Re: How do you describe Fibromyalgia to others?

[Guest guest]

My explanation is " chronic pain " . It seems that is more accepted and

understood.

Angie Harley Mama Double-D

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How do you describe Fibromyalgia to others?

Hi all,

I'm just curious - when you are explaining Fibromyalgia to others, how

do you describe it?

Thanks,

~Krista

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[Guest guest]

Similar to arthritis, but it involves more of the muscles and tendons

in the spine. It seems to work best albeit not entirely accurate.

>

> Hi all,

> I'm just curious - when you are explaining Fibromyalgia to others, how

> do you describe it?

> Thanks,

> ~Krista

>

[Guest guest]

Well, this is a good question.

Chronic pain with chronic fatigue, that's how I would describe it.

Add to that, it doesn't go away with over-the-counter medications and

even sometimes with prescriptions easily, and nothing ever works the

same way twice to relieve either the fatigue or the pain. Every day

is different, depending on how we sleep, where we sleep, if we can

sleep. Other conditions can, and often do affect the fatigue and the

pain. For instance, I have TMJ, a sign of Fibromyalgia potential, I

have Chronic Fatigue Syndrome, a precursor of Fibromyalgia. I have

always been a Klutzy person, all the way back to before I was walking

on my own two feet. It is a chronic condition that often goes

unnoticed by doctors until the one suffering realizes there's far

more to this than what the doctor sees, or even what the family sees.

I myself may never understand what all is involved in my chronic pain

and chronic fatigue.

A. Neff

>

> Hi all,

> I'm just curious - when you are explaining Fibromyalgia to others,

how

> do you describe it?

> Thanks,

> ~Krista

>

[Guest guest]

I tell them it is alot of pain in the muscles, tendons, and ligaments. Also all

over flu like aches that are there everyday. I also tell them about the

chronic exhaustion no matter how much I sleep. But by then, they are looking at

me like I am a space alien...so I don't go into the numnbess and tingling, the

brain fog, the stiffness, the muscle knots, and host of other symptoms. Most of

them say " what is that " when I say fibromyalgia. Some of them do have family

members with it or have it themselves. They tend to understand better if they

have someone close to them with it. The ones that have it, understand

completely and could take the words out of my mouth before I say a word.

hugs,

Debra V.

kristakay1 kristakay1@...> wrote:

Hi all,

I'm just curious - when you are explaining Fibromyalgia to others, how

do you describe it?

Thanks,

~Krista

---------------------------------

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[Guest guest]

Hi Krista,

Like having the worst flu they can recall, but 100 times worse, and it doesn't

ever go away. They still don't get it.

Hope you do better!!!

/Mi

How do you describe Fibromyalgia to others?

Hi all,

I'm just curious - when you are explaining Fibromyalgia to others, how

do you describe it?

Thanks,

~Krista

[Guest guest]

---

Funny this should come up...I was at my cousins the other day and

stayed for supper. At the supper table her husband was talking about

how sore he was from moving some cut up trees to a field across the

street from their house. He said can you imagine waking up everyday

and feeling like that??? I said yes , Everyday of my life. He got

real quiet and didn't say much more. He has a niece with it too so

he knows what Fibro is. People have no idea how we live...trust

me....Hinky

In Fibromyalgia_Support_Group , " Andersen "

wrote:

>

> Hi Krista,

> Like having the worst flu they can recall, but 100 times worse, and

it doesn't ever go away. They still don't get it.

> Hope you do better!!!

> /Mi

> How do you describe Fibromyalgia to others?

>

>

> Hi all,

> I'm just curious - when you are explaining Fibromyalgia to

others, how

> do you describe it?

> Thanks,

> ~Krista

>

>

>

>

>

>

[Guest guest]

Hello group,

How do I describe this horrible monster? I start by saying the whole constant

and uncomfortable pain! Part of my pain is constant in my neck,shoulders and

across my back between my shoulders and up into the base of my head......Also,

whatand helps them understand that is, think of the very worst and painful

stiff neck you have ever had in your life,and think about that every

day.....flu like symptoms is pretty good also. Then try to have them

picture the pain all over their body...the chronic fatigue syndrome, tell

them to think after they have exercised for an hour straight and how drained and

exhausted they feel, and imagine feeling that every day, after you've done,

NOTHING AT ALL!!!! All this kinda helps them get a brief idea....although it

still won't give them the whole picture, but it does seem to help a bit...hope

it helps....

Wishing you ALL gentle hugs and Painless days,

Take care,

Pam

---------------------------------

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