. > > Do what you have to though. Do not suffer when there are medications that > were made for people IN PAIN. I know of all the bad rap about this. The > street pushers and people who use this medicine for a " high " . If it were not > for dumba$$es like that, we might not be looked at with such stigma. But we > take it for REAL PAIN. So, let it be so. > > love and hugs, > Debra V. > > --------------------------------- > You rock. That's why Blockbuster's offering you one month of Blockbuster > Total Access, No Cost. > > Quote Link to comment Share on other sites More sharing options...
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