Guest guest Posted December 11, 2002 Report Share Posted December 11, 2002 On Tue, 10 Dec 2002 15:31:38 -0800, acoftil gnn4ever@...> spoke thusly: >I've come to the conclusion that I might need to go outside my HMO for a >consultation about a diagnosis and advice as to whether or not to proceed with >surgery. Thank you for all the responses I received. I now have FIVE potential nsgs to see--all at my own HMO! Thank you all so much! The number for Dr. Boggan on the doctor web page is wrong. It should be 1-. Do I need to email someone to get this changed? When I called Dr. Boggan's office they referred me to FOUR Kaiser doctors. All 4 of those doctors used to work with Dr. Boggan. One member here also recommended a nsg at Kaiser--Sacramento. The doctors are: Dr. Mark Hawk, Dr. Alan , Dr. Conrad Pappas, and Dr. Kamran Sahrakar. I also have a recommendation from the ACM list from a person who had surgery done by Dr. Melicharek. All of these nsgs are at Kaiser, North Sacramento, Morse Avenue. HTH! Damn it Jim! I'm the moderator, not the doctor! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 In a message dated 1/19/2006 1:39:21 PM Eastern Standard Time, ezcmezwent@... writes: My thought is this one reason why not all doctors are the same....and a good reason why " House " is a fascinating TV show. AWESOME show. Won't miss it. I like the concept of telling it like it is, and speaking your mind. DebbieL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 Hi everyone i've never posted here before but read the posts every day. I have had fibro since i was about 12 (i'm 27 now) but wasn't diagnosed with it until about 2 years ago. My PCP is currently treating me but says that I have no options left and I'm pretty much out of luck, in those two years I have been to a D.O. a Neurologist, a Rhumatologist(sp?), and an anesthesiologist at a pain clinic and have been put on pretty much every drug that is said to help according to my current dr. Anyway I guess i was wondering if anyone lived in the DFW area and knows of a really good dr, there has to be something that will help i can't live like this, as a single mom of two little boys i have to be able to function. thanks for listening sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 Hi , There is a Fibro and Fatigue Center in Dallas. I've been going to the one in Fort Worth for a few months. Have you heard of them? They are supposed to have like a 94% success rate in improving our lives. It has not helped me yet, but I thought I would mention it because maybe I'm in the 6% and it would help you. They do NOT take insurance...... Jill Doctors Hi everyone i've never posted here before but read the posts every day. I have had fibro since i was about 12 (i'm 27 now) but wasn't diagnosed with it until about 2 years ago. My PCP is currently treating me but says that I have no options left and I'm pretty much out of luck, in those two years I have been to a D.O. a Neurologist, a Rhumatologist(sp?), and an anesthesiologist at a pain clinic and have been put on pretty much every drug that is said to help according to my current dr. Anyway I guess i was wondering if anyone lived in the DFW area and knows of a really good dr, there has to be something that will help i can't live like this, as a single mom of two little boys i have to be able to function. thanks for listening sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 Jill, when they opened a center in Pittsburgh, I decided I would see if they could really help me. I walked out of the first appointment after writing a rather large check for the B12 shot, all of the supplements and also the compounded meds. From there, I went to a nearby lab to have what seemed like a 100 vials of blood drawn. I also went to our pharmacy and got the prescription drugs that were also part of the " program " they put me on! When it was time for my second appointment, I could barely drive myself to the office for the appointment. I saw the nurse and then the doc for a few minutes, got another B12 shot and then went into the room where they hooked me up to an IV drip for what seemed forever!!! Now, there was one advantage to all of that --- my husband and I were scheduled to fly to San to see his mother and stepfather. As far as I am concerned, that woman can trigger a full blown flare in 4 hours! So, I cancelled my flight. There was no way I could have spent a week or however long we were to have been there. My only regret about not going was that they went to the Mexican Restauant they had discovered a few years ago that makes a to die for stuffed pepper dish. (they even tried to see if there was a way for to bring one home for me!) The second appointment was my last as I did not see any improvment in how I felt after my second appointment and all of those bottles of pills, the IV, etc., etc. Not long after that, I was web surfing and discovered that a doctor I had seen previously had returned to practising medicine and was much closer than my PC doc. So, I made an appointment, took the shopping bag of supplements, the results of all of the blood work done at quest and she looked it over, said, " well, this won't hurt, take it, but no you don't need to be taking all of the rest of that! " But even more interesting was that the Doc at the center had been a year or two behind her at the big medical school in Philadelphia and she had no good words for him. One thing I should mention is that they won't do the paper work for insurance at that center, but you get all of the documents you need so that you can file with your insurance company and depending on the benefits, they may or may not reimburse you for some of the costs. But that was the second time I had heard of someone who could cure me of this vile condition. I was temping for a company back in 2001 and the lady who was out on medical leave came back and worked a few days after she recovered but they had me stay for another short period of time. She told me about a pharmacist that she went to and said I should go see him! It was another joke. He and someone else had done this study that included about 50 people and they had used supplements, several meds, oh, and I got a print out of what all areas I had problems with. Well, another chunk of change down the drain!! None of the stuff had any effect on me and once again, I was sicker than I had been before I went in. After 30 plus years of this getting gradually worse and going from short periods of time (first time it lasted perhaps 6 weeks), now I have a few days sometimes that I am not in pain. I don't have the levels of tiredness or the degree of pain very often (and by that, I mean what I experienced after trying the two other solutions), so I have become very leery of any group that says they can solve your problems with fibro. I will say I don't have the energy I used to have, but that may just be that I am so anxious for June 30th to arrive and we move from Pittsburgh back home to our new house when my husband retires. Mostly, these days, I am on my antidepressants -- one is really not supposed to be for that purpose, it is intended to help me sleep, another one is also not supposed to be for psych reasons but as a muscle relaxant. But I take 2 antidepressants in the am, one in the pm, Valium as needed, and two blood pressure meds. And I just checked my blood pressure and those meds are doing a very good job. Perhaps other people do find help at the Fibro and Fatigue centers but I just found it not to be the thing that worked for me. Hi , > > There is a Fibro and Fatigue Center in Dallas. I've been going to the one in Fort Worth for a few months. Have you heard of them? They are supposed to have like a 94% success rate in improving our lives. It has not helped me yet, but I thought I would mention it because maybe I'm in the 6% and it would help you. They do NOT take insurance...... > > Jill > Doctors > > > Hi everyone i've never posted here before but read the posts every > day. I have had fibro since i was about 12 (i'm 27 now) but wasn't > diagnosed with it until about 2 years ago. My PCP is currently > treating me but says that I have no options left and I'm pretty much > out of luck, in those two years I have been to a D.O. a Neurologist, a > Rhumatologist(sp?), and an anesthesiologist at a pain clinic and have > been put on pretty much every drug that is said to help according to > my current dr. Anyway I guess i was wondering if anyone lived in the > DFW area and knows of a really good dr, there has to be something that > will help i can't live like this, as a single mom of two little boys i > have to be able to function. > > thanks for listening > sarah > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 Hi . So sorry to hear of the unrelentless pain. What kind of meds have they tried??? It is so hard to have small children when we have this illness. Hope someone can point you in the right direction to a good doctor. I am in Lufkin Tx. hugs, Debra V. nebelle138 sarahlizzybeth@...> wrote: Hi everyone i've never posted here before but read the posts every day. I have had fibro since i was about 12 (i'm 27 now) but wasn't diagnosed with it until about 2 years ago. My PCP is currently treating me but says that I have no options left and I'm pretty much out of luck, in those two years I have been to a D.O. a Neurologist, a Rhumatologist(sp?), and an anesthesiologist at a pain clinic and have been put on pretty much every drug that is said to help according to my current dr. Anyway I guess i was wondering if anyone lived in the DFW area and knows of a really good dr, there has to be something that will help i can't live like this, as a single mom of two little boys i have to be able to function. thanks for listening sarah --------------------------------- You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. Quote Link to comment Share on other sites More sharing options...
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