Re: childrens disability, PLEASE answer if you know anything

[Guest guest]

Debra,

Here is the inforamtion from the social security website:

Supplemental Security Income (SSI) payments for children with

disabilities

SSI makes monthly payments to people with low income and limited

resources who are 65 or older, or blind or disabled. Your child under

age 18 can qualify if he or she meets Social Security's definition of

disability for children, and if his or her income and resources fall

within the eligibility limits. The amount of the SSI payment is

different from one state to another because some states add to the

SSI payment. Your local Social Security office can tell you more

about your state's total SSI payment.

SSI rules about income and resources

When we decide if your child can get SSI, we consider your child's

income and resources. We also consider the income and resources of

family members living in the child's household. These rules apply if

your child lives at home. They also apply if he or she is away at

school but returns home from time to time and is subject to your

control.

If your child's income and resources, or the income and resources of

family members living in the child's household, are more than the

amount allowed, we will deny the child's application for SSI

payments.

We limit the monthly SSI payment to $30 when a child is in

a medical facility where health insurance pays for his or her care.

SSI rules about disability

Your child must meet all of the following requirements to be

considered disabled and therefore eligible for SSI:

The child must not be working and earning more than $940 a month in

2008. (This earnings amount changes every year.) If he or she is

working and earning that much money, we will find that your child is

not disabled.

The child must have a physical or mental condition, or a combination

of conditions, that results in " marked and severe functional

limitations. " This means that the condition(s) must very seriously

limit your child's activities.

The child's condition(s) must have lasted, or be expected to last, at

least 12 months; or must be expected to result in death.

If your child's condition(s) results in " marked and severe functional

limitations " for at least 12 continuous months, we will find that

your child is disabled. But if it does not result in those

limitations, or does not last for at least 12 months, we will find

that your child is not disabled.

Providing information about your child's condition

When you apply for benefits for your child, we will ask you for

detailed information about the child's medical condition and how it

affects his or her ability to function on a daily basis. We also will

ask you to give permission for the doctors, teachers, therapists and

other professionals who have information about your child's condition

to send the information to us.

If you have any of your child's medical or school records, please

bring them with you. This will help speed up the decision on your

application.

What happens next?

We send all of the information you give us to the Disability

Determination Services in your state. Doctors and other trained staff

in that state agency will review the information, and will request

your child's medical and school records, and any other information

needed to decide if your child is disabled.

If the state agency cannot make a disability decision using only the

medical information, school records and other facts they have, they

may ask you to take your child for a medical examination or test. We

will pay for the exam or test.

We may make immediate SSI payments to your child

It can take three to five months for the state agency to decide if

your child is disabled. However, we consider certain medical

conditions so limiting that we expect any one of them to disable a

child. In these cases, we make SSI payments right away and for up to

six months while the state agency decides if your child is disabled.

Following are some of those conditions:

HIV infection

Total blindness

Total deafness

Cerebral palsy

Down syndrome

Muscular dystrophy

Severe mental retardation (child age 7 or older)

Birth weight below two pounds, 10 ounces

If your child has one of the limiting conditions that is expected to

disable a child, he or she will get SSI payments right away. However,

the state agency may finally decide that your child's disability is

not severe enough for SSI. If that happens, you will not have to pay

back the SSI payments that your child got.

SSI disability reviews

Once your child starts receiving SSI, the law requires that we review

your child's medical condition from time to time to verify that he or

she is still disabled. This review must be done:

At least every three years for children younger than age 18 whose

conditions are expected to improve; and

By age 1 for babies who are getting SSI payments because of their low

birth weight, unless we determine their medical condition is not

expected to improve by their first birthday and we schedule the

review for a later date.

We may perform a disability review even if your child's condition is

not expected to improve. When we do a review, you must present

evidence that your child is and has been receiving treatment that is

considered medically necessary for your child's medical condition.

What happens when your child turns age 18

For disability purposes in the SSI program, a child becomes an adult

at age 18, and we use different medical and nonmedical rules when

deciding if an adult can get SSI disability payments. For example, we

do not count the income and resources of family members when deciding

whether an adult meets the financial limits for SSI. We count only

the adult's income and resources. We also use the disability rules

for adults when deciding whether an adult is disabled.

If your child is already receiving SSI payments, we must review the

child's medical condition when he or she turns age 18. We usually do

this review during the one-year period that begins on your child's

18th birthday. We will use the adult disability rules to decide

whether your 18-year-old is disabled.

If your child was not eligible for SSI before his or her 18th

birthday because you and your spouse had too much income or

resources, he or she may become eligible for SSI at age 18.

For more information, ask for Supplemental Security Income (SSI)

(Publication No. 05-11000).

[Guest guest]

Well my kids wouldnt apply because my husband makes too much so basically I am

screwed as far as collecting any form of disability for myself or my kids. I

wish there was someway to count all the years I have been doing home daycare or

selling avon, even if I wasnt paying in to ss then. I spent 10 years prior to

that paying into it.

Phyllis

Re: childrens disability, PLEASE answer if you know anything

To: Fibromyalgia_Support_Group

Date: Friday, April 18, 2008, 12:54 PM

Debra,

Here is the inforamtion from the social security website:

Supplemental Security Income (SSI) payments for children with

disabilities

SSI makes monthly payments to people with low income and limited

resources who are 65 or older, or blind or disabled. Your child under

age 18 can qualify if he or she meets Social Security's definition of

disability for children, and if his or her income and resources fall

within the eligibility limits. The amount of the SSI payment is

different from one state to another because some states add to the

SSI payment. Your local Social Security office can tell you more

about your state's total SSI payment.

SSI rules about income and resources

When we decide if your child can get SSI, we consider your child's

income and resources. We also consider the income and resources of

family members living in the child's household. These rules apply if

your child lives at home. They also apply if he or she is away at

school but returns home from time to time and is subject to your

control.

If your child's income and resources, or the income and resources of

family members living in the child's household, are more than the

amount allowed, we will deny the child's application for SSI

payments.

We limit the monthly SSI payment to $30 when a child is in

a medical facility where health insurance pays for his or her care.

SSI rules about disability

Your child must meet all of the following requirements to be

considered disabled and therefore eligible for SSI:

The child must not be working and earning more than $940 a month in

2008. (This earnings amount changes every year.) If he or she is

working and earning that much money, we will find that your child is

not disabled.

The child must have a physical or mental condition, or a combination

of conditions, that results in " marked and severe functional

limitations. " This means that the condition(s) must very seriously

limit your child's activities.

The child's condition(s) must have lasted, or be expected to last, at

least 12 months; or must be expected to result in death.

If your child's condition(s) results in " marked and severe functional

limitations " for at least 12 continuous months, we will find that

your child is disabled. But if it does not result in those

limitations, or does not last for at least 12 months, we will find

that your child is not disabled.

Providing information about your child's condition

When you apply for benefits for your child, we will ask you for

detailed information about the child's medical condition and how it

affects his or her ability to function on a daily basis. We also will

ask you to give permission for the doctors, teachers, therapists and

other professionals who have information about your child's condition

to send the information to us.

If you have any of your child's medical or school records, please

bring them with you. This will help speed up the decision on your

application.

What happens next?

We send all of the information you give us to the Disability

Determination Services in your state. Doctors and other trained staff

in that state agency will review the information, and will request

your child's medical and school records, and any other information

needed to decide if your child is disabled.

If the state agency cannot make a disability decision using only the

medical information, school records and other facts they have, they

may ask you to take your child for a medical examination or test. We

will pay for the exam or test.

We may make immediate SSI payments to your child

It can take three to five months for the state agency to decide if

your child is disabled. However, we consider certain medical

conditions so limiting that we expect any one of them to disable a

child. In these cases, we make SSI payments right away and for up to

six months while the state agency decides if your child is disabled.

Following are some of those conditions:

HIV infection

Total blindness

Total deafness

Cerebral palsy

Down syndrome

Muscular dystrophy

Severe mental retardation (child age 7 or older)

Birth weight below two pounds, 10 ounces

If your child has one of the limiting conditions that is expected to

disable a child, he or she will get SSI payments right away. However,

the state agency may finally decide that your child's disability is

not severe enough for SSI. If that happens, you will not have to pay

back the SSI payments that your child got.

SSI disability reviews

Once your child starts receiving SSI, the law requires that we review

your child's medical condition from time to time to verify that he or

she is still disabled. This review must be done:

At least every three years for children younger than age 18 whose

conditions are expected to improve; and

By age 1 for babies who are getting SSI payments because of their low

birth weight, unless we determine their medical condition is not

expected to improve by their first birthday and we schedule the

review for a later date.

We may perform a disability review even if your child's condition is

not expected to improve. When we do a review, you must present

evidence that your child is and has been receiving treatment that is

considered medically necessary for your child's medical condition.

What happens when your child turns age 18

For disability purposes in the SSI program, a child becomes an adult

at age 18, and we use different medical and nonmedical rules when

deciding if an adult can get SSI disability payments. For example, we

do not count the income and resources of family members when deciding

whether an adult meets the financial limits for SSI. We count only

the adult's income and resources. We also use the disability rules

for adults when deciding whether an adult is disabled.

If your child is already receiving SSI payments, we must review the

child's medical condition when he or she turns age 18. We usually do

this review during the one-year period that begins on your child's

18th birthday. We will use the adult disability rules to decide

whether your 18-year-old is disabled.

If your child was not eligible for SSI before his or her 18th

birthday because you and your spouse had too much income or

resources, he or she may become eligible for SSI at age 18.

For more information, ask for Supplemental Security Income (SSI)

(Publication No. 05-11000).

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Phyllis,

Have you called the Social Security Dep and asked them if you have work quarters

to qualify? If it was full time, 10 yrs should be enough. It will still be hard

to get since you've been home for 13 yrs., but I think you could fight it with a

lawyer and still get it.. The number is 1-. Just ask them if you

have enough work quarters to draw from SS for disability. You don't need to

give them any other info about what's wrong or how long you've been home....they

won't ask. If you do, contact a lawyer.

Jill

Re: childrens disability, PLEASE answer if you know anything

To: Fibromyalgia_Support_Group

Date: Friday, April 18, 2008, 12:54 PM

Debra,

Here is the inforamtion from the social security website:

Supplemental Security Income (SSI) payments for children with

disabilities

SSI makes monthly payments to people with low income and limited

resources who are 65 or older, or blind or disabled. Your child under

age 18 can qualify if he or she meets Social Security's definition of

disability for children, and if his or her income and resources fall

within the eligibility limits. The amount of the SSI payment is

different from one state to another because some states add to the

SSI payment. Your local Social Security office can tell you more

about your state's total SSI payment.

SSI rules about income and resources

When we decide if your child can get SSI, we consider your child's

income and resources. We also consider the income and resources of

family members living in the child's household. These rules apply if

your child lives at home. They also apply if he or she is away at

school but returns home from time to time and is subject to your

control.

If your child's income and resources, or the income and resources of

family members living in the child's household, are more than the

amount allowed, we will deny the child's application for SSI

payments.

We limit the monthly SSI payment to $30 when a child is in

a medical facility where health insurance pays for his or her care.

SSI rules about disability

Your child must meet all of the following requirements to be

considered disabled and therefore eligible for SSI:

The child must not be working and earning more than $940 a month in

2008. (This earnings amount changes every year.) If he or she is

working and earning that much money, we will find that your child is

not disabled.

The child must have a physical or mental condition, or a combination

of conditions, that results in " marked and severe functional

limitations. " This means that the condition(s) must very seriously

limit your child's activities.

The child's condition(s) must have lasted, or be expected to last, at

least 12 months; or must be expected to result in death.

If your child's condition(s) results in " marked and severe functional

limitations " for at least 12 continuous months, we will find that

your child is disabled. But if it does not result in those

limitations, or does not last for at least 12 months, we will find

that your child is not disabled.

Providing information about your child's condition

When you apply for benefits for your child, we will ask you for

detailed information about the child's medical condition and how it

affects his or her ability to function on a daily basis. We also will

ask you to give permission for the doctors, teachers, therapists and

other professionals who have information about your child's condition

to send the information to us.

If you have any of your child's medical or school records, please

bring them with you. This will help speed up the decision on your

application.

What happens next?

We send all of the information you give us to the Disability

Determination Services in your state. Doctors and other trained staff

in that state agency will review the information, and will request

your child's medical and school records, and any other information

needed to decide if your child is disabled.

If the state agency cannot make a disability decision using only the

medical information, school records and other facts they have, they

may ask you to take your child for a medical examination or test. We

will pay for the exam or test.

We may make immediate SSI payments to your child

It can take three to five months for the state agency to decide if

your child is disabled. However, we consider certain medical

conditions so limiting that we expect any one of them to disable a

child. In these cases, we make SSI payments right away and for up to

six months while the state agency decides if your child is disabled.

Following are some of those conditions:

HIV infection

Total blindness

Total deafness

Cerebral palsy

Down syndrome

Muscular dystrophy

Severe mental retardation (child age 7 or older)

Birth weight below two pounds, 10 ounces

If your child has one of the limiting conditions that is expected to

disable a child, he or she will get SSI payments right away. However,

the state agency may finally decide that your child's disability is

not severe enough for SSI. If that happens, you will not have to pay

back the SSI payments that your child got.

SSI disability reviews

Once your child starts receiving SSI, the law requires that we review

your child's medical condition from time to time to verify that he or

she is still disabled. This review must be done:

At least every three years for children younger than age 18 whose

conditions are expected to improve; and

By age 1 for babies who are getting SSI payments because of their low

birth weight, unless we determine their medical condition is not

expected to improve by their first birthday and we schedule the

review for a later date.

We may perform a disability review even if your child's condition is

not expected to improve. When we do a review, you must present

evidence that your child is and has been receiving treatment that is

considered medically necessary for your child's medical condition.

What happens when your child turns age 18

For disability purposes in the SSI program, a child becomes an adult

at age 18, and we use different medical and nonmedical rules when

deciding if an adult can get SSI disability payments. For example, we

do not count the income and resources of family members when deciding

whether an adult meets the financial limits for SSI. We count only

the adult's income and resources. We also use the disability rules

for adults when deciding whether an adult is disabled.

If your child is already receiving SSI payments, we must review the

child's medical condition when he or she turns age 18. We usually do

this review during the one-year period that begins on your child's

18th birthday. We will use the adult disability rules to decide

whether your 18-year-old is disabled.

If your child was not eligible for SSI before his or her 18th

birthday because you and your spouse had too much income or

resources, he or she may become eligible for SSI at age 18.

For more information, ask for Supplemental Security Income (SSI)

(Publication No. 05-11000).

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Ok Contact your local autistic assoc for " facts " .

Contact the 504/IDEAS association (the school has to do

all things for you), also there is a law firm associated

with 504 and IDEAS I can't remember their name

its Wyatt or What, this is a new laptop so I don't have

all my booknotes but ask around they will tell you that

these guys have an on line service where they give

you the forms and tell you what the steps are

and then if you are broke they take on cases as

class actions to get bulk services on a state by

state basis.

My 12 year old is developmentally 6 and my 7 year

old is developmentally 5. Its taken 6 years to get into

court and we just made it now. Brace yourself this is

a long painful fight and you will win some and loose

some but mostly loose and each day you get up

and do it again.

I wrote a book  a few years ago on educating

autisitic kids but my knowledge is now old since

I started law school and changed my speciality.

childrens disability, PLEASE answer if you know anything

Please answer this and hear my ranting if you know ANYTHING about disability for

children with autism spectrum disorder and pervasive developmental disorder.

Ok, n was put in special ed when Kindergarten found him to be way behind. 

I was told with all the school documentation I have and their assessments that

he will qualify for medicaid and disability regardless of my income.  I called

an 800 number to get info today.  The man was snide when I first told him what

I was inquiring about.  Then when I told him my middle class income, he told me

my child probably won't qualify.  I told him in no uncertain terms that the

child is behind at least 2 years developmentally and that I work to raise my

kids.  I told him if I did NOT work, then the government would help them with

everything.  I was pissed.

He then got nicer.  He set up a meeting here at the local office for me and

said he would send the papers to me to fill out. 

I have no medicaid or insurance for my kids.  I can barely keep up with the

bills being the sole provider.  And neither one of their " fathers " will send

child support.  I own nothing and have no savings.  (ok, that is another

story).

HOWEVER, I was told by the school psychologist, therapists, and principal that

no matter what I make he will qualify for help.  The man on the phone got nicer

as I told him this child did not walk until 2 years old, did not crawl until

after the age of 1 1/2 and was only fully potty trained at 5 1/2 years old.  I

have tons of documentation over the last few months that he is behind by at

least 2-3 years developmentally and probably wont even hit kindegarten level by

6. 

Do ANY of you know if he was filling me with BS.  He did say I was barely under

the income limit.  I have a meeting with the local social security office in a

couple of weeks.  I WILL NOT GIVE UP.  They have ticked me off to no end. 

And I have heard from a co worker who has a sister who is a special ed teacher

and she also said there is no income limit.  I gross

much higher than my actual income a month.  But the taxes taken out makes it

much less.  They don't count that I guess.  Because I sure don't see all that

money. 

I am so mad.  I work sick all the time with an invisible illness and provide

for my kids the best I can and cannot give them proper medical care.  It hurts

me. 

ARE THEY JUST TRYING TO DETER ME AND MAKE ME GIVE UP WITH THE INITIAL PHONE

CALL??????  If so, they have another thing coming.  They can mess with me but

not with my kids.  DONT come between a mother and her disabled child..... hell

hath no fury like a mother's love.

Thanks for listening,

love and hugs,

Debra V.

     

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile.  Try it now. 

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

------------------------------------

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr. 

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help.  It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way.  And that includes the things that one

member may find funny (even if it's laughing at fibro itself) even though we who

deal with illness whether one such as fibro or multiple illnesses try to keep a

sense of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

I think you might mean slaw? I know about that a little since

my 2 younger kids have FAS and pFAS due to their bio mom drinking

during pregnancy. Developmentally, he is 5-6 (they will be 9 in

June); she is ok developmentally, but emotionally, she has issues.

Debra, fight fight fight for your kiddos! It is and can be a battle,

for sure, but check to see if there are any yahoo groups related to

this that might know too.

Bonnie, I am so sorry you are going thru what you are going thru.

What a PITA, huh?

Darlene

>

> Ok Contact your local autistic assoc for " facts " .

> Contact the 504/IDEAS association (the school has to do

> all things for you), also there is a law firm associated

> with 504 and IDEAS I can't remember their name

> its Wyatt or What, this is a new laptop so I don't have

> all my booknotes but ask around they will tell you that

> these guys have an on line service where they give

> you the forms and tell you what the steps are

> and then if you are broke they take on cases as

> class actions to get bulk services on a state by

> state basis.

> My 12 year old is developmentally 6 and my 7 year

> old is developmentally 5. Its taken 6 years to get into

> court and we just made it now. Brace yourself this is

> a long painful fight and you will win some and loose

> some but mostly loose and each day you get up

> and do it again.

> I wrote a book  a few years ago on educating

> autisitic kids but my knowledge is now old since

> I started law school and changed my speciality.

>

>

> childrens disability, PLEASE answer if you know

anything

>

> Please answer this and hear my ranting if you know ANYTHING about

disability for children with autism spectrum disorder and pervasive

developmental disorder.

>

> Ok, n was put in special ed when Kindergarten found him to be

way behind.  I was told with all the school documentation I have and

their assessments that he will qualify for medicaid and disability

regardless of my income.  I called an 800 number to get info

today.  The man was snide when I first told him what I was inquiring

about.  Then when I told him my middle class income, he told me my

child probably won't qualify.  I told him in no uncertain terms that

the child is behind at least 2 years developmentally and that I work

to raise my kids.  I told him if I did NOT work, then the government

would help them with everything.  I was pissed.

> He then got nicer.  He set up a meeting here at the local office

for me and said he would send the papers to me to fill out. 

> I have no medicaid or insurance for my kids.  I can barely keep up

with the bills being the sole provider.  And neither one of

their " fathers " will send child support.  I own nothing and have no

savings.  (ok, that is another story).

> HOWEVER, I was told by the school psychologist, therapists, and

principal that no matter what I make he will qualify for help.  The

man on the phone got nicer as I told him this child did not walk

until 2 years old, did not crawl until after the age of 1 1/2 and was

only fully potty trained at 5 1/2 years old.  I have tons of

documentation over the last few months that he is behind by at least

2-3 years developmentally and probably wont even hit kindegarten

level by 6. 

> Do ANY of you know if he was filling me with BS.  He did say I was

barely under the income limit.  I have a meeting with the local

social security office in a couple of weeks.  I WILL NOT GIVE UP. 

They have ticked me off to no end.  And I have heard from a co

worker who has a sister who is a special ed teacher and she also said

there is no income limit.  I gross

> much higher than my actual income a month.  But the taxes taken

out makes it much less.  They don't count that I guess.  Because I

sure don't see all that money. 

>

> I am so mad.  I work sick all the time with an invisible illness

and provide for my kids the best I can and cannot give them proper

medical care.  It hurts me. 

>

> ARE THEY JUST TRYING TO DETER ME AND MAKE ME GIVE UP WITH THE

INITIAL PHONE CALL??????  If so, they have another thing coming. 

They can mess with me but not with my kids.  DONT come between a

mother and her disabled child..... hell hath no fury like a mother's

love.

>

> Thanks for listening,

> love and hugs,

> Debra V.

>

>

>      

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile.  Try it now. 

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

> ------------------------------------

>

> 1. While it is wonderful to share our experiences with everyone on

the list as to what treatments do and don't work for us, pls always

check with your dr.  Some treatments are dangerous when given along

with other meds as well as to certain health conditions or just

dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is)

pls don't be afraid to ask for help.  It is the first step to trying

to make that situation better.

>

> 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-

unsubscribe

>

> 4. Also, it is not uncommon for more than one member to be feeling

bad at the same time when it comes to flares and b/c of that

potentially take something another member says the wrong way.  And

that includes the things that one member may find funny (even if it's

laughing at fibro itself) even though we who deal with illness

whether one such as fibro or multiple illnesses try to keep a sense

of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a bad

day pls let us know so that we can do our best to offer our support.

>

> Have a nice day everyone.

>