Re: Re: Need Fibro Help ASAP!

April 16, 2008

Hi Deb,

The grocery store has become one of my worst experiences. I have finally had

to start having them delivered and only go to the store to get the extra few

items that were not on the order list or get something special. Stop and Shop

has what they call Peapod that lets you order your groceries over the Internet

and pick a delivery time. The delivery people put the bags in my kitchen and

all I have to do is put them away (which takes me a couple of days). The site

uses the same flyer that the store uses for sales. It costs $6,50 to have an

order delivered and if you pick certain delivery times they take $1.50 off and

they give you coupons for free deliveries if you use if once every month or two

months. I particularly like using it for the heavy things and awkward things.

If you don't have Peapod in you area there are other sites that deliver

groceries from orders over the Internet.

I think most of us try not to complain. That is what this site is for though,

so we don't have to complain to others in our lives. And to give the support

where needed also. And of course to pass along any info that might be helpful.

Or just to chat.

Going to bed earlier might help a lot. If you went to bed just a hour earlier

you would get 8 hours and that might be enough to make you feel better.

Hope all goes well,

Marti

Debra #402430 tlcsassyscrapper@...> wrote:

Thanks so much for the replies. I know that I'm not alone here.

About 80% of the time or so, people wouldn't even know that I was in

pain. I try not to complain about things and make the best of the

situation I've been given.

There is so much that I need to work on, it's just so difficult to

figure out where to start. Insomnia is a huge issue. I NEED and

enjoy my alone time at night. So I generally don't get to bed until

2 am. I get up around 9 am most days. I know this isn't enough

sleep, it's so hard to break the cycle.

The fibro fog is a huge issue also. I've been thinking that I might

also have ADD, but have never been diagnosed.

There are many times that I get to the grocery store only to be

barely making it to the cashier and then to the car. I've called my

hubby a couple of times to come rescue me, because I was in so much

pain and exhausted. It's like I just need to sit and can't continue.

I am about 80 lbs over weight and know that I need to lose that, but

the pain, depression, lack of sleep, etc and it all becomes too much.

I am going to try very hard to work on journaling. I know that it

will help to pinpoint when I'm having a flare up and areas that I

need help or to work on.

I am looking forward to getting to know more of you here.

Blessings,

Deb in MN

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April 16, 2008

Debra,

I know what you mean about your alone time at night. I LOVE to stay up to 1 to

3 am and just have peace and quiet. It just doesn't work out well for me, so I

try to go to bed by 11:00. My problem is falling a sleep. For sleep, I take

6mg of Melatonin, Trazedon and Mirapex. You HAVE to get more sleep. And,

deeper sleep, so ask for sleep meds.

Effexor is good for depression and can cause weight loss. I take that, plus

Phentermine (a weight loss pill) that also helps a little with energy and for

some, even helps with pain. It's rx'ed off label for people wit FMS/CFS. These

to pills have helped me lose 25 lbs. so far. I do eat VERY healthy since I want

to heal my body nutritionally as well as lose weight, but these pills help me

control binges when I'm EXTRA tired or in HORRIBLE pain. I try to exercise when

I can, but with fibro......well you know. You'll need to see if these meds

would be safe for you. They say losing weight will not help with fibro pain,

but I disagree. I've noticed a huge difference in my pain when I put on weight.

Plus, it makes you more tired, it's hard on the joints, heart, back, etc. Being

too heavy creates extra health issues to deal with on top of fibro. I am making

it a priority to drop weight and these to meds have been a Godsend for me. I

also am recently being treated for hypothyroid and candida which has helped with

weight loss.

Cymbalta helps some with pain. It can also cause weight gain. It put weight on

me! One word of caution, Cymbalta and Effexor are INFAMOUS for really

difficult withdrawal coming off of them.

Wellbutrin is an anti-d that is supposed to help give a little extra

energy......

You should try Lyrica. It seems to really help a lot of people (not me) with

pain.

If you are not on pain meds already, I would try a different anti-d (if your's

is not working), try Lyrica, and get sleep meds and maybe a muscle relaxant.

That might make a big difference in your pain and you can avoid all the hassles

with pain meds. Have you had your thyroid checked? That's something you should

do down the road. Try to get at least 8 hours of deep sleep. Easier said then

done with children. My twins are five and still wake me up at least 4

times/night. And they get up at 4:30 in the morning !!!!! I HATE

mornings!!!!!

Good Luck!

Jill

Re: Need Fibro Help ASAP!