RE: Re: I'm a Newbie! - Lyme SSDI/Jill

[Guest guest]

Thank you Jill. It really sucks since I've been seeing him for 17

years.............every 6 weeks like clock work! Once that Lyme diagnosis hit,

that's when it seems like our " Patient/Dr " relationship took a dive. Although I

didn't realize it until I read my records! I guess this is a good time to say to

everyone out there....................Get a copy of your records periodically

and keep tabs on whats being said about you in them. Since I'm trying to find a

new doc, I'm very concerned. I don't want what my doc wrote as part of my

permanent medical records! So I'm in the process of taking care of that

situation.

Mona

To: Fibromyalgia_Support_Group@...:

jilllarion@...: Mon, 31 Mar 2008 05:57:27 -0700Subject: Re:

Re: I'm a Newbie! - Lyme SSDI/

Doesn't want to get better? Dr.'s are so ignorant to what people with chronic

illnesses go thru. Too bad every Dr. couldn't spend one month of their life

going thru what we go thru. It's amazing to me how many Dr.'s lack empathy. I

hope you're new dr. works out well for you......Jill Re: I'm

a Newbie! - Lyme SSDII have Lyme too and so spend more time on lyme groups that

I am in.I hope you are getting treated by a doctor who goes way beyond theIDSA

treatment guideline for lyme disease. If you are not beingtreated for lyme now

you need a new doctor. I have just had my ALJ hearing for SSDI and am waiting to

get thedecision.>> Hi to all!> I'm a " newbie " to the group,

but not to FM! I've had FM/CFIDS since > 1990. I was also diagnosed withn

Chronic Lyme disease as well back in > 2002. I went through the disability

process with SSDI and long term > disabiltity through my employer at the time. I

did receive it due to > CFIDS and FM. I may be able to give a little help on

going through > the disability process.> Right now I'm in the process of trying

to find a new doc. I've been > seeing the one I have now since I was diagnosed

back in 1990. I would > like to have a new set of eyes kind of look over my

records, etc. I'm > NOT looking forward to finding a new doc. That in itself

will prove > to be stressful, as there don't seem to be that many docs willing

or > educated on this disease. Unless they are out there and I don't know >

it!!! LOL> Anyways..........I live in the Sunshine State (Tampa) and am looking

> forward to " meeting " everyone! > > Take Care!!> Mona

>__________________________________________________________Watch " Cause

Effect, " a show about real people making a real difference. Learn

more.http://im.live.com/Messenger/IM/MTV/?source=text_watchcause[Non-text

portions of this message have been

removed]------------------------------------1. While it is wonderful to share

our experiences with everyone on the list as to what treatments do and don't

work for us, pls always check with your dr. Some treatments are dangerous when

given along with other meds as well as to certain health conditions or just

dangerous in general.2. If you are in a difficult situation (doesn't matter what

it is) pls don't be afraid to ask for help. It is the first step to trying to

make that situation better.3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe@.... Also, it is not

uncommon for more than one member to be feeling bad at the same time when it

comes to flares and b/c of that potentially take something another member says

the wrong way. And that includes the things that one member may find funny (even

if it's laughing at fibro itself) even though we who deal with illness whether

one such as fibro or multiple illnesses try to keep a sense of humor.5. Pls

let's be gentle with each other, and if you are having a bad day pls let us know

so that we can do our best to offer our support.Have a nice day everyone.Yahoo!

Groups Links

_________________________________________________________________

Watch “Cause Effect,” a show about real people making a real difference. Learn

more.

http://im.live.com/Messenger/IM/MTV/?source=text_watchcause

[Guest guest]

Mona ,

That's great advice. I do check up on my records every once in a while.

Everyone should keep tract of what is being written about them. That's

great you are getting that ridiculous comment of your records.

Jill

Re: I'm a Newbie! - Lyme SSDII

have Lyme too and so spend more time on lyme groups that I am in.I hope you

are getting treated by a doctor who goes way beyond theIDSA treatment

guideline for lyme disease. If you are not beingtreated for lyme now you

need a new doctor. I have just had my ALJ hearing for SSDI and am waiting to

get thedecision.>> Hi to all!> I'm a " newbie " to the

group, but not to FM! I've had FM/CFIDS since > 1990. I was also diagnosed

withn Chronic Lyme disease as well back in > 2002. I went through the

disability process with SSDI and long term > disabiltity through my employer

at the time. I did receive it due to > CFIDS and FM. I may be able to give a

little help on going through > the disability process.> Right now I'm in the

process of trying to find a new doc. I've been > seeing the one I have now

since I was diagnosed back in 1990. I would > like to have a new set of eyes

kind of look over my records, etc. I'm > NOT looking forward to finding a

new doc. That in itself will prove > to be stressful, as there don't seem to

be that many docs willing or > educated on this disease. Unless they are out

there and I don't know > it!!! LOL> Anyways..........I live in the Sunshine

State (Tampa) and am looking > forward to " meeting " everyone! > > Take

Care!!> Mona

>__________________________________________________________Watch " Cause

Effect, " a show about real people making a real difference. Learn

more.http://im.live.com/Messenger/IM/MTV/?source=text_watchcause[Non-text

portions of this message have been

removed]------------------------------------1. While it is wonderful to

share our experiences with everyone on the list as to what treatments do and

don't work for us, pls always check with your dr. Some treatments are

dangerous when given along with other meds as well as to certain health

conditions or just dangerous in general.2. If you are in a difficult

situation (doesn't matter what it is) pls don't be afraid to ask for help.

It is the first step to trying to make that situation better.3. To

unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe@.... Also, it is not

uncommon for more than one member to be feeling bad at the same time when it

comes to flares and b/c of that potentially take something another member

says the wrong way. And that includes the things that one member may find

funny (even if it's laughing at fibro itself) even though we who deal with

illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.5. Pls let's be gentle with each other, and if you are having a bad

day pls let us know so that we can do our best to offer our support.Have a

nice day everyone.