Re: Disability SHARON & Debi

[Guest guest]

Sharon & Debi,

Everyone I have talked to, and I have been making tons of calls the last 6

months trying to figure out some way to get help, has told me that the ONLY way

to get SSI is if the income in the house (including DH) has to be no more than

$800-$950 (depending on the state). You also can NOT have anything worth over

$3,000, including cars....so I don't qualify.....yet. Debi, you mentioned

Phyllis could get medicare.....how can she do that if she or I can't get SSI or

SSD? MY son has ADHD....Can I get SSI for him? I'm really

confused.....obviously. And Sharon, didn't you say you never worked because of

juvenile arthritis? Which means that you were already disabled, so it's

different for me...right? I stopped working when I was 29 after I had severe

nerve damage from a back surgery. I was stupid not to apply for short term SSD

then, but my mom said she would help me out and I wanted to leave SSD funds for

those who had no family to help them. Plus I rented out bedrooms in my house

and brought in over $1,000/mo for that. Shortly after that, I got married and

stayed home with my stepson. I worked part time briefly when he got older, but

then we adopted newborn twins. I'm now 38, my twins are in K and I NEED to go

back to work or we are going to sink. The first few years after highschool, I

competed horses and gave riding lessons and went to college part time. Then,

after a serious jumping accident, and multiple surgeries later and some time

down, I went back to work part time (32hrs/week) as a teaching asst. and

finished college. I taught elementary school for 2 years before my back surgery

that went really wrong. So, SS says I do not have enough work quarters to get

SSD and we make too much for SSI. Can anybody think of anything that I'm not to

get me on anything?

Thanks,

Jill

new member

Hi everyone,

I am new to this group and was diagnosed with FMS 4 years ago.

However, the past 6 months have been the worst ever. My hips and

legs are in severe pain and anytime I hold my 11 month old nephew

(who is very tiny) my right arm ends up hurting severely for weeks.

I have also recently started having severe migraines that last up to

a week. It has not been fun. I also have 2 autistic boys and a

husband that is very unsupportive and not only unhelpful, but he

pretty much makes everything worse. My stress level is through the

roof. I went to see a new rheumatologist this week and he started

asking me about my childhood and my marriage and said I was depressed

and prescribed Trazidone. I asked about Lyrica and he pretty much

shook his head and said that only helps with the pain and wouldnt

prescrib it. He pretty much gave me nothing for the pain, just said

that if I get some sleep with the trazadone the pain will get

better. His resident suggested possibly water therapy but he shot

that down too saying try the trazadone first.

I was able to get a handicapp parking sticker, but can not apply for

disability. For the past 13 years I have been a stay at home mom,

doing odd jobs from home (in home daycare for most of the time and

selling avon). None of it comes close to helping with the bills

(especially with two autistic kids) but working outside the home is

impossible for me. The number one reason I am stuck in my marriage

is I have no way to support myself and the kids (even with support

from him).

I am mostly just looking for a supportive group to discuss and vent

with.

Phyllis

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