Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Hi , I will definitely continue to pray for you. What an amazing visit. An awful lot to absorb from one visit and a lot of illnesses brought up. Your back must really hurt with all that is wrong with it. I'm glad you like your doctor and had such a thorough visit, but sorry she found so much wrong. What new meds did she put you on when she took you off the ones you were taking. Did you say she took you off of Lyrica too? I think you did. Was it helping you? And the Soma - did she add a different muscle relaxant? Keep us posted. You will be in my thoughts as you process all of this. Marti vh herbaladysfriends@...> wrote: *It is me again, LOL Well wanted to update ev1 on my rhuemy visit. First off, I loved her. She spent 2 hrs with me, asking all types of questions, trigger point testing, range of motion, etc. Saw how bad of shape I was in and how much pain. Said my ears were red and hot, a sign of imflammation in the bones, as cartilage is bone. Hands, feet and nose was also hot and red. Have raynauds too. She did all types of bloodwork, a bone density scan and I need a sleep study done. Looked at my xrays of the lower spine, as I did not know she needed my mri too, but from the xray, she sees scoliosis, imflammation and severe degeneration of all discs. Does not want me to have any back surgery unless life threatening. She saw alot of arthritis too. Says my left leg/foot/hip is getting the brunt of it, cause my spine curves making all my weight shifted that direction. suspects some pinched nerves there and will test in 6 weeks for those. May have some in my elbows and neck too. Have neuropathy too in hands and feet. She is suspecting Lupus or a thyroid auto-immune disease on top of fibro and maybe RA as well. So now I must wait for the test results. Oh and she shot cortisone shots into my spine. Changed most of my meds. Going on effexor, roserem, lortab and soma, along with my lotrel lyrica and levothyroxine. says I have been on too high of doses of meds and is checking liver funtion as well. Must have hormones tested by obgyn, pap smear and mammo too. Think that is it. See her in 6 weeks. Dr will call with test results when she gets them, and I of course will update y'all when I know something. Scared to find out a bit. Lupus, wow. Well must run as I need to take to the store. Will check in later. Continue praying for me please. Need all I can get.* *Hugs,* * * *[image: _2frndsSST.jpg picture by herbalady]* -- **When we contemplate the whole globe as one great dewdrop, striped and dotted with continents and islands, flying through space with other stars all singing and shining together as one, the whole universe appears as an infinite storm of beauty. Muir **Love and work are the cornerstones of our humanness. -Sigmund Freud **Accept the pain, cherish the joys, resolve the regrets, then can come the best of benedictions: " If I had my life to live over, I'd do it all the same. -Joan McIntosh **Won't you come into the garden? I would like my roses to see you. - B. Sheridan **My garden of flowers is also my garden of thoughts and dreams. The thoughts grow as freely as the flowers and the dreams are as beautiful. ~Abram Linwood Urban https://www.iamshaman.net/affiliatewiz/aw.aspx?A=317&Task=Click Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 , It sounds like you got yourself a winner there...I'm so glad. Keep us posted. /Mi 's new rheumy appt update *It is me again, LOL Well wanted to update ev1 on my rhuemy visit. First off, I loved her. She spent 2 hrs with me, asking all types of questions, trigger point testing, range of motion, etc. Saw how bad of shape I was in and how much pain. Said my ears were red and hot, a sign of imflammation in the bones, as cartilage is bone. Hands, feet and nose was also hot and red. Have raynauds too. She did all types of bloodwork, a bone density scan and I need a sleep study done. Looked at my xrays of the lower spine, as I did not know she needed my mri too, but from the xray, she sees scoliosis, imflammation and severe degeneration of all discs. Does not want me to have any back surgery unless life threatening. She saw alot of arthritis too. Says my left leg/foot/hip is getting the brunt of it, cause my spine curves making all my weight shifted that direction. suspects some pinched nerves there and will test in 6 weeks for those. May have some in my elbows and neck too. Have neuropathy too in hands and feet. She is suspecting Lupus or a thyroid auto-immune disease on top of fibro and maybe RA as well. So now I must wait for the test results. Oh and she shot cortisone shots into my spine. Changed most of my meds. Going on effexor, roserem, lortab and soma, along with my lotrel lyrica and levothyroxine. says I have been on too high of doses of meds and is checking liver funtion as well. Must have hormones tested by obgyn, pap smear and mammo too. Think that is it. See her in 6 weeks. Dr will call with test results when she gets them, and I of course will update y'all when I know something. Scared to find out a bit. Lupus, wow. Well must run as I need to take to the store. Will check in later. Continue praying for me please. Need all I can get.* *Hugs,* * * *[image: _2frndsSST.jpg picture by herbalady]* -- **When we contemplate the whole globe as one great dewdrop, striped and dotted with continents and islands, flying through space with other stars all singing and shining together as one, the whole universe appears as an infinite storm of beauty. Muir **Love and work are the cornerstones of our humanness. -Sigmund Freud **Accept the pain, cherish the joys, resolve the regrets, then can come the best of benedictions: " If I had my life to live over, I'd do it all the same. -Joan McIntosh **Won't you come into the garden? I would like my roses to see you. - B. Sheridan **My garden of flowers is also my garden of thoughts and dreams. The thoughts grow as freely as the flowers and the dreams are as beautiful. ~Abram Linwood Urban https://www.iamshaman.net/affiliatewiz/aw.aspx?A=317&Task=Click Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 I have had 3 Lupus tests run and not one of them came back positive so don't dispair ! hugs vh herbaladysfriends@...> wrote: *It is me again, LOL Well wanted to update ev1 on my rhuemy visit. First off, I loved her. She spent 2 hrs with me, asking all types of questions, trigger point testing, range of motion, etc. Saw how bad of shape I was in and how much pain. Said my ears were red and hot, a sign of imflammation in the bones, as cartilage is bone. Hands, feet and nose was also hot and red. Have raynauds too. She did all types of bloodwork, a bone density scan and I need a sleep study done. Looked at my xrays of the lower spine, as I did not know she needed my mri too, but from the xray, she sees scoliosis, imflammation and severe degeneration of all discs. Does not want me to have any back surgery unless life threatening. She saw alot of arthritis too. Says my left leg/foot/hip is getting the brunt of it, cause my spine curves making all my weight shifted that direction. suspects some pinched nerves there and will test in 6 weeks for those. May have some in my elbows and neck too. Have neuropathy too in hands and feet. She is suspecting Lupus or a thyroid auto-immune disease on top of fibro and maybe RA as well. So now I must wait for the test results. Oh and she shot cortisone shots into my spine. Changed most of my meds. Going on effexor, roserem, lortab and soma, along with my lotrel lyrica and levothyroxine. says I have been on too high of doses of meds and is checking liver funtion as well. Must have hormones tested by obgyn, pap smear and mammo too. Think that is it. See her in 6 weeks. Dr will call with test results when she gets them, and I of course will update y'all when I know something. Scared to find out a bit. Lupus, wow. Well must run as I need to take to the store. Will check in later. Continue praying for me please. Need all I can get.* *Hugs,* * * *[image: _2frndsSST.jpg picture by herbalady]* -- **When we contemplate the whole globe as one great dewdrop, striped and dotted with continents and islands, flying through space with other stars all singing and shining together as one, the whole universe appears as an infinite storm of beauty. Muir **Love and work are the cornerstones of our humanness. -Sigmund Freud **Accept the pain, cherish the joys, resolve the regrets, then can come the best of benedictions: " If I had my life to live over, I'd do it all the same. -Joan McIntosh **Won't you come into the garden? I would like my roses to see you. - B. Sheridan **My garden of flowers is also my garden of thoughts and dreams. The thoughts grow as freely as the flowers and the dreams are as beautiful. ~Abram Linwood Urban https://www.iamshaman.net/affiliatewiz/aw.aspx?A=317&Task=Click Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 *Marti,* * tysm for your support. I truly appreciate it. You are a good friend. the meds that are new are:* *effexor, roserem and provigil. Staying on Lyrica, but not at a high dose, like the spine dr had me on. Put me back on Soma instead of zanaflex. She will call when the results come in. Do not have to wait until my visit. TG How are you today hun? I think of you often and pray for you daily.* *Hugs,* ** ** On Tue, Apr 15, 2008 at 7:07 PM, Marti Boguski martibowenboguski@...> wrote: > Hi , > > I will definitely continue to pray for you. > > What an amazing visit. An awful lot to absorb from one visit and a lot > of illnesses brought up. Your back must really hurt with all that is wrong > with it. > > I'm glad you like your doctor and had such a thorough visit, but sorry > she found so much wrong. > > What new meds did she put you on when she took you off the ones you were > taking. Did you say she took you off of Lyrica too? I think you did. Was > it helping you? And the Soma - did she add a different muscle relaxant? > > Keep us posted. You will be in my thoughts as you process all of this. > > Marti > > vh herbaladysfriends@...> wrote: > *It is me again, LOL Well wanted to update ev1 on my rhuemy > visit. First > off, I loved her. She spent 2 hrs with me, asking all types of questions, > trigger point testing, range of motion, etc. Saw how bad of shape I was in > and how much pain. Said my ears were red and hot, a sign of imflammation > in > the bones, as cartilage is bone. Hands, feet and nose was also hot and > red. > Have raynauds too. She did all types of bloodwork, a bone density scan and > I need a sleep study done. Looked at my xrays of the lower spine, as I did > not know she needed my mri too, but from the xray, she sees scoliosis, > imflammation and severe degeneration of all discs. Does not want me to > have > any back surgery unless life threatening. She saw alot of arthritis too. > Says my left leg/foot/hip is getting the brunt of it, cause my spine > curves > making all my weight shifted that direction. suspects some pinched nerves > there and will test in 6 weeks for those. May have some in my elbows and > neck too. Have neuropathy too in hands and feet. She is suspecting Lupus > or > a thyroid auto-immune disease on top of fibro and maybe RA as well. So now > I > must wait for the test results. Oh and she shot cortisone shots into my > spine. Changed most of my meds. Going on effexor, roserem, lortab and > soma, > along with my lotrel lyrica and levothyroxine. says I have been on too > high > of doses of meds and is checking liver funtion as well. Must have hormones > tested by obgyn, pap smear and mammo too. Think that is it. See her in 6 > weeks. Dr will call with test results when she gets them, and I of course > will update y'all when I know something. Scared to find out a bit. Lupus, > wow. Well must run as I need to take to the store. Will check in > later. Continue praying for me please. Need all I can get.* > *Hugs,* > * > > * > *[image: _2frndsSST.jpg picture by herbalady]* > > -- > **When we contemplate the whole globe as one great dewdrop, striped and > dotted with continents and islands, flying through space with other stars > all singing and shining together as one, the whole universe appears as an > infinite storm of beauty. > Muir > > **Love and work are the cornerstones of our humanness. > -Sigmund Freud > > **Accept the pain, cherish the joys, resolve the regrets, then can come > the > best of benedictions: " If I had my life to live over, I'd do it all the > same. > -Joan McIntosh > > **Won't you come into the garden? I would like my roses to see you. > - B. Sheridan > > **My garden of flowers is also my garden of thoughts and dreams. > The thoughts grow as freely as the flowers and the dreams are as > beautiful. > ~Abram Linwood Urban > > https://www.iamshaman.net/affiliatewiz/aw.aspx?A=317&Task=Click > > Quote Link to comment Share on other sites More sharing options...
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