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New here and would love some advice! (very long)

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Hello, my name is and I have a son who will turn 7 months

old on Tuesday. To make a long story kinda short..he has plagio and

torticollis. It took his pediatrician 4 months to beleive me that he

seemed " off " , finally he referred us to Early Intervention and they

said he has tort. We have been seeing both a Chiropractor and

Osteopath, and the Chiropractor doesnt want to call it torticollis

because his whole right side is involved and he says it is birth

related and he is going thru and " unwinding " process. The Osteo says

you can call it torticollis, but with it involves more than

just his neck muscle, so its more than that. She also said he has the

Plagio thing. I am having a very hard time, because the pediatrician

is so laid back about it all. The Chiro doesnt even think he needs

the PT he is getting 1x a week (I do), and both the Chiro and the

Osteopath think that this will resolve with their treatment and time,

no need for helmet/bands or testing. In fact the Chiro is actually

against the helmet/band. So I have been going by their advice to

continue treatments they are doing...but his head shape really bugs

me, and his face has some asymetry (sp?) His one ear is forward a

bit, as well as his forhead. ANd his right eye seems to turn in. We

took him to a pediatric optimoligist for his eye and she thought it

just " looked " like it turned in (strambisis) because of the bridge of

his nose..but it still really bugs me.

So anyway, I have been going back and forth on whether I should just

continue the PT and trust the Chiro and Osteopath that it will

resolve. Or whether I should take him to Cranial Tech or Childrens

Memorial and get him looked at and consider a band... and maybe xrays

or something. I posted on the torticollis website too, but I wanted

to ask the plagio board what you thought. What would you all do? Is

anyone in a similar situation?

Oh, last question. I dont know whether to take him to Crainial Tech

or to Childrens Memorial Hospital who has the Starscanner equipment

that actually maps the head, and a cranialfacial surgeon and a

neurosurgen. What would the difference be? Does Cranial tech check

for what would be causing the plagio and tort and stuff, do they

recommend testing or anything, or do they just evaluate the headshape

and recommend to band or not? Should I go with the place with the

cranialfacial surgeon and neurosurgen since he has other stuff going

on like tort as well as plagio so they can check him for more wrong

or what is causing it? I dont know the difference between Cranial

Tech and other locations.

Also, what is better.. the band from Cranial or other helmets. It

seems like everyone really likes the DOC band thingy. Can you tell me

why?

I'm so sorry if I am asking too many questions... I did this on the

tort board too. Its just so nice to finally have someone to talk to

about it who knows what I am going through! I am so glad I found

these boards!

Thank you!

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