Re: [FSG]To Jill...numbness and tingling-- From Debra V.

[Guest guest]

Jill, I very well may have some neuropathy. Probably is. ONCE.... it turned to

horrible burning pain that swayed back and forth to tingling and numbness. It

lasted about 4 weeks or so. It was right before I was diagnosed and was the

primary symptom I sought help for at the time. Thinking it was carpal tunnel, I

started finding docs to help with it. That is when I soon found out it was

fibro. Anyway, thankfully, since that one flare 5 years ago, my hands have

never hurt like that again.

My sister's boss does not really bother me when I think about it. I have not

ever met him. Maybe never will. But, hey, we live with this kind of stigma

everday from someone. It really does not matter. I was pissed at first. But

then I just thought, well.... I guess alot of people don't believe us and we

just have to accept that for now until they prove this. And if I was on the

other side of the fence, who knows, I might be stupid enough to doubt it myself.

Although, I really don't think I would. I would have more compassion for

someone and would ask more questions to learn about the illness.

love and hugs,

Debra V.

jill larion jilllarion@...> wrote:

Deb,

Did you see my email about neuropathy? It's very common with fibro and can come

and go for no reason. I agree with you that it is not Raynaud's. It is most

likely is some type of neuropathy. Do you just have numbness or do you have pain

with it?

You need to feel sorry for you sister's boss. Someone who is ignorant and

arrogant about his beliefs truly needs to be pitied. He is close-minded and has

no empathy. Plus, someone who would disrespect his employee's sister in such a

cold way can't be happy. Just imagine how he treats his wife and kids. I'm sure

he is not respected by others and most probably despise him. Don't let someone

like that hurt your feelings. He's the one that needs help and will probably die

a lonely old man. If he brings it up, tell him you won't discuss your illness

with close-minded people and question his ethics on disrespecting his employee's

sister regardless of his beliefs. Tact and respect is vital in a work

environment and remind him that his is lacking. Turn it around on him.....you

don't need to waste your precious energy trying to convince a moron fibro is

real.

Jill

Re: MIckey

The PA-C said she'd tested for it on the last six blood tests,and if she

couldn't find it..I didn't have it..her words. Very arrogant woman. Believes her

own press. Blah

She works for a doctor who is 71 who should not be practicing..he has as bad a

short term memory as I do due to a major auto accident almost 20 years ago. He

lets her roam free.

My rheumatologist..a very good doctor..found it first test..she did not have me

on an anti-inflammatory..I was on low power darvocet..

Nov.05 I began a hellish journey with a viral infection she refused to

treat..says I can't..bulloney..a friend of mine had the same V.I. and he

still..wound up paralyzed. Attacked his nervous system and spinal area. I am

lucky..I just wound up with short-term memory loss..a chunk of long term memory

gone..vertigo..and..the fibromyalgia. Lovely..I left her in July 06..I didn't

get over this infection til around September that year.

My rheumatologist hates this PA-C..he found out..she had never given me a 24

hour urine collection..he said should be every year..the last urinalysis I had

to think about..I use word-association as I forget words even..I recalled it was

when my sister was in the nursing home..I said 2000. He almost growled. He said

this should happen 2-3 times a year!

Neuropathy is numbness in hands and feet..it..kills the nerves..my hands are

detiorating because of it. People say Oh..you have diabetes??? Noooo...

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