Re: Was fired by my rheum or did I fire him? /

[Guest guest]

,

BTDT too! When I was hospitalized in respiratory distress due to

asthma exacerbation brought on by bronchitis (my walk-in O2 was 80% I

think if memory serves), was later told by my mom that I wasn't " as

bad as she was " when she was admitted with the same thing the year

before! Come on now, respiratory distress is respiratory distress.

Why quibble over whose was worse? Both could have caused death,

right? Sigh.....some days are diamonds and others are coal!

Darlene

>

> Darlene,

> sorry about the morons in your life that just don't get it, or

don't want to. In my household, they try to " outdo " me. God, it's

pathetic.

> /Mi

> Was fired by my rheum or did I fire him?

>

>

> I haven't updated because, well, I feel like crap. And my husband

> says he is getting " cold " to the fact that I " hurt " all the time

or

> feel " sick " all the time.

>

> Last week, after realizing I had been off steroids for enough

weeks

> that I shouldn't be swelling at all, I ran over my list of meds

to

> see what I had added recently that could be causing the blurred

> vision, excessive swelling, etc. The only new thing was Lyrica

and I

> was up to 150 mg 2x/day. So I called my rheum's office (one visit

> only, the day he diagnosed me in January), spoke w/the nurse and

> explained I felt that I had side effects to Lyrica that were not

> beneficial to me. She stated she would talk to the dr and then

get

> back to me.

>

> On Monday, when I still hadn't heard anything, I called back and

she

> said she would try again to reach him.

>

> On Tuesday, the message I got was " then I can't do anything else

for

> you " ! I asked the nurse what the @#$!# that meant? She said that

he

> wasn't going to treat me any more. I asked did it mean I was free

to

> find another rheum? She said " I guess so " .

>

> So I called my PCP who referred me to the jacka$$ to begin with

and

> they gave me 2 other names. I called one and was told they would

have

> to " talk to the doctor and get back to me regarding taking me on

as a

> new patient " . I'm still waiting. I called the 2nd one this

morning

> and while they cannot get me in this month, they will put me on

> the " cancellation " list and set up an appt for me for May.

>

> In the meantime, having told all this to my pulmonologist, who

treats

> my COPD, asthma, allergies and OSA, they went ahead and

prescribed me

> one month's worth of neurotonin. I started it last night. I still

> also have my darvocet and robaxin. I cannot take ultram because

it

> can cause folks who are allergic to codeine (me!!!) to suffer a

fatal

> reaction. That wasn't a risk me or the pulmo were willing to take.

>

> I have also started taking probiotics and some natural

> supplements/vitamins from univera (aloe gold and ageless xtra).

They

> (the liquid ones) taste terrible *but* if they have half the

results

> claimed, I will feel like a new woman.

>

> My mother has been giving me a hard time too about the fibro. I

have

> been told " you spend too much time online " . Hmmm, let's see. I'm

out

> on medical disability and waiting for my hearing, because of my

blood

> clot my DH doesn't want me zipping off here and there and because

of

> my excessive swelling, I can't exactly exercise. Anyhow, I

decided I

> wasn't going to say anything to them any more. While it hurts my

> feelings that my DH, who has seen me writhe in pain and who has

had

> to help me get up from a crouch because I " froze " , is now acting

like

> I should be " over it " , well, he'll get the gist of it eventually

that

> I WON'T get over it! Yes, I can eat right, take supplements and

> vitamins and work on losing weight and building up some exercise,

but

> it isn't going to change the fact that I have

COPD/asthma/allergies,

> or fibro, or hypertension, or am at risk for another DVT. All of

> these can be reduced and managed, but I'm not there " yet " .

>

> Sorry to vent. I hurt all over today. I go to the chiro tomorrow

and

> hopefully, all the " out " places can be put back in!

>

> Darlene

>

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>

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>

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