Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 Thank you for that great explanation and how your dr. recommends treatment. I'm sure it helped many on the list. Jeanne in WI Hello All... Yes, I am a few days late in commenting on this topic but I feel maybe my information may be of some help to some of you Fibro mites out there..... Last year, finally, I went for a 2nd opinion of an ENT Specialist, as I was fed up with being told I was imagining things. This new ENT diagnosed my sore/swollen tongue and mouth that felt like it was " ON FIRE " just drinking a soda, as " Burning Tongue & Mouth Syndrome " ... My reasons for posting is to tell you ALL that you are not 'crazy', like most Doctors make you fell and you are NOT 'alone.' At first, my tongue only swelled and hurt when I had adverse reactions to several Antibiotics that I am now Allergic to. During my whole life, at one time or another, I have gotten those little " REALLY SORE & HURTFUL " bumps on the tip of my tongue and cracks on the sides of my mouth which I was told was a Vitamin deficiency...... BUT NOW.....It is a whole different " Ball Game " .... Following is what I told my ENT and he confirmed my condition: My tongue swells and gets deep cracks Bumps Tiny to Large and very painful Cannot drink: soda, alcohol, anything VERY cold or hot Drink with a straw ONLY NOTHING Spicy Hot like Pepper or Tabasco Nothing with a lot of SALT NO Salad Dressings, Pickles, Vinegar Sometimes even Apple Pie (Cinnamon) hurts!!! NOW.....My Doc recommends the following Vitamin Supplements and Prescription Medications with no guarantees but they have helped other patients: Ultra B-150 Complex 1 AM B12 500mcg 2 AM A 12,000IU 1 AM Zinc 50mg 1 AM Alpha Lipoic Acid 100mg 1 AM Take ALL of these Vitamin Supplements with FOOD and of course, take them religiously or you will NOT receive any relieve..... YES, I have been taking the Vitamin supplements and feel some relief....but then there are days that I DO NOT.... The prescription medications are: Klonopin (Generic is Clonazepam) Elavil (Generic is Amitriptyline) Both of these are supposed to have effect on the nerves in the mouth besides any other reasons for taking them. Because I am on other Psych Medications similar.....I can not take the above. Well....if anyone wishes to write back to me....you are welcome to....maybe I can be of more help....OR.....maybe someone may have more advice for ME....LOL..... Take care everyone....and May tomorrow be a BETTER DAY FOR ALL !!! Quote Link to comment Share on other sites More sharing options...
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