Re: New to the group/Marci

[Guest guest]

Hi Marci - Welcome to the FaMily. We certainly know and understand what you are

going through. I used to have a mind that focused very well on whatever I was

working on. Now there is constant fog to try to function through. Yes, the

meds add to our fogginess, but without them, you're right, you probably wouldn't

be able to do your job.

I find that I don't permanently forget how to do stuff, or what the answer is to

something. It's frustrating at the time when you can't think of the right word,

or the next step, but it usually doesn't last. So, I'd like to encourage you to

think positively in regards to your ability to do your job. Don't panic because

the anxiety will just make it worse.

Am I understanding your job correctly? You are like a private contractor hired

by various companies to set up their computer systems. And your current

contract is for the US govt.? I really envy people who have all that computer

knowledge. Computers run the world now, and not having enough knowledge can be

very frustrating for us regular folk.

See, now I've started rambling, too. I hope you post and ramble whenever you

want to.

Take care.

Jeanne in WI

Hello. My name is Marci and I just found this group. I would love to talk to

other people who have this disease. I am 36 years old and have been diagnosed

for about 3 years. I know they say it doesn't

progress, but I swear mine has. I can say I was lucky that the rheumatologist

diagnosed it the first visit I had there. I had no idea what it was. To begin

with, my PCP said Lupus, then possibly MS, then sero negative arthritis. The

rheumatologist got it on the first try. After reading about it, I cried because

if it was Lupus,

I had a chance at remission. So, I didn't want to agree that I had it. Now,

I'm no longer thinking it's something else, just wishing.

So, I have a great job. I love the work I do. Only problem, the big project

I'm working on now (ends in a month) has caused a flare up. One of the

questions I have is the " fog " . I'm an IT Manager and am

in charge of putting in a new computer system for the US. I keep forgetting

things I'm supposed to do! That's a big issue. I am so scared I will lose my

job because I forget how to do it. Anyone else

feel this way? Also, if I do lose my job, I have 2 kids to support. And the

pain since the flare up (I've been flared up for 2 months now) is terrible. It

hurts to breath. But if I take all the prescribed meds, the pain is much

better, but my brain is so fuzzy, I can't do my work. I'm at a loss as to what

to do: Live in this much

pain but keep my job or fix the pain and lose the job. Sorry for rambling.

Happy to belong to this group,

Marci