Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 Ann - Perhaps you've started at too high of a dose on the Lyrica? If not, you are not the only person who can't tolerate the side effects. Other drugs that are similar anti-seizure meds are Neurontin, Topomax, and Lamictal. I myself am on Lamictal per my psychiatrist to help control my mood levels. So I cannot do Lyrica. Oxycontin is the strongest pain reliever out there. Most docs won't prescribe unless others like Vicoden, Darvocet, Ultram don't work. I wish you luck in getting the pain relief that you need. Take care. Jeanne in WI Hello,I am on Lyrica and have had some pretty bad dizzy spells, I am going to my doctor tomorrow, I think I want to get off this medication due to the dizziness and it is not taking any pain away. Could anyone please tell me what other medications I can take so I can bring it up to my doctor. I have a lot of pain and am thinking of asking him for oxycodone, do you think this would help with the pain? Thank you all for your responses and thank you for being here as I am new to this disease. Sincerely, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Look the research shows that pain killers do not help this disease so those that are on them will get little sympathy from Dr's in trying to get them. We simply can't pick the pain killer in double blind control studies, and 30% respond to a placebo, it makes it infuriating because we all want to be pain free the problem is that it isn't " real " pain, (I know it feels pretty darn real) but there is no injury underlying it, just a bunch of brain waves acting up and until we manage that bit all the pills in the world aren't going to help and more importantly the Dr's well they simply don't beleive us. The best you can hope for is some kind of middle ground with your meds. For me its sleep I can endure the pain if I get the sleep. Re: medications/Ann Ann - Perhaps you've started at too high of a dose on the Lyrica? If not, you are not the only person who can't tolerate the side effects. Other drugs that are similar anti-seizure meds are Neurontin, Topomax, and Lamictal. I myself am on Lamictal per my psychiatrist to help control my mood levels. So I cannot do Lyrica. Oxycontin is the strongest pain reliever out there. Most docs won't prescribe unless others like Vicoden, Darvocet, Ultram don't work. I wish you luck in getting the pain relief that you need. Take care. Jeanne in WI Hello,I am on Lyrica and have had some pretty bad dizzy spells, I am going to my doctor tomorrow, I think I want to get off this medication due to the dizziness and it is not taking any pain away. Could anyone please tell me what other medications I can take so I can bring it up to my doctor. I have a lot of pain and am thinking of asking him for oxycodone, do you think this would help with the pain? Thank you all for your responses and thank you for being here as I am new to this disease. Sincerely, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Hi Bonnie, I've just been reading some of the most recent mail, because I got tired of trying to catch up with so much of the old that I want to go through. I ran across this post from you. It's interesting. I have read the same thing in some places. The thing is that the anecdotal evidence we see here on the group is, in some cases, different from the studies. I don't know how extensive the research is on pain killers for Fibromyalgia. I do know that hydrocodone is the only thing that I take, other than things like tylenol and asprin which no longer help, that helps my pain. I would be in bad shape without it and I guess there are a lot of people who feel the same way. Research only goes so far and then actual life experience has to play a part. I have to go with what works and thank goodness my doctor believes me that it works and that I need it. My PCP at least believes it and prescribes what I need; my pulmonary doctor that I see for Sarcoidosis doesn't believe in Fibromyalgia (his actual words) and doesn't have a particularly good reason that satisfies me, but he cites research doesn't prove it exists. People, including doctors can use research any way it suits their purpose is what I have determined. At any rate I am thankful for having something to ease my pain and that others do too. I think that the research done concerning the neuro transmitters being fooled is good research, but it only goes so far. Sleep doesn't help me much, but does help some when I take a short nap. Exercise helps me somewhat, although I haven't been able to do much lately. Even though there is a pain center that is affected in our brains, it causes us to tense up and all sorts of other things that affect our muscles and joints. The more pain, the more the affect on other parts of the body. That pain is " real " pain, as you describe it, because it reacts to massaging muscles and doing weight bearing exercise to strentghten the muscles around our joints. Things seem to go from the original cause, our brains, to affecting all parts of our bodies. I guess this is what the meds help. I don't have the answers of course, just trying to figure out why the pain meds work for so many of us. Take care, Marti Kate Court bonnie090196@...> wrote: Look the research shows that pain killers do not help this disease so those that are on them will get little sympathy from Dr's in trying to get them. We simply can't pick the pain killer in double blind control studies, and 30% respond to a placebo, it makes it infuriating because we all want to be pain free the problem is that it isn't " real " pain, (I know it feels pretty darn real) but there is no injury underlying it, just a bunch of brain waves acting up and until we manage that bit all the pills in the world aren't going to help and more importantly the Dr's well they simply don't beleive us. The best you can hope for is some kind of middle ground with your meds. For me its sleep I can endure the pain if I get the sleep. Re: medications/Ann Ann - Perhaps you've started at too high of a dose on the Lyrica? If not, you are not the only person who can't tolerate the side effects. Other drugs that are similar anti-seizure meds are Neurontin, Topomax, and Lamictal. I myself am on Lamictal per my psychiatrist to help control my mood levels. So I cannot do Lyrica. Oxycontin is the strongest pain reliever out there. Most docs won't prescribe unless others like Vicoden, Darvocet, Ultram don't work. I wish you luck in getting the pain relief that you need. Take care. Jeanne in WI Hello,I am on Lyrica and have had some pretty bad dizzy spells, I am going to my doctor tomorrow, I think I want to get off this medication due to the dizziness and it is not taking any pain away. Could anyone please tell me what other medications I can take so I can bring it up to my doctor. I have a lot of pain and am thinking of asking him for oxycodone, do you think this would help with the pain? Thank you all for your responses and thank you for being here as I am new to this disease. Sincerely, Ann Quote Link to comment Share on other sites More sharing options...
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